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    • 5 hours, 43 minutes ago
      Amanda Ratliff likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      Obtaining access with T1 with insulin resistance is incredibly difficult and unaffordable.
    • 5 hours, 43 minutes ago
      Amanda Ratliff likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      Only can take Zepbound if insurance is willing to cover it because I don’t have a T2 dx required for Monujaro, etc. Zepbound is cost prohibitive and Monujaro is much more affordable, even tho they are the exact same product in different packaging. Before the Zepbound price Increase and/or insurance not covering it at all, I was very successful on it but was only able to take it for 9 months. They need to open these medications for severely insulin resistant T1s like myself.
    • 12 hours, 40 minutes ago
      Deborah Wright likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 13 hours, 44 minutes ago
      atr likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Yes. I was diagnosed in 2008 or 2009. I don't know how to explain how difficult it is living with celiac disease. It affects everything I eat. Eating at restaurants or other peoples houses, pot-luck dinners are high risk. There are many foods, or food supplements that have hidden gluten ingredients, such as soy sauce, caramel, licorice, and many more. I avoid eating food that other people cook. There is no such thing as a gluten free restaurant, unless the restaurant is completely gluten free (cross contamination of foods). Any food that may contain wheat, rye and barley cannot be eaten. Also, oats are a risk because of cross contamination with wheat, rye or barley. I bake my own bread from gluten free flour. There are lots of books and articles on the subject, but it is mostly learn as you go.
    • 14 hours, 32 minutes ago
      Kristi Warmecke likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 14 hours, 32 minutes ago
      Kristi Warmecke likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Also tested negative. That should have been an option.
    • 15 hours, 44 minutes ago
      Sarah Berry likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Tested. No celiac
    • 15 hours, 44 minutes ago
      Sarah Berry likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 17 hours, 2 minutes ago
      Derek West likes your comment at
      Have you noticed a difference in how hot versus cold caffeinated drinks affect your glucose levels?
      I do not drink cold caffeinated drinks!
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      Have you noticed a difference in how hot versus cold caffeinated drinks affect your glucose levels?
      I don’t drink caffeinated drinks.
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Have any of your T1D devices ever been recalled? Share in the comments on what steps you took after learning about the recall.
      No recalls, but there should be one right now for Tandem infusion sets. The new sets are impossible to remove when trying to separate in order to take a shower. Even my health care provider tried her luck with mine and failed. The times when I would just have to rip the whole thing off for a shower and then put a new one back on afterwards are accumulating. I have started to keep a record of how much insulin is being wasted and how many times it occurs. Called Tamden twice and so far got not much more than a "call us back if it continues".
    • 2 days, 15 hours ago
      Mike S likes your comment at
      Have any of your T1D devices ever been recalled? Share in the comments on what steps you took after learning about the recall.
      I use Omnipod 5 pods and there have been recalls of these pods, however i did not have any of therecalled batches!
    • 3 days, 10 hours ago
      Kathy Hanavan likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      Only can take Zepbound if insurance is willing to cover it because I don’t have a T2 dx required for Monujaro, etc. Zepbound is cost prohibitive and Monujaro is much more affordable, even tho they are the exact same product in different packaging. Before the Zepbound price Increase and/or insurance not covering it at all, I was very successful on it but was only able to take it for 9 months. They need to open these medications for severely insulin resistant T1s like myself.
    • 3 days, 11 hours ago
      Hadley likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 13 hours ago
      Amanda Barras likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It was not hard if one is paying out of pocket, but that's the rub. Medicare won't cover unless your doc goes through a lot of hoops and can document that you also have insulin resistance/Type 2 in addition to Type 1.
    • 3 days, 13 hours ago
      Amanda Barras likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 15 hours ago
      Lawrence S. likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 15 hours ago
      TEH likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 4 days, 14 hours ago
      Lawrence S. likes your comment at
      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      NEVER HAVE AND NEVER WILL. PERIOD.
    • 4 days, 14 hours ago
      Lawrence S. likes your comment at
      If you’re taking a GLP-1 medication, what side effects have you experienced? Select all that apply.
      I have been taking very low dose tirzepetide for about 6 months. Initially, I had some nausea which resolved after about a week. It is an amazing drug for us T1d's. My insulin dose is about 30% less with an increase in TIR and it is just easier to manage. I do not need to lose weight, but my doc who prescribes it a lot said I would not lose much and that is so. I lost about 7 lbs initially, but regained about 4 once the side effects wore off. Food noise is down which I didn't even realize was a particular issue. Paying out of pocket is onerous, but with low dose and a vial, it is not too bad.
    • 5 days, 9 hours ago
      Ahh Life likes your comment at
      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      I use a CBD/THC balm for joint and muscle pain.
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      atr likes your comment at
      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      I use a CBD/THC balm for joint and muscle pain.
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      lis be likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Take a deep breath. It is a marathon not a sprint. Get a good healthcare team including an endocrinologist, diabetes care and education specialist, and mental health professionals. Do your own research but use well respected sources.
    • 5 days, 12 hours ago
      lis be likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      The curve-balls that life throws at you may seem like the cosmic unfairness of a brain-cancer diagnosis. But T1D is not like that. It's a condition, not a disease so much. But as such the condition will require attention, awareness, tight-rope walking, and the help of others if you fall off the high wire. And, man oh man, is it ever an exciting high-wire act. --〜⁠(⁠꒪⁠꒳⁠꒪⁠)⁠〜--
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      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Educate yourself on this condition from many perspectives. From the professional level, the patients, and many different books of those living with it. Try and keep up to date with changing hypotheses of treatment. Get to know your body and digestion so you can choose the best insulin rates. Keep a daily diet along with activity and stresses to correlate to your blood glucose.
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    On average, how many lows would you estimate you have per week?

