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  • Activity
    • 15 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
    • 16 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my diabetologist every 90 days to continue receiving pump and CGM supplies.
    • 16 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      This past year my doctor appts were my new social life!
    • 16 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      @George Lovelace. {{{{{Hugs}}}}} to you, sir. Are you getting support after the loss of your wife? I do hope so.
    • 16 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Schush! I know it's supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I'm happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.
    • 17 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      I would prefer to see my endo twice a year. But insurance requires a visit once every 90 days to obtain an insulin pump and CGM, which is completely illogical. Insulin pump allows for better control soo....
    • 17 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
    • 18 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      I saw my endocrine provider 6 times this year instead of the usual four because I was having pump insertion site absorption issues so she saw me two extra times for problem solving resolution.
    • 11 hours, 30 minutes ago
      Kris Sykes-David likes your comment at
      If you’ve ever used a connected insulin pen (also known as a “smart pen”), what was your experience like? Tell us more in the comments! A “smart pen” connected insulin pens can offer extra technology with the simplicity of injections, like tracking the timing and dose of insulin, tracking insulin-on-board, and calculating insulin doses based on carbohydrate entries.
      It helped me track when and how much insulin I had injected. It also would show me how much I had on board so if I needed to take additional insulin it would help me not to stack too much at a time.
    • 11 hours, 30 minutes ago
      Kris Sykes-David likes your comment at
      If you’ve ever used a connected insulin pen (also known as a “smart pen”), what was your experience like? Tell us more in the comments! A “smart pen” connected insulin pens can offer extra technology with the simplicity of injections, like tracking the timing and dose of insulin, tracking insulin-on-board, and calculating insulin doses based on carbohydrate entries.
      I love it! Can't live without one.
    • 18 hours, 18 minutes ago
      TEH likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
    • 18 hours, 19 minutes ago
      TEH likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      I would prefer to see my endo twice a year. But insurance requires a visit once every 90 days to obtain an insulin pump and CGM, which is completely illogical. Insulin pump allows for better control soo....
    • 1 day, 9 hours ago
      Janis Senungetuk likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      In July, I went on the only Medicare plan in my area that covered Afrezza. For 2024, no one is covering it. Like others, hate these formulary decisions by the Insurance providers.
    • 1 day, 16 hours ago
      Ahh Life likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Schush! I know it's supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I'm happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.
    • 1 day, 17 hours ago
      Bekki Weston likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.
    • 1 day, 17 hours ago
      Bekki Weston likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I answered NO for 2023 but in 2024 I will have to switch from Humalog to Novolog.
    • 1 day, 17 hours ago
      Bill Williams likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
    • 1 day, 19 hours ago
      Kristi Warmecke likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      With Medicare's change to the cost of insulin, my Part D plan dropped Novolog. $35 "limit" only works if insurers have your medication on their formulary.
    • 1 day, 19 hours ago
      Kristi Warmecke likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I was with Caremark now with Optimum and not a fan but was not a fan of Caremark in the beginning. Not a fan of mail order insulin! Opimum (still not sure it is spelled right) made me change from Novalog to Humalog. Both are the same, sure, but why should a RX company say what insulin I should be taking. Is that not my endocrinologist job? Would they not know what is best for me? Kind of burns me up how healthcare has gone in the past 5 to 10 years, miss the old days of knowing your pharmacist by first name and talking to them about the latest advancements in diabetic care at the conner pharmacy. Patient is no longer a factor in the equation. sorry for the rant.
    • 1 day, 19 hours ago
      Kristi Warmecke likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Lispro, aspart, and glulisine are also FDA-approved for pump use (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6695255/). These are the generic versions of Humalog, Novolog and Apidra, respectively.
    • 1 day, 19 hours ago
      jo likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      This past year my doctor appts were my new social life!
    • 1 day, 19 hours ago
      jo likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Schush! I know it's supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I'm happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.
    • 1 day, 20 hours ago
      Ahh Life likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
    • 1 day, 22 hours ago
      Mick Martin likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
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    What is your connection to diabetes?

    Home > LC Polls > What is your connection to diabetes?
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    What are your favorite ways of giving to organizations you support? Select all that apply.

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    Do you currently use or have you ever used Lyumjev?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    11 Comments

    1. Bob Durstenfeld

      I am very connected to T1D. I have it. My dad had it, two of three of my younger brothers have it, my eldest of three sons has it, and his daughter has it. Four generations.

      3 years ago Log in to Reply
    2. Mick Martin

      I have type 1 diabetes, as did one of my younger brothers who, sadly, is no longer in the land of the living. I also have a cousin with type 1 diabetes.

      3 years ago Log in to Reply
    3. g kinney

      I’m an epidemiologist and I’ve worked in type 1 diabetes research for years, also my brother had it and died during a DKA. I have a high risk HLA type as he did but my wife has none and none of my three kids inherited it so perhaps that particular chunk of genetic garbage has been eliminated from the human genome! Please don’t clone me!

      3 years ago Log in to Reply
    4. casey shane

      Just me!! Im the lone type 1 in the family. My mother has 2 siblings with 2 kids each zero diabetes. My father has a sister with 2 kids zero diabetes. My younger sister is not diabetic. My grandparents on both sides not diabetics. My father has a few aunts and uncles (my great aunts and uncles) with diagnosed diabetes type 1 and 2 that have since died. More then 30 years ago. I have 2 or 3 -2nd cousins on my dads side with type 1 and 2. My grandmothers brother was a diabetic who needed dialysis for sometime before he died some 25 years ago. My grandmother had a kidney removed but im the only type 1 currently.

      3 years ago Log in to Reply
    5. Becca Gae Shaw

      I am one of the lucky few I guess. I have type 1, my mum had t1d (she passed away 23 Jan 2009), her father had t1d (he passed in 1965), my great uncle had t1d (he passed in 2001), and other family members.. I am also a HUGE supporter of the T1D community 🤪 Both IRL and the DOC..

      3 years ago Log in to Reply
    6. Diana Lemcoff

      I have surgical diabetes, that never appears in any classification. The head and the tail of the pancreas were removed, have 20% left. Considering that I had an 8cm neuroendocrine nonfunctional tumor in 2003, I am grateful that the only consequence has been living with diabetes. I have metastasic diasease in the liver.

      3 years ago Log in to Reply
    7. Molly Jones

      I have type 1 diabetes and am not well informed of LADA. I was diagnosed with type 2 at the age of 30 at a regular annual checkup through chance. I was not feeling unwell. I was given medicines to take, but they were not working at controlling my BG. Three months later, they did some more blood work and said I had type 1 and I stayed at the hospital in order to learn insulin therapy for a few days. I don’t know if this is LADA.

      3 years ago Log in to Reply
    8. Janis Senungetuk

      I was dx with T1d in 1955, at the age of 8. My maternal grandfather had T1d and my father had T2d.

      3 years ago Log in to Reply
    9. Mary Berube

      Other: I have t1d, I have family members with type 1d, and I am a medical professional.

      3 years ago Log in to Reply
    10. Bonnie Lundblom

      My T1D was diagnosed in 1987, at age 34, and one of our children was diagnosed with T1D at age 20.

      3 years ago Log in to Reply
    11. Leona Hanson

      I’m a T1D diagnosed at 34 had prediabetic at age 7 it’s been a good ride and trying to have a better day every day

      3 years ago Log in to Reply

    What is your connection to diabetes? Cancel reply

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