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    • 6 hours, 12 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 17 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 17 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 17 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 19 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 23 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 1 hour ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 1 hour ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 2 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 2 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 2 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 2 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 2 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 2 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 18 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 18 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 20 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 20 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 22 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 23 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 23 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 3 days, 1 hour ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 3 days, 1 hour ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    What was your most recent A1c?

    Home > LC Polls > What was your most recent A1c?
    Previous

    When driving or riding in a car for a long period of time, do you make any changes to your typical insulin dosage? Select all that apply to you!

    Next

    For which of these classic cookout foods do you feel most confident in your ability to maintain comfortable blood glucose levels? Select all that apply and share what works for you in the comments!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Catherine Davis

      I have never had an A1c this low before the hybrid closed-loop systems. Love the Dexcom and Tandem t:slim X2 system! That said, I have had to panic-eat sugar too many times due to minor physical activity recently. Looking forward to dual-hormone iLet!

      1
      5 years ago Log in to Reply
      1. Sahran Holiday

        Adjust your rates, don’t wait.

        5 years ago Log in to Reply
    2. Wanacure

      Taking shots & eating meals & exercising at same times helped me eliminate variables. But biggest help was reading Dr. Richard K. Bernstein’s books and reducing carbohydrates to minimal levels resulted in lower insulin doses and less risk of hypoglycemia. Plus yoga classes, weight training, and cardio exercise at least every other day. I’m on multiple daily injections. Hoping that recent use of CGM will help me get blood glucose levels into normal (non diabetic) range, a goal that seems to bug my doctor.

      4
      5 years ago Log in to Reply
      1. Henry Renn

        T1 for 65yrs. 70 yr old. I’ve been aware that I need to reduce carbs for some time. Thanks for your comment. I feel more like trying after reading it.

        3
        5 years ago Log in to Reply
    3. Lawrence Stearns

      Surprisingly, my A1c has gone higher since being on the closed loop system with Tandem and Dexcom. However, I think the problem is not the closed loop system, but my own reduction in aerobic exercise over the past half year. With age, I’m experiencing more pain in my neck and shoulders from arthritis, tendonitis, and calcium deposits, which make it very painful to run. Hence, my A1c has climbed from slightly below 6.0, to 6.1. I’m trying to get back into less stressful running.

      5 years ago Log in to Reply
      1. Sahran Holiday

        Surely reducing exercise is affecting your A1c. Regular moderate exercise so essential for everyone’s health. Get started again, figure out why you stopped and address that.

        5 years ago Log in to Reply
    4. Kathy Hanavan

      My endo no longer recommends an A1c as it does not correlate well with my TIR of 88% and avg glucose 132 which is much lower than my A1c of 6.9 suggests.

      3
      5 years ago Log in to Reply
    5. Daniel Bestvater

      my A1c has ranged from 5.8 – 6.6.
      I eat pretty much what I want, but try to alway prebolus 15-60 minutes before eating. TIR is currently 88% while using Tandem CIQ about 70% of the time.

      2
      5 years ago Log in to Reply
    6. Sahran Holiday

      Mostly always 5.4 – 6.1. most recent 5.8. Doctors, endocrinologist, ophthalmologist, podiatrist, primary care all satisfied. After years finally listening to endocrinologist that under 5.6 not necessary. Since subject to severe lows have adjusted accordingly. Next A1c is later this July. We’ll see.

      1
      5 years ago Log in to Reply
    7. Philip Bunsick

      Interesting numbers that truly show that as a group this is certainly an outlier group as the traditional average A1C for T1D is about 8.5. It does seem to indicate that the physician and medical community should continue to ask this group HOW BEST to achieve low and viable A1C and TIR numbers and how they are doing this. There is a very large group of patients out there who can learn and improve immeasurable from the knowledge and capabilities of this group.

      6
      5 years ago Log in to Reply
      1. Ahh Life

        Philip Bunsick–A cautionary note from one of those battle-scared knows-ones-stuff veterans 💉 . . . My most recent was 6.2 while last week’s time in range was 92% with less than 1% low and standard deviation of 42. It is still imperative that those <1% count and count mightily. I have been repeatedly advised to strive for 7.0. Because of my long-developed habits and eating/exercise behaviors, I find getting things up to 7.0 is exceedingly difficult. The tSlimX2 Control IQ, and the human being are all doing their jobs and doing their *#$&!. The GI tract nerve? It’s a short-circuit that flickers on and off, also known as gastroparesis. Seems like sometimes in this game you can’t win even when you’re winning. 🎖 🔫

        1
        5 years ago Log in to Reply
    8. LuckyPineapple

      Wow! I can’t imagine actually being in the 6’s…I feel like I would be hitting too many lows to be seeing a number like that. I have been sitting in the low 8’s for the last six years and I am personally happy with it. After getting the Miao Miao 2 for my Libre/Apple watch, I have broken 7.9 for two of my A1Cs and that is the best for me, and the ultimate personal goal (to be a high 7)

      1
      5 years ago Log in to Reply
    9. Becky Hertz

      TIR has been >90% with <5% highs and lows and 0 very low. It can be done with low carb living, temp basal rates for activity, and knowing how to adjust. On a tandem pump and using Dexcom but no basal or control iq.

      5 years ago Log in to Reply
    10. Molly Jones

      I have always had good A1c numbers since the onset 21 yrs ago. I don’t trust it as showing how well I am doing as I have multiple lows that last variable lengths of time and short term highs after most meals. I don’t want the side effects on my brain from hypoglycemia.

      5 years ago Log in to Reply
    11. Leona Hanson

      I have a 7.9 due to all of my low that i don’t feel. I can be walking and don’t even know that my Sugars are a 59 until I check my sugars so that’s how I have the A1C of 7.9 waiting for my cgm

      5 years ago Log in to Reply
    12. Bonnie Lundblom

      5.2, for the past few years I’m usually between 5.2-5.7

      5 years ago Log in to Reply
    13. T1D5/1971

      Last 2 were 6.3. For what that’s worth.
      I’d really rather work on TIR. Why the focus on the outdated metric of A1c? I valued that in prior decades before CGM. It’s time to move on.

      5 years ago Log in to Reply

    What was your most recent A1c? Cancel reply

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