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    • 1 hour, 46 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 12 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 3 hours, 12 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 3 hours, 13 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 5 hours, 25 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 5 hours, 26 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 5 hours, 27 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 6 hours, 9 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 32 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 9 hours, 29 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 1 hour ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 7 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 9 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 9 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    When you’re in a group setting, like having lunch with coworkers or at a gathering with friends/family, how often do you feel you are judged or criticized for your food choices because of your T1D? Please feel free to share more details of your experiences in the comments.

    Home > LC Polls > When you’re in a group setting, like having lunch with coworkers or at a gathering with friends/family, how often do you feel you are judged or criticized for your food choices because of your T1D? Please feel free to share more details of your experiences in the comments.
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    The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?

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    On average, how many adjustment boluses would you estimate you manually give yourself in a day? For the purposes of this question, these “adjustment boluses” do not include insulin automatically dosed by an algorithm without user input, and exclude doses given when also bolusing for food.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    36 Comments

    1. Trina Blake

      Rarely. My biggest issue is being included/invited. Their excuse? They don’t want me to be tempted to eat the wrong thing. I don’t bother (unless its family or people with whom I would socialize regularly) but I do tell them that I have been thriving with T1D for 40+ years and my labs basically come back like the “normies” (I often have to define that term). I then tell them that it is the company and comeraderie that I like – food isn’t of great interest to me. Just so long as the choose a place with good coffee and/or iced tea I am happy. I’ll even contribute to the tip.

      2
      2 years ago Log in to Reply
    2. Nevin Bowman

      If I don’t give them a reason to judge me, then there is nothing to worry about, right?

      1
      2 years ago Log in to Reply
    3. Jen Farley

      When others are drinking or having dessert I will get comments on why I am not participating. Unless I am with a group that already knows I am a T1D.

      2
      2 years ago Log in to Reply
    4. Kathleen Juzenas

      Never…or at least that I can remember. People have been knowledgeable and supportive. These days my friends themselves seem to be more in tune with healthy eating than when I was younger. (I’m 72.)

      3
      2 years ago Log in to Reply
    5. pru barry

      If I’d been worrying about what other people thought about my food choices for 69 years, I guess diabetes might have been horrible. But I haven’t, and it hasn’t.

      4
      2 years ago Log in to Reply
    6. Diana L.

      Sometimes people think that because I have diabetes I cannot eat dessert. I just tell them I bolus for it, that I manually do what their body does automatically.
      My diabetes is very well under control.

      3
      2 years ago Log in to Reply
    7. Ahh Life

      Never. I am so rip-roaringly insouciant, that my standard reply is almost Robert-Burns “How do I abhor thee? Let me count the ways.”

      You are drop-kicked out of the diabetic universe, so cease & desist.

      Being polite, I tidy it up a bit. But not too much.

      2
      2 years ago Log in to Reply
      1. KCR

        Oops! Not Robert Burns but Elizabeth Barrett Browning!

        1
        2 years ago Log in to Reply
    8. Eva

      As my partner says it is challenging to shop for me because of my food allergies like milk and fructose (strangely, I can have kefir no problem). When we go out to eat on the rare occasion, I try to pick places that keep the meal as clean as possible, prepared with oils and fats that are fresh and little preservatives. I think I would eat clean even if I didn’t have type 1, but we’ll never know.

      1
      2 years ago Log in to Reply
      1. Wanacure

        Eva, have you tried goat milk? Or, lactose-free milk or soy milk?

        2 years ago Log in to Reply
    9. Lawrence S.

      Rarely. There have been a few occasions over the years. I am T1D, plus have Celiac disease, so I’m very careful about what I eat. A friend of a friend openly criticized me in front of everyone because I wouldn’t eat some of the deserts or drink beer or liquor. He yelled, “Stop eating so damn healthy and enjoy yourself once in a while. You gotta have some fun in your life.” He continued to push alcohol on me. I just ignored him and stayed clear or him.
      Another time, while visiting my sister, I was measuring my breakfast cereal, for which I measure 1 and 1/3 cup. But, to be quicker, I just do a heaping cup. My sister berated me about why I bother measuring my food if I don’t use the measuring cup correctly. She didn’t know that I was measuring 1 and 1/3 cup. It was frustrating, to say the least.
      But, rarely.

