Activity
- 8 hours, 13 minutes ago
  
  Janis Senungetuk likes your comment at
  In 2024, how much did you spend out-of-pocket on diabetes medications and supplies?
  I had to enter not sure. I can’t recall any direct expenses. However, I paid several thousand dollars for Medicare and the supplemental insurance that paid for my supplies.
- 15 hours, 30 minutes ago
  
  Lawrence S. likes your comment at
  In 2024, how many appointments did you have with your T1D healthcare provider?
  I had 4 with my endocrinologist because I have a pump and Medicare requires it also had 1 appt with a diabetes pharmacist
- 15 hours, 30 minutes ago
  
  Lawrence S. likes your comment at
  In 2024, how many appointments did you have with your T1D healthcare provider?
  My endo would be happy to see me only 2x a year vs 4x a year because of my good diabetes control BUT, Medicare mandates a visit every 90 days to the prescribing physician for any approval of claims for insulin pump supplies....penny-wise and pound-foolish, IMO.
- 18 hours, 11 minutes ago
  
  TEH likes your comment at
  In 2024, how many appointments did you have with your T1D healthcare provider?
  My endo would be happy to see me only 2x a year vs 4x a year because of my good diabetes control BUT, Medicare mandates a visit every 90 days to the prescribing physician for any approval of claims for insulin pump supplies....penny-wise and pound-foolish, IMO.
- 19 hours, 26 minutes ago
  
  Gerald Oefelein likes your comment at
  In 2024, how many appointments did you have with your T1D healthcare provider?
  Oh, I also went to diabetes training camp for the second year and honestly, that's the most helpful thing I do. Several days with endocrinologists, educators, dietitians, sports physiologists, and others, most of whom also have type one.
- 1 day, 8 hours ago
  
  dholl62@gmail.com likes your comment at
  In 2024, how much did you spend out-of-pocket on diabetes medications and supplies?
  It depends if you include my Medicare Part B and Part D premiums. Those are $156 and $180 per month.
- 1 day, 8 hours ago
  
  dholl62@gmail.com likes your comment at
  In 2024, how much did you spend out-of-pocket on diabetes medications and supplies?
  I had to enter not sure. I can’t recall any direct expenses. However, I paid several thousand dollars for Medicare and the supplemental insurance that paid for my supplies.
- 2 days, 3 hours ago
  
  Janis Senungetuk likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Before I get to using the long acting insulin, I’d go to my backup pump then the MDI.
- 2 days, 3 hours ago
  
  Janis Senungetuk likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Yes I do and I keep long acting insulin in my supplies. But for periods of a day or two I usually just take small doses of my fast acting (Novolog) every two to four hours and do fine with that... Luckily I am 75 years old and get up to use bathroom several times through the night; also my insulin needs are low, about 25 to 30 units per day
- 2 days, 12 hours ago
  
  Anita Stokar likes your comment at
  Do you use insulin pens or vials?
  I think we should re-work the question as two questions: One for MDI, the other for pump. I'd suspect most MDI use pens and most pump users use vials. That said, it'd would be interesting to see the splits in the two populations.
- 2 days, 12 hours ago
  
  Anita Stokar likes your comment at
  Do you use insulin pens or vials?
  I do! Also for if I want a larger bolus (I'll often use the pod for part and the pen for part) to avoid over saturating the pod site, or if I'm worried my site isn't absorbing well enough but I'm not 100% convinced enough to pull it off. I always have a pen in my bag in case of emergencies (though I do use vials to fill my pods) and I figure it's good to use the pen occasionally in the "use it or lose it" mentality. I'm happy keeping an active pen for many months or even a year but I'm sure it would fail eventually and need to be tossed.
- 2 days, 14 hours ago
  
  Lawrence S. likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Yes for close, accuracy is a challenge and the dose may be off, just part of the process.
- 2 days, 14 hours ago
  
  Lawrence S. likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  I am blessed, in 30+ years of pumping I've only had one pump failure. A Minimed pump failed on a flight home.
- 2 days, 14 hours ago
  
