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    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 9 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 13 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 15 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 15 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 16 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 10 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 11 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 15 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 15 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    What is your connection to diabetes?

    Home > LC Polls > What is your connection to diabetes?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    11 Comments

    1. Bob Durstenfeld

      I am very connected to T1D. I have it. My dad had it, two of three of my younger brothers have it, my eldest of three sons has it, and his daughter has it. Four generations.

      5 years ago Log in to Reply
    2. Mick Martin

      I have type 1 diabetes, as did one of my younger brothers who, sadly, is no longer in the land of the living. I also have a cousin with type 1 diabetes.

      5 years ago Log in to Reply
    3. g kinney

      I’m an epidemiologist and I’ve worked in type 1 diabetes research for years, also my brother had it and died during a DKA. I have a high risk HLA type as he did but my wife has none and none of my three kids inherited it so perhaps that particular chunk of genetic garbage has been eliminated from the human genome! Please don’t clone me!

      5 years ago Log in to Reply
    4. casey shane

      Just me!! Im the lone type 1 in the family. My mother has 2 siblings with 2 kids each zero diabetes. My father has a sister with 2 kids zero diabetes. My younger sister is not diabetic. My grandparents on both sides not diabetics. My father has a few aunts and uncles (my great aunts and uncles) with diagnosed diabetes type 1 and 2 that have since died. More then 30 years ago. I have 2 or 3 -2nd cousins on my dads side with type 1 and 2. My grandmothers brother was a diabetic who needed dialysis for sometime before he died some 25 years ago. My grandmother had a kidney removed but im the only type 1 currently.

      5 years ago Log in to Reply
    5. Becca Gae Shaw

      I am one of the lucky few I guess. I have type 1, my mum had t1d (she passed away 23 Jan 2009), her father had t1d (he passed in 1965), my great uncle had t1d (he passed in 2001), and other family members.. I am also a HUGE supporter of the T1D community 🤪 Both IRL and the DOC..

      5 years ago Log in to Reply
    6. Diana Lemcoff

      I have surgical diabetes, that never appears in any classification. The head and the tail of the pancreas were removed, have 20% left. Considering that I had an 8cm neuroendocrine nonfunctional tumor in 2003, I am grateful that the only consequence has been living with diabetes. I have metastasic diasease in the liver.

      5 years ago Log in to Reply
    7. Molly Jones

      I have type 1 diabetes and am not well informed of LADA. I was diagnosed with type 2 at the age of 30 at a regular annual checkup through chance. I was not feeling unwell. I was given medicines to take, but they were not working at controlling my BG. Three months later, they did some more blood work and said I had type 1 and I stayed at the hospital in order to learn insulin therapy for a few days. I don’t know if this is LADA.

      5 years ago Log in to Reply
    8. Janis Senungetuk

      I was dx with T1d in 1955, at the age of 8. My maternal grandfather had T1d and my father had T2d.

      5 years ago Log in to Reply
    9. Mary Berube

      Other: I have t1d, I have family members with type 1d, and I am a medical professional.

      5 years ago Log in to Reply
    10. Bonnie Lundblom

      My T1D was diagnosed in 1987, at age 34, and one of our children was diagnosed with T1D at age 20.

      5 years ago Log in to Reply
    11. Leona Hanson

      I’m a T1D diagnosed at 34 had prediabetic at age 7 it’s been a good ride and trying to have a better day every day

      5 years ago Log in to Reply

    What is your connection to diabetes? Cancel reply

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