      1
      2 years ago Log in to Reply
      1. Wanacure

        Ha! I weigh or measure just about everything i eat, Lawrence. NO, we T1Ds are NOT obsessive-compulsive. Maybe we’re “religious”. Isn’t ritual an aspect of every religion? Doesn’t every healthy T1D follow set behaviors daily? Rituals of one sort or another seem to be common to most,i if not all, hundreds of societies.

        1
        2 years ago Log in to Reply
    10. Twinniepoo74

      I really don’t care if they like my food choices. I am eating it not them and everyone who knows me knows I have type 1 diabetes so they learn from me to eat better.

      3
      2 years ago Log in to Reply
    11. Donna Condi

      I don’t feel judged because most of the time the people I’m with forget that I have diabetes because I am discreet. But my husband will usually ask me “Did I do my insulin?” once I begin to eat. I try to choose from the menu wisely so that I can sit and enjoy the conversation rather than having to get up and go for a walk immediately afterwards.—That doesn’t work a lot of the time but I do try ☹️. And finally, I’ve been diabetic long enough that I don’t care what others think as much as I care about my TIME IN RANGE.

      2
      2 years ago Log in to Reply
    12. Scott Rudolph

      I’m vegan, so if there is any mention of what I eat, it’s about my vegan diet, not my diabetes.

      2 years ago Log in to Reply
      1. Wanacure

        Scott, when younger I was suspicious of vegetarianism. Some of the vegans were so zealous they reminded me of cultists! Maybe your friends had similar past exposure? According to Wikipedia Dr. Deepak Chopra claims Ayurvedic Medicine, which includes vegetarianism, can cure cancer. There are certainly some good things about ancient practices, like a plant-based diet, but curing cancer? Curing T1D? Successfully preventing SOME cancers or SOME types of diabetes is not the sane as CURING ALL types of cancer or ALL types of diabetes. Wider practice of veganism would help prevent much pollution and maybe even slow globval warming according to environmental scientists. (I finally gave up beef, pork, turkey.) 😎

        2 years ago Log in to Reply
    13. Annie Wall

      Gosh, my friends/family wish they could eat as well as I do!

      1
      2 years ago Log in to Reply
    14. mlettinga

      I used to all the time with family and friends who I had to educate about type 1 and how. It’s different than type 2 and can eat whatever I
      Like now with insulin pump. Most people who know me now don’t say anything. Only someone new.

      2 years ago Log in to Reply
    15. Yaffa Steubinger

      The comments are usually ‘You can eat that?’ when I have carbs, something with sugar, etc. Always a time to educate the confused 😉

      3
      2 years ago Log in to Reply
    16. Brad Larson

      When I was a teen, newly diagnosed, it happened sometimes, “Are you sure you can eat that?” Back then relatives called it “sugar diabetes.” Now, it is questions or looks as I do not eat desserts or sweets anymore, Like I am “missing out.” I do not miss sugar at all. Read the 1975 book Sugar Blues!

      2 years ago Log in to Reply
    17. Edward Geary

      Mostly immediate family out of concern for low blood sugar. Lows scare them!

      2 years ago Log in to Reply
    18. Janis Senungetuk

      Sometimes, depending on the people and situation. When I was using MDI/testing with a meter I would be asked “Can you eat that?” far more frequently. Now it’s simply not being asked to join because “we didn’t think you could eat the type of food that’s served”.

      2 years ago Log in to Reply
    19. kilupx

      I wouldn’t say “criticized” but there is one woman at a required monthly lunch who always makes comments and asks the same ?s or delivers the same misinformation every time. She thinks we are friends — but I don’t! No matter how many times over the years I have told her that I have a different disease than her obese brother-in-law, she starts talking about what he should eat and that I should too.