    Home > LC Polls > On average, how many lows would you estimate you have per week?
    Previous

    If you use both an insulin pump and CGM, do you currently use any of the following automated insulin delivery (also known as “predictive low glucose suspend” or “hybrid closed loop”) algorithms to help keep your glucose in-range?

    Next

    If you use an insulin pump or CGM, do you use additional overlay patches to help your device(s) stick?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    15 Comments

    1. mbulzomi@optonline.net

      Except mu Lows are below 90. I use Smart IQ; however, I don’t like the Tandem 70-180 numbers. When i am going down, it’s like falling like a rock, fast.

      4 years ago Log in to Reply
    2. Leon Ullrich

      Lows are what I absolutely do not want. There are times when I get lower thanI want but this has been when I am eating later than normal or I have had more exercise than normal or even I have estimated my carbs wrong – all of which could have been avoided if I had been watching my CGM more frequently and/or had a snack.

      4 years ago Log in to Reply
    3. Steven Gill

      Fortunately wearing a CGM warns me of errant levels, I think it’s all part of attempting to have “tight control.” I’ve always done physical work which has the same effect as any physical activity. Rarely are the levels from just overdoing insulin but that happens at times (an odd meal in absence of activity).

      4 years ago Log in to Reply
    4. Ahh Life

      On checking the tConnect / CGM Hourly / Logbook notes over the last 3 weeks, the numbers were 1,4,1. So . . . I assume the average is about 2. ( ^ω^ )☀️

      4 years ago Log in to Reply
    5. RegMunro

      CGM alerted me to the length of time I was spending lo! Now I’m able to correct even before approaching the line. CGM has changed my life even as I approach 80 and over 55 years as T1D

      4 years ago Log in to Reply
    6. KCR

      For my response, I defined low as 65 or less since that’s the point at which I start to feel low.

      4 years ago Log in to Reply
    7. LizB

      I tend to have a lot of lows as defined by my pump (70 or below). Most of them are mild, staying in the upper 60s before I can correct it. I have far fewer real lows (below 50) than I used to. I’m still try to work on staying above 70 but it’s hard. Once my pump alarms it’s already too late, but I also hate alarms and don’t want to set it higher.

      1
      4 years ago Log in to Reply
    8. Kathleen Juzenas

      My CGM alerts at 80. I get quite a few but am able to address it easily enough.

      4 years ago Log in to Reply
    9. Carol Meares

      In the last week I have had 93% in range, with 5% low and less than 1% high. It’s been a rough week with a flood in our apartment. But that is how it’s been going for the most part. Also there is a big difference between a low of 69 and a low of 55. I used to do better on Basal iQ. I wish Tandem would let me choose.

      4 years ago Log in to Reply
    10. Karen Brady

      I currently have lows daily, but this is not the norm for me. I am pregnant so I have my targets set lower than I normally would and lower than I’m comfortable with to be honest! But I know it’s best for pregnancy/the baby. My targets will be adjusted higher once I deliver the baby.

      4 years ago Log in to Reply
    11. Lawrence S.

      I have multiple lows daily, a vast majority don’t have an effect on me. I try to keep my blood glucose around 100, and the daily roller coaster often falls below 70, which I am not concerned about. I am functioning well.

      4 years ago Log in to Reply
    12. Randell Cole

      It would be a total guess

      4 years ago Log in to Reply
    13. Randell Cole

      I don’t have a guess

      4 years ago Log in to Reply
    14. Nicholas Argento

      Counting lows misses the fact that many other times, I ingest carbs to prevent it before it occurs. So it is better w closed loop, far better w CGM, but I still have to attend to this regularly.

      4 years ago Log in to Reply
      1. Nicholas Argento

        I would rather do this than have a higher BG level and lower TIR. It is a tradeoff I accept because I want high Time in range and lower average to protect me long term, but also I find I feel far better when TIR is high. I feel rotten above 200 now since I don’t spend much time there.

        4 years ago Log in to Reply

    On average, how many lows would you estimate you have per week? Cancel reply

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