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    • 4 hours, 12 minutes ago
      Lenora Ventura likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 5 hours, 46 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      same here. I was able to get a neurologist to diagnose it as that.
    • 5 hours, 47 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I have developed this very weird numbness and pain in my left outer thigh which I attribute to neuropathy, although there has been no official diagnosis. Of course, like every good diabetic, I did my own research and found that it is called meralgia paresthetica. It only comes on intermittently and rarely interferes with daily functions. Rest remedies it. Having lived with T1D for 56 years so far, I consider myself to be pretty lucky...so far.
    • 5 hours, 49 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I feel the same way. I'm never sure who to believe or how to get a valid assessment.
    • 5 hours, 49 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 8 hours, 31 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      Gastroparesis
    • 8 hours, 32 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      In late summer of 2017 I lost all feeling in both lower extremities to my hips and both upper extremities to my shoulders. It was not all diabetic related though. Lowered the drug in my chemo regimen but didn't reverse by next treatment, so that drug was stopped. Slowly I regained feeling in my arms and legs; left with no sensation in hands & feet up to ankles & wrist. I'm thankful that my oncologist realized that it wasn't just a diabetic thing.
    • 11 hours, 22 minutes ago
      Sandra Rosborough likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 12 hours, 10 minutes ago
      KSannie likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 15 hours, 17 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      My feet were killing me when I started taking insulin. Saw on another website that alpha lipoic acid (ALA) was good for neuropathy. Once I started taking it, the pain was gone within a week! Still using it 20 years later, still pain free
    • 15 hours, 18 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 15 hours, 37 minutes ago
      magoo likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 15 hours, 37 minutes ago
      Mike S likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 15 hours, 50 minutes ago
      Dennis Dacey likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 1 day, 4 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      I spend a bit of time in my garden, yardwork , the animal shelter. Days I'm not with the Shelter my herd gets walked.
    • 1 day, 4 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      avid cyclist for many years now ........... OK ..... add in resident year around maintenance yard work
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Walking and hiking.
    • 1 day, 12 hours ago
      Steven Gill likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Try pausing insulin on your pump if you are below 150mg/dl.
    • 1 day, 15 hours ago
      Daniel Bestvater likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 15 hours ago
      Dennis Dacey likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 15 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 15 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 15 hours ago
      TEH likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 2 days, 12 hours ago
      Bonnie Lundblom likes your comment at
      What event(s) prompt you to calibrate your CGM? Select all that apply.
      I always do 3 successive finger sticks about 1 day after applying a new G7 sensor. I'm amazed at how much variability there is among sensors. Some are spot on, and remain so during the entire 10 days, while the worst I saw was off 100 mg/dl at the start (reading half of the actual level) (I demanded -- and got -- a replacement for that outlier, since I did't want to have to trust it for days and go through piles of strips just to see if it was as bad as it seemed). I generally also do another batch of 3 tests several days later, just to check. I care about accuracy. I've found that it is essential to do multiple sequential finger sticks to get an accurate number from strips, since they too are far more variable than I am comfortable with. If the variability in strips is too great, I do 4 tests rather than 3, and throw out one, averaging the rest. I love my CGM, but it doesn't completely replace strips.
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    In the past six months, have you been forced to change medications because of your health insurance?

    Home > LC Polls > In the past six months, have you been forced to change medications because of your health insurance?
    Previous

    Have you ever experienced symptoms of hypothermia caused by a hypoglycemic event (not due to environmental causes), such as body temperature below 95 F (35 C), shivering, and slow breathing?

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    Each year living with T1D is an accomplishment. Do you celebrate your diabetes anniversary (diaversary) in a special way? Share with us in the comments!

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. Jeff Perzan

      Haven’t been ‘forced’ but in order to continue my current test strips (tied to my insulin pump), co-pay (30 day supply) went from $10 to $69.95.

      4 years ago Log in to Reply
    2. Bob Durstenfeld

      insurance forced me to move to generic insulin or not have coverage.

      4 years ago Log in to Reply
    3. Alyne Branson

      Not in the past 6 months but there has been at least 3 times I have had to switch between Humalog and Novolog because one of them was not covered by my health insurance. Currently I don’t have insurance and I use Insulin Aspart but haven’t had to purchase because I ordered as much as I could before my insurance ended.

      4 years ago Log in to Reply
    4. Gene Maggard

      Not forced but wanted to go to generic Humalog insulin for my pump to bring down the cost. Supposedly insulin prices were going to be set at $35 a month according to the government but I am not seeing that.

      4 years ago Log in to Reply
    5. Jana Wardian

      Insurance companies often have a “preferred” insulin. I always ask because I can save $ by going with the lower cost insulin. Am I bring “forced” to change? I think I am STRONGLY encouraged and this is not a battle I want to fight.

