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    • 5 hours, 24 minutes ago
      Lawrence S. likes your comment at
      On average, how often do you pre-bolus before eating?
      Yeah...The Pre-bolus...if I actually did this more often, I would be in much better control. It's my T1D Achilles' Heel.
    • 6 hours, 21 minutes ago
      Kathy Hanavan likes your comment at
      On average, how often do you pre-bolus before eating?
      Yeah...The Pre-bolus...if I actually did this more often, I would be in much better control. It's my T1D Achilles' Heel.
    • 23 hours, 15 minutes ago
      KCR likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      Only what is reported at conferences and covered by e-zines like DiaTribe.
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      It's sometimes difficult shift through. I get a lot of spam redirections. I'm also only really interested in autoimmune type diabetes. Right now GLP-1 interest is all the rage. I'm not a candidate for those type of drugs. Funny how these drugs which became so popular with the rich people mostly non diabetic have taken over by all the drug companies.
    • 2 days, 1 hour ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 2 days, 1 hour ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 2 days, 1 hour ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 3 days, 19 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 3 days, 19 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 19 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 3 days, 20 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 3 days, 22 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 4 days, 1 hour ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 4 days, 2 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 4 days, 3 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 4 days, 3 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 4 days, 4 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 4 days, 4 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 4 days, 4 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 4 days, 4 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 4 days, 4 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 4 days, 4 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 4 days, 20 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 4 days, 20 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 4 days, 22 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
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    In the past week, how many nights was your sleep disrupted by diabetes (device alerts, checking blood glucose levels, or treating a high or low)?

    Home > LC Polls > In the past week, how many nights was your sleep disrupted by diabetes (device alerts, checking blood glucose levels, or treating a high or low)?
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    Have you ever applied for any T1D-related educational scholarships?

    Next

    Since your T1D diagnosis, have you ever been without health insurance? Please share any effects this had on your T1D management in the comments.

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    10 Comments

    1. Bruce Johnson

      I DID NOT HAVE ANY INSURANCE FOR FIRST 5 YEARS AFTER DIAGNOSIS
      GENERALLY IT WAS MORE EXPENSIVE BY ABOUT $200 PER MONTH JUST FOR INSULIN, SYRINGES AND NEEDLES. THE INSURANCE ALLOWED OUR FAMILY TO PURCHASE OUR FIRST HOUSE.

      1
      2 years ago Log in to Reply
    2. Lawrence S.

      While I have had some highs and lows during sleep, my Control IQ system makes corrections during my sleep. I believe that I entered a bolus once early in my sleep this week.

      2 years ago Log in to Reply
    3. Jane Cerullo

      My own fault. Have new tandem pump and need to stop second guessing the pump. Was on MDI for three years and have to learn to give up control. New mantra is trust the pump.

      2 years ago Log in to Reply
    4. Janice B

      Every three days, 2am, my pump alerting that in the morning my pump pod will expire.

      2 years ago Log in to Reply
    5. Patricia Dalrymple

      Jane: I’m exactly the same. Started Dexcom G7 CGM and then a week later the Tandem TSlim pump after many years on Medtronic pump but no CGM. Giving up control is hard. Plus, when it tells me to eat my inclination is to do so. After dropping to 49 I could no longer trust and had to eat a couple of glucose tablets and that stopped the low alarm. I had just changed the cartridge and I ALWAYS go low with fresh insulin so I think I need to lower my basil dosages like I did on Medtronic. I had a 30% preset dosage and I think I need the same on tandem although my Endo and educator said wait. But after hitting 49, I couldn’t not react. Takes some getting used to. But I am 85% in range up from 75% with Medtronic.

      2 years ago Log in to Reply
    6. Chrisanda

      Two nights is unusual. For some reason my nighttime basal was sending me low (has been the same for over a year). Nothing unusual about those days/nights. I adjusted after the second night, and have been fine since. Have no idea why????

      2 years ago Log in to Reply
    7. Becky Hertz

      Saw my endo a week or so ago and did some more tweaking to my night time settings. Much better since but not perfect yet. Never will be.

      2 years ago Log in to Reply
    8. Sharon Gerdik

      I’ve been having occlusion alerts for several months lately. I’m in the process of trying different infusion sets that Tandem has sent to me. My findings seem to relate to the infusion site or the tubing. I check the cartridge by removing the tubing from the tail. I always get insulin from there. Several times I get no insulin from the attached tubing. When I check the cannula site it usually shows no signs of a cause for no delivery. It’s very frustrating.

      2 years ago Log in to Reply
    9. mbulzomi@optonline.net

      One night when my G7 Sensor failed at 0200. One night when my Pump canular disconnected from my body of course in the deep night.

      2 years ago Log in to Reply
    10. Steven Gill

      My alarms are tight (70-130), with predictive alarms for each extreme or for quick movement up or down. While I’ll generally shrug off a 71 or 72 will at least look at the graph (for a trend?), depending how the pump is acting might ignore a 140 as well. I can fall back to sleep easily, must work due to my levels and a1C.

      2 years ago Log in to Reply

    In the past week, how many nights was your sleep disrupted by diabetes (device alerts, checking blood glucose levels, or treating a high or low)? Cancel reply

    You must be logged in to post a comment.




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