  Lawrence S. likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Before I get to using the long acting insulin, I’d go to my backup pump then the MDI.
- 2 days, 14 hours ago
  
  Lawrence S. likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  I don’t know how much long acting insulin I would need if my pump stopped working. I would simply contact my doctor, asking for the long acting that I’ve have used and would ask him to help me figure out how much of it I would need on a daily basis. When that has happened recently, I would just give myself periodic shots of my regular fast acting to tide me over.
- 2 days, 14 hours ago
  
  Lawrence S. likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  I don't, but I also don't have any long acting insulin
- 2 days, 15 hours ago
  
  Dennis Dacey likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Before I get to using the long acting insulin, I’d go to my backup pump then the MDI.
- 2 days, 15 hours ago
  
  Dennis Dacey likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  I don't, but I also don't have any long acting insulin
- 2 days, 15 hours ago
  
  Dennis Dacey likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Yes I do and I keep long acting insulin in my supplies. But for periods of a day or two I usually just take small doses of my fast acting (Novolog) every two to four hours and do fine with that... Luckily I am 75 years old and get up to use bathroom several times through the night; also my insulin needs are low, about 25 to 30 units per day
- 2 days, 16 hours ago
  
  KarenM6 likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  I don't, but I also don't have any long acting insulin
- 2 days, 17 hours ago
  
  Mike S likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  I use Omnipod 5 and always have a back up supply, since they only last 3 days. If one failed I would simply switch to a new pod.
- 2 days, 17 hours ago
  
  Mike S likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Before I get to using the long acting insulin, I’d go to my backup pump then the MDI.
- 2 days, 17 hours ago
  
  Mike S likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  I don’t know how much long acting insulin I would need if my pump stopped working. I would simply contact my doctor, asking for the long acting that I’ve have used and would ask him to help me figure out how much of it I would need on a daily basis. When that has happened recently, I would just give myself periodic shots of my regular fast acting to tide me over.
- 2 days, 17 hours ago
  
  Mike S likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Yes I do and I keep long acting insulin in my supplies. But for periods of a day or two I usually just take small doses of my fast acting (Novolog) every two to four hours and do fine with that... Luckily I am 75 years old and get up to use bathroom several times through the night; also my insulin needs are low, about 25 to 30 units per day
- 2 days, 19 hours ago
  
  Gary Taylor likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  I don't, but I also don't have any long acting insulin
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Research

And the Winner Is: The Top Questions of 2020

Sarah Howard, 4 years ago 0 1 min read

At T1D Exchange, we learn so much from the vast T1D experience of our online community. Today we’re sharing the three most answered Questions of the Day in 2020!

1. Thursday, September 24^th: What do you remember about your first year with diabetes?

We received an incredible 2,468 responses to this question, which made this the most thought-provoking question of the year! The three most popular responses were:

Adapting to a new lifestyle (9.8%)
No CGMs (8.7%)
No pumps (7.8%).

2. Thursday, September 3^rd: What symptoms did you have that led to your T1D diagnosis?

Our second most popular question of 2020 had 1,763 responses with the top three answers being:

Increased thirst (18.8%)
Frequent urination (18%)
Unintended weight loss (15.7%)

3. Wednesday, August 5^th: Where do you keep supplies for low blood sugars/hypoglycemia?

The third most popular Question of the Day got 1,641 responses with the top three answers being:

At home (15.8%)
By the bed (14.6%)
In the purse/bag/suitcase (14.6%)

Drum Roll, Please: The Most Interesting Facts of 2020

Sarah Howard

Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange.

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And the Winner Is: The Top Questions of 2020

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And the Winner Is: The Top Questions of 2020

1. Thursday, September 24th: What do you remember about your first year with diabetes?

2. Thursday, September 3rd: What symptoms did you have that led to your T1D diagnosis?

3. Wednesday, August 5th: Where do you keep supplies for low blood sugars/hypoglycemia?

Drum Roll, Please: The Most Interesting Facts of 2020

2020 Highlights: COVID-19 Guidance, Daily Hurdles of T1D and Mental Health

Sarah Howard

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