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    • 11 hours, 12 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 11 hours, 17 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 11 hours, 24 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 5 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 5 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 5 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 6 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 8 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 11 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 12 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 13 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 14 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 14 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 14 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 14 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 14 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 15 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 6 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 6 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 8 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 9 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 10 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 12 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 12 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    In the past year, has your health insurance required you to change medications or devices?

    Home > LC Polls > In the past year, has your health insurance required you to change medications or devices?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. LizB

      This year I had to switch to using One Touch meter/strips because that’s the only brand my insurance covers at the normal co-pay. Any other brand would cost me a lot more money.

      5 years ago Log in to Reply
    2. TomH

      They didn’t cover my Endoscopy preferred insulin on diagnosis, but suitable sub is working fine. I’m not sure how docs determine which insulin is appropriate anyway, think it’s what they’re used to.

      5 years ago Log in to Reply
    3. M Fedor

      In order to have my insulin covered under Medicare Part B with Advanced Diabetes Supply, I had to switch from Fiasp to Lispro .

      5 years ago Log in to Reply
    4. Joan McGinnis

      Not changed but costs more due to the fact the meds I need are not on their formulary or are tier 3 or 4. The so called donut hole does not look like it’s going to be dealt with by insurance companies

      1
      5 years ago Log in to Reply
    5. Moira Motyka

      Wanted me to change test strips (meter works with my closed loop system). Doctor wrote a pre authorization so that I could keep using the test strips he prescribed.

      5 years ago Log in to Reply
    6. Sridhar Rajamohan

      None of the diabetes medications are covered under insurance in India

      5 years ago Log in to Reply
    7. BARRY HUNSINGER

      I was using Medtronic’s 670g pump and guardian 3 sensors. When I switched to Medicare I had to re- prove that I was a T1D to get Deccom because they don’t cover guardian sensors. It took three months to get everything sorted out.

      5 years ago Log in to Reply
    8. James Goldman

      My health insurance supplier has required a change in medication but only to a generic brand. This has saved me a lot of money.

      1
      5 years ago Log in to Reply
    9. Thomas Brady

      Despite all of the negatives with Medicare “rules” relating to diabetes pump and CGM supplies, doctor visits, etc., I have not had any issues with changes to medications and devices.

      5 years ago Log in to Reply
    10. Kristine Warmecke

      They want me to change to Humalog, even though I’m allergic to it. So I’m forced to pay for Novolog (while I wait to see if I qualify for assistance from the company and ration what I can afford to buy). There are currently no Medicare plan’s in my area that cover it.

      5 years ago Log in to Reply
    11. Andrew Stewart

      I had to change from Humalog to Novolog because Aetna removed Humalog from their formulary list. I haven’t noticed a difference.

      1
      5 years ago Log in to Reply
    12. Sue Martin

      I had to change my glucometer since the insurance didn’t cover the strips for the Freestyle Lite. I really liked that one since it had a light in it, which allowed me not to turn on a light at night. The new is doesn’t consistently work or doesn’t always like the test strip. I’ve had to use multiple strips to get a good read.

      1
      5 years ago Log in to Reply
    13. Tod Herman

      “Other” was my response. My insurance didn’t require me to switch insulins, they only subtly switched their preferred formulary brand without telling me and my co-pay more than doubled. My Endo discovered this and switched me over to the other brand. Saved me $60 per refill (went from $100 to $40).

      5 years ago Log in to Reply
    14. Kim Murphy

      But they also don’t cover the devices and supplies I do use.

      5 years ago Log in to Reply
    15. Mark Schweim

      My insurance changed less than a year ago and every time my insurance changes, so does which Insulin the insurance will allow me to get. I’ve lost track of how many times I’ve been switched back and forth between Humalog and Novolog Insulin by my insurance over the past decade.

      1
      5 years ago Log in to Reply
    16. Angela Naccari

      Started medicare this past January. I was using Afrezza and Tresiba. I could find only one supplemental or advatage plan that would cover Afrezza at the highest tier. I decided to get the tslim pump instead to not have to deal with such high prices! I have had dufficulty with pump use before Afrezza due to absorption problems after 59 years of TD1. So I was not forced to change but did not want to change

      5 years ago Log in to Reply
    17. ConnieT1D62

      No. The only thing they do not cover is Baqsimi, (which is my preferred choice) but they do cover the Gvoke hypo pen – which works for me as second best choice. I am hoping that the powers that make tier coverage decisions will get onboard and approve Baqsimi in the 2022 formulary.

      5 years ago Log in to Reply
    18. Paul Hanson

      This is frustrating. Truly. Insulin is not insulin. One long acting basal vs another yields a totally different experience and outcomes/individual impact should be the measure, not agreed upon price points set to maximize profit.

      1
      5 years ago Log in to Reply
    19. Sue Herflicker

      Yes, had to switch from Novolog to Homolog and my test kit, from a One Touch Verio to a Contour … both work well so no issues.

      5 years ago Log in to Reply
    20. Cheryl Seibert

      Not in the past year….. but prior to that yes. Insurance companies should NEVER have the power to require a change in medication or devices. THIS GOES FOR THE FDA IN THEIR ‘guidance’ on number of test strips for Type 2 (1 strip / day) and T1D (3 strips/day). Insurance companies claim their quantity limits are “for your safety” …. “we are following the FDA requirenments…… FDA should not set a specific number… it should say “a minimum of 3 strips/day”. Insurance companies and especially 90-day pharmacies (PBMS) take these ‘recommendations’ and make them ‘hard and fast’ “all diabetics should only use 1 strip/day. Sorry about the rant.

      4 years ago Log in to Reply

    In the past year, has your health insurance required you to change medications or devices? Cancel reply

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