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    • 13 hours, 48 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
    • 13 hours, 49 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
    • 14 hours, 40 minutes ago
      Jan Masty likes your comment at
      Have you (or your loved one with T1D) been diagnosed with retinopathy?
      No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
    • 15 hours, 7 minutes ago
      mojoseje likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
    • 15 hours, 20 minutes ago
      KarenM6 likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 16 hours, 12 minutes ago
      Janis Senungetuk likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
    • 16 hours, 19 minutes ago
      Judy Hampton likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
    • 16 hours, 41 minutes ago
      Patricia Dalrymple likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 16 hours, 43 minutes ago
      cynthia jaworski likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 16 hours, 50 minutes ago
      Anneyun likes your comment at
      If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
      I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
    • 18 hours, 15 minutes ago
      Joan Fray likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 1 day, 9 hours ago
      TS likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 13 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 13 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I'm still looking for someone to give them to.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My other was gave them to the Endocrinologist office to give to people who needed them
    • 1 day, 15 hours ago
      Trina Blake likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 16 hours ago
      Amanda Barras likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 16 hours ago
      Richard Wiener likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 17 hours ago
      Janis Senungetuk likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
    • 1 day, 17 hours ago
      Sue Martin likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
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    In the past six months, have you been forced to change medications because of your health insurance?

    Home > LC Polls > In the past six months, have you been forced to change medications because of your health insurance?
    Previous

    Have you ever experienced symptoms of hypothermia caused by a hypoglycemic event (not due to environmental causes), such as body temperature below 95 F (35 C), shivering, and slow breathing?

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    Each year living with T1D is an accomplishment. Do you celebrate your diabetes anniversary (diaversary) in a special way? Share with us in the comments!

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    22 Comments

    1. Jeff Perzan

      Haven’t been ‘forced’ but in order to continue my current test strips (tied to my insulin pump), co-pay (30 day supply) went from $10 to $69.95.

      2 years ago Log in to Reply
    2. Bob Durstenfeld

      insurance forced me to move to generic insulin or not have coverage.

      2 years ago Log in to Reply
    3. Alyne Branson

      Not in the past 6 months but there has been at least 3 times I have had to switch between Humalog and Novolog because one of them was not covered by my health insurance. Currently I don’t have insurance and I use Insulin Aspart but haven’t had to purchase because I ordered as much as I could before my insurance ended.

      2 years ago Log in to Reply
    4. Gene Maggard

      Not forced but wanted to go to generic Humalog insulin for my pump to bring down the cost. Supposedly insulin prices were going to be set at $35 a month according to the government but I am not seeing that.

      2 years ago Log in to Reply
    5. Jana Wardian

      Insurance companies often have a “preferred” insulin. I always ask because I can save $ by going with the lower cost insulin. Am I bring “forced” to change? I think I am STRONGLY encouraged and this is not a battle I want to fight.

      2 years ago Log in to Reply
    6. Greg Felton

      Not within the past 6 months, but every few years my insurance designates either Humalog or Novolog as the covered insulin. Within the past few years they named a single brand of test strips as the preferred brand.

      2 years ago Log in to Reply
    7. Grey Gray

      Insurance.. I wish.. lilly cares Humalog program for the uninsured. Thank you lilly

      2 years ago Log in to Reply
    8. Mick Martin

      I don’t have to pay for my prescription medications as it’s covered by our NHS (National Health Service), which is funded via direct taxation of all working people that earn over a prescribed minimum. (I live in the United Kingdom of Great Britain and Northern Ireland.)

      2 years ago Log in to Reply
    9. Kathy Hanavan

      I have been forced to change a non diabetes med, but not my insulin.

      2 years ago Log in to Reply
    10. Rick Martin

      Been forced – Mannkind Cares offered me “free” Afrezza. I have very poor absorption – and seem to develop (despite good hygiene practices) infections in injection sites. So, inhaled insulin was the answer. The docs pleaded my case with insurance for months to no avail. So, I’m back to injections – tried pump but absorption was poor and infections too numerous to continue. The > $1,000/mo for Afrezza was simply too steep to remain on once the Mannkind Cares program dumped me.

      2 years ago Log in to Reply
    11. Annie Wall

      The only thing that happened recently was for a prescription of eye drops that I was taking for eye pressure. I had to switch to something else because of manufacturing problems the company was having. I had to wonder if that was covid related but I’ll never know. The good thing for me is that my diabetes supplies, including insulin, are completely free for me this year, $0 co-pays.

      2 years ago Log in to Reply
    12. Mark Schweim

      Happens almost every time my Insurance changes… They keep flopping me back & forth between Humalog and Novolog Insulin. Still have about 2 months of Humalog remaining but current insurance switched me back to Novolog again so I have one vial Novolog waiting for when I run out of Humalog.

      2 years ago Log in to Reply
    13. gary rind

      my PBM has been lots of fun to deal with but my endo has worked with them to get the insulin he wants. was forced off novolog to humalog but endo eventually got prior authorization for FIASP. however, strips were another story. only brand they cover is OneTouch Verio and it was so bad that I paid entirely from my own pocket for Choice meter / strips from Amazon. now using FreeStyle Libre 14 day and they cover it.

      2 years ago Log in to Reply
    14. Daniel Bestvater

      Pre-existing condition (T1D) so I can’t get any insurance coverage in Ontario Canada.

      2 years ago Log in to Reply
    15. Barbara Long

      My insurance wants a switch to Lispro—generic version. My doc said no, so for now I remain on branded Humalog. Idk. I need to ask in other forums I guess whether people have had issues with the switch from brand to generic. Makes me nervous.

      2 years ago Log in to Reply
    16. Phyllis Donahue

      Wish I could change my insurance it covers nothing. Would love to change pump and get dex6 also. Just to expensive.

      2 years ago Log in to Reply
    17. connie ker

      Being a senior, the Medicare RX with Cigna is the best company to use having type 1 diabetes. The tier 6 is for diabetics and no co-pay for insulins even in the coverage gap. But you have to be 65 years old on Medicare to enroll.

      2 years ago Log in to Reply
    18. Sue Herflicker

      My insurance will not pay for my Novolog anymore, now I have to use homolog and not diabetic related they won’t pay for my ventolin inhaler, I have to use the generic Albuterol … Not a happy camper!

      2 years ago Log in to Reply
    19. Annie Maley

      With my prior insurance I could either get 3 vials of Humalog for $150 through my Medicare part A & B due to insulin pump or pay about $80 for 3 vials through my husbands private insurance. We now have Caremark Rx’s thru GEHA and they wanted $600 for a 84 day supply of Humalog. Had to switch to Novolog and will still pay over $200. What the ??? I thought insulin was supposed to be coming cheaper, not more expensive. So PO’d. 🙁 I know. Stop whining. At least I have insurance.

      2 years ago Log in to Reply
    20. Chris Deutsch

      12 months ago my RX order for NovoPen was changed to Humalog KwikPens. Since it’s a big hassle to change ae

      2 years ago Log in to Reply
    21. Leona Hanson

      I’m on Medicaid insurance they don’t change my diabetes supplies just my pills I take but there just trying to save you money the generic is a dollar copay name brands are 3.00 copays but I do understand that 1 medication works better than the other the doctor has to tell them why the one works better than the generic

      2 years ago Log in to Reply
    22. Carlene Vaitones

      I’ve had to switch from Apidra to Humalog. I prefer Apidra as it’s more fast acting for me and I don’t have to wait 40 minutes before I eat like I do with Humalog.

      2 years ago Log in to Reply

    In the past six months, have you been forced to change medications because of your health insurance? Cancel reply

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