      4 years ago Log in to Reply
    6. Greg Felton

      Not within the past 6 months, but every few years my insurance designates either Humalog or Novolog as the covered insulin. Within the past few years they named a single brand of test strips as the preferred brand.

      4 years ago Log in to Reply
    7. Grey Gray

      Insurance.. I wish.. lilly cares Humalog program for the uninsured. Thank you lilly

      4 years ago Log in to Reply
    8. Mick Martin

      I don’t have to pay for my prescription medications as it’s covered by our NHS (National Health Service), which is funded via direct taxation of all working people that earn over a prescribed minimum. (I live in the United Kingdom of Great Britain and Northern Ireland.)

      4 years ago Log in to Reply
    9. Kathy Hanavan

      I have been forced to change a non diabetes med, but not my insulin.

      4 years ago Log in to Reply
    10. Rick Martin

      Been forced – Mannkind Cares offered me “free” Afrezza. I have very poor absorption – and seem to develop (despite good hygiene practices) infections in injection sites. So, inhaled insulin was the answer. The docs pleaded my case with insurance for months to no avail. So, I’m back to injections – tried pump but absorption was poor and infections too numerous to continue. The > $1,000/mo for Afrezza was simply too steep to remain on once the Mannkind Cares program dumped me.

      4 years ago Log in to Reply
    11. Annie Wall

      The only thing that happened recently was for a prescription of eye drops that I was taking for eye pressure. I had to switch to something else because of manufacturing problems the company was having. I had to wonder if that was covid related but I’ll never know. The good thing for me is that my diabetes supplies, including insulin, are completely free for me this year, $0 co-pays.

      4 years ago Log in to Reply
    12. Mark Schweim

      Happens almost every time my Insurance changes… They keep flopping me back & forth between Humalog and Novolog Insulin. Still have about 2 months of Humalog remaining but current insurance switched me back to Novolog again so I have one vial Novolog waiting for when I run out of Humalog.

      4 years ago Log in to Reply
    13. gary rind

      my PBM has been lots of fun to deal with but my endo has worked with them to get the insulin he wants. was forced off novolog to humalog but endo eventually got prior authorization for FIASP. however, strips were another story. only brand they cover is OneTouch Verio and it was so bad that I paid entirely from my own pocket for Choice meter / strips from Amazon. now using FreeStyle Libre 14 day and they cover it.

      4 years ago Log in to Reply
    14. Daniel Bestvater

      Pre-existing condition (T1D) so I can’t get any insurance coverage in Ontario Canada.

      4 years ago Log in to Reply
    15. Barbara Long

      My insurance wants a switch to Lispro—generic version. My doc said no, so for now I remain on branded Humalog. Idk. I need to ask in other forums I guess whether people have had issues with the switch from brand to generic. Makes me nervous.

      4 years ago Log in to Reply
    16. Phyllis Donahue

      Wish I could change my insurance it covers nothing. Would love to change pump and get dex6 also. Just to expensive.

      4 years ago Log in to Reply
    17. connie ker

      Being a senior, the Medicare RX with Cigna is the best company to use having type 1 diabetes. The tier 6 is for diabetics and no co-pay for insulins even in the coverage gap. But you have to be 65 years old on Medicare to enroll.

      4 years ago Log in to Reply
    18. Sue Herflicker

      My insurance will not pay for my Novolog anymore, now I have to use homolog and not diabetic related they won’t pay for my ventolin inhaler, I have to use the generic Albuterol … Not a happy camper!

      4 years ago Log in to Reply
    19. Annie Maley

      With my prior insurance I could either get 3 vials of Humalog for $150 through my Medicare part A & B due to insulin pump or pay about $80 for 3 vials through my husbands private insurance. We now have Caremark Rx’s thru GEHA and they wanted $600 for a 84 day supply of Humalog. Had to switch to Novolog and will still pay over $200. What the ??? I thought insulin was supposed to be coming cheaper, not more expensive. So PO’d. 🙁 I know. Stop whining. At least I have insurance.

      4 years ago Log in to Reply
    20. Chris Deutsch

      12 months ago my RX order for NovoPen was changed to Humalog KwikPens. Since it’s a big hassle to change ae

      4 years ago Log in to Reply
    21. Leona Hanson

      I’m on Medicaid insurance they don’t change my diabetes supplies just my pills I take but there just trying to save you money the generic is a dollar copay name brands are 3.00 copays but I do understand that 1 medication works better than the other the doctor has to tell them why the one works better than the generic

      4 years ago Log in to Reply
    22. Carlene Vaitones

      I’ve had to switch from Apidra to Humalog. I prefer Apidra as it’s more fast acting for me and I don’t have to wait 40 minutes before I eat like I do with Humalog.

      4 years ago Log in to Reply

    In the past six months, have you been forced to change medications because of your health insurance? Cancel reply

    You must be logged in to post a comment.




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