      1
      2 years ago Log in to Reply
      1. Tina Roberts

        😂

        2 years ago Log in to Reply
    20. Marty

      The people I interact with these days know that I’m healthy and fit and have my diabetes under good control so they don’t criticize. If anything, they seem to feel a bit sheepish if I see them make less-than-healthy food choices. I hope they know that I’m not judging THEM.

      2 years ago Log in to Reply
    21. Wanacure

      Since most of the people I eat with know I have T1D, and since I feel comfortable & do not judge myself for having diabetes, my public behaviors now include taking shots, checking my blood glucose levels or choosing not to eat certain foods. So friends can feel comfortable revealed by comments like: I understand why you chose to bring your own meal. Or, I understand why your’re just ordering a salad. Since the “disabled” dropped self-shaming and self-blaming & came out of the closet (like communists, lesbians, gays, AIDS victims, Muslims, Jews, et al) to build powerful social and political movements, I became more authentic, more open, more accepted &.more respected. FDR had to hide the affects of polio. Today restaurants accept people in wheelchairs. it”s now a LAW not to discriminate in public places (& publicly licensed private entities) which makes life easier for EVERYBODY. 😎

      2 years ago Log in to Reply
      1. Lawrence S.

        I only wish that were true. I live in Florida.

        2 years ago Log in to Reply
    22. Pauline M Reynolds

      While I have never heard any criticism from others, I have occasionally noticed someone checking out my plate.

      2 years ago Log in to Reply
    23. lis be

      I grew up with a lot of food guilt put on me. The education about type 1 diabetes wasn’t as good in the late 70’s. It made me not enjoying eating around other people I usually eat at home, If I need to go out someplace to eat, with family or friends, I just get a salad. Most people don’t question salads 🙂

      2
      2 years ago Log in to Reply
    24. Juha Kankaanpaa

      I chose rarely. I really don’t care what other people think about my food choices. My priority is to stay healthy and never have any diabetes related complications.

      1
      2 years ago Log in to Reply
    25. Tina Roberts

      Sometimes, but I don’t care what anyone thinks. My business.

      1
      2 years ago Log in to Reply
    26. PamK

      It depends who I am with. I have had jobs where coworkers questioned my food choices. My mother also does this. In my current job, no one has asked, which is much less stressful for me. My siblings don’t generally ask, but will warn me if they think something is very sweet.

      2 years ago Log in to Reply
    27. Carrolyn Barloco

      On the contrary, my co-workers commented that my lunches were always so healthy!!

      2 years ago Log in to Reply
    28. Jeff Balbirnie

      I N-E-V-E-R share my D with anybody in public with whom I am not intimate/blood related, period. “Most” will have no personal awareness, (by my hand anyway). Those who “do” know, I’ve never been confronted/judged/criticized re: food to my knowledge anyway. I would welcome that “discussion” if someone was stupid enough and dared to try criticizing, much less offering judgement about any of my food choice(s). Likely would a real short “chat”, unless I felt pity for their foolish ignorance. The ~death of the thousand cuts~ seems a likely fair comparison…

      2 years ago Log in to Reply
    29. eherban1

      This is probably going to sound smug, but I judge others’ food choices much more than any one communicates judgment about mine. Funny note, I lost 78+ pounds over the last year & a half. I did it by controlling portions sizes and by becoming a workout junkie, not by changing my diet. My wife likes to dine out a lot at trendy restaurants and post on social media. I did receive quite a few comments asking how I’m losing weight going out to eat all of the time.

      2 years ago Log in to Reply
    30. Britni

      More so when I was younger (from my family) than now. I don’t think most of my friends/coworkers understand it enough to make judgements.

      2 years ago Log in to Reply

    When you’re in a group setting, like having lunch with coworkers or at a gathering with friends/family, how often do you feel you are judged or criticized for your food choices because of your T1D? Please feel free to share more details of your experiences in the comments. Cancel reply

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