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    • 4 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 1 hour, 4 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 1 hour, 5 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 16 hours, 5 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 16 hours, 6 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 16 hours, 6 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 21 hours, 53 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 21 hours, 53 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 22 hours, 53 minutes ago
      Marthaeg likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 23 hours, 4 minutes ago
      kristina blake likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 23 hours, 12 minutes ago
      Mike S likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 23 hours, 32 minutes ago
      Eve Rabbiner likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 23 hours, 35 minutes ago
      Marty likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 23 hours, 47 minutes ago
      John Barbuto likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 19 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      not for those of moderate income.
    • 1 day, 19 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 19 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 20 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 20 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 21 hours ago
      Bruce Schnitzler likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 22 hours ago
      Steve Rumble likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I think that a functional cure is the most viable scenario as far as a "cure" is concerned. It seems like the most progress is being made with islet cell therapies.
    • 1 day, 22 hours ago
      Natalie Daley likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 22 hours ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 22 hours ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 22 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
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    In the past 12 months, have you changed medications or devices because of your health insurance?

    Home > LC Polls > In the past 12 months, have you changed medications or devices because of your health insurance?
    Previous

    Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you?

    Next

    Do you believe that your insulin has ever been less effective due to exposure to high temperatures?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. Becky Hertz

      Oops, should be no. Thought I was answering a different question.

      3 years ago Log in to Reply
    2. LizB

      I changed my brand of pump but not because of insurance. It was my choice, and they covered it.

      3 years ago Log in to Reply
    3. mojoseje

      Yes, I had to switch from Novolog to Humalog because the copay was 3 times as much. I was excited to see that President Biden included Novolog on the list of ten for negotiating better prices. I do feel I used less insulin on Novolog.
      I also had to stop taking another drug because the copay is too expensive.

      3 years ago Log in to Reply
    4. lenglish@cimginc.com

      I changed because I needed new pump…knowing that I was going on Medicare in the next few years I specifically looked based on what they would cover in the future.

      3 years ago Log in to Reply
      1. ELYSSE HELLER

        I will lose my healthcare coverage in 2 years when I turn 65 and also have to rely on Medicare; what did you find out if you would not mind sharing. I am terrified about loosing my healthcare coverage. Thanks,

        vampyre2391@gmail.com

        1
        3 years ago Log in to Reply
    5. AnitaS

      I had to change one of my medications. It wasn’t a diabetes medication though. When I told my doctor that my insurance wasn’t going to cover my original medication anymore, she said she was glad because she was ready to tell me that she was going to switch my medication anyway.

      3 years ago Log in to Reply
    6. Karington Johnston

      I’ve received a notification that I will need to change insulins due to my health insurance, but since I had just placed an order, I still have a few months

      3 years ago Log in to Reply
    7. Gary Rind

      not in the last 12 months. did have to get rid of FIASP, now take Lyumjev. it’s okay but not great.

      3 years ago Log in to Reply
    8. Angela Naccari

      I also incorrectly said “yes” when I should have answered “no”.

      3 years ago Log in to Reply
    9. Michelle Saunders

      I clicked other, as it has been a couple months more than 12, and it wasn’t because of insurance. I had to go to MDI from being on the Tslim and Dex, because my DoS doctor at the embassy where my husband is currently stationed, said he could not send a prescription to the company that I was getting my pump and dex supplies from. The best solution was to give me a copy of my prescription, that had COPY, as a huge watermark, and I was responsible for figuring out how to fax it to them.

      3 years ago Log in to Reply
    10. Richard Vaughn

      In January my Aetna/Medicare plan required me to start using the One Touch Verio glucometer. I had been using the Freestyle Lite glucometer for many years. I feel that the One Touch is less accurate. I miss my Freestyle Lite.

      1
      3 years ago Log in to Reply
      1. Trina Blake

        Hi Richard, see my answer to the question (a few days ago) about experiences with extrele lows to the point of loss of consciousness. It’s a long reply. Didn’t want to write it again.

        3 years ago Log in to Reply
    11. Lorri McLuckie

      Because of insurance, I had to change from Novolog to Humalog insulin.

      3 years ago Log in to Reply
      1. Amber Thompson

        My insurance changes their formulary on a regular basis from Humalog to Novolog and vice versa. Every insurance company I have been with over the 18 years of being diabetic.

        3 years ago Log in to Reply
    12. KarenM6

      I’ve changed almost everything, but not because of insurance.
      Pump because the other one was discontinued.
      CGM because I am hoping for better readings.
      Insulin because the one I was using wouldn’t work in the new pump.
      Test strips because I no longer had to use a particular meter.
      I think that’s all… I hope that’s all!

      3 years ago Log in to Reply
    13. Donna Condi

      Yes. I was using generic Novalog(Insulin Aspart) when I was getting my insulin through Medicare Durable Goods (Part B) and paying $0. When I found out that the rules had changed and Medicare began charging $35.00 through Part B, I decided that it was easier to go through my Part D drug plan and still be charged the same $35.00 with less hoops to jump through.And my drug plan would only pay for Novalog Brand insulin.

      3 years ago Log in to Reply
    14. mbulzomi@optonline.net

      I answered no, nothing to discuss.

      3 years ago Log in to Reply
    15. Jeff Balbirnie

      Vehemently against my will, multiple times. If an actual medical doctor, much less one who had seen/knew me made these requests, I would have no serious issue. A complete stranger, with no medical background whom I have no knowledge of/about and vice-versa forced these change(s) for zero (0) medical reason. I have a serious issue with these unwilling and unwelcome changes, every single time. No warning, no heads-up merely, the medication you were on suddenly changed formulary lists, and you are on the cheaper one that we require you to use. Major problem with the whole idea.

      1
      3 years ago Log in to Reply
      1. Ahh Life

        Welcome to the Byzantine American Who’s-on-First medical system. Maybe it was designed by Abbott &Costello.

        3 years ago Log in to Reply
    16. Steven Gill

      Retired in February, going insurance free until 2024. Does that count? (Changed jobs various times and changed insurance/docs but at least insulin and strips were covered).

      Dropped the “closed loop system” (pump with CGM) to libre3 and 1 insulin pen (glargine from Amazon), and the CGM and Lispro (generic humalog) from Wal-Mart.

      But these are just tools, up to us to know how to use them.

      3 years ago Log in to Reply

    In the past 12 months, have you changed medications or devices because of your health insurance? Cancel reply

    You must be logged in to post a comment.




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