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    • 11 hours, 54 minutes ago
      Dennis Dacey likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 18 hours, 55 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 18 hours, 55 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 19 hours, 6 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 19 hours, 6 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 19 hours, 13 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 19 hours, 27 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 20 hours, 2 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 20 hours, 2 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 20 hours, 3 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 23 hours, 11 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 1 hour ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 1 day, 12 hours ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 14 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 day, 14 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 day, 14 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 1 day, 16 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 16 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 16 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 day, 17 hours ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 18 hours ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 20 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 2 days, 11 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 2 days, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 2 days, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    In the past six months, have you been forced to change medications because of your health insurance?

    Home > LC Polls > In the past six months, have you been forced to change medications because of your health insurance?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. Jeff Perzan

      Haven’t been ‘forced’ but in order to continue my current test strips (tied to my insulin pump), co-pay (30 day supply) went from $10 to $69.95.

      5 years ago Log in to Reply
    2. Bob Durstenfeld

      insurance forced me to move to generic insulin or not have coverage.

      5 years ago Log in to Reply
    3. Alyne Branson

      Not in the past 6 months but there has been at least 3 times I have had to switch between Humalog and Novolog because one of them was not covered by my health insurance. Currently I don’t have insurance and I use Insulin Aspart but haven’t had to purchase because I ordered as much as I could before my insurance ended.

      5 years ago Log in to Reply
    4. Gene Maggard

      Not forced but wanted to go to generic Humalog insulin for my pump to bring down the cost. Supposedly insulin prices were going to be set at $35 a month according to the government but I am not seeing that.

      5 years ago Log in to Reply
    5. Jana Wardian

      Insurance companies often have a “preferred” insulin. I always ask because I can save $ by going with the lower cost insulin. Am I bring “forced” to change? I think I am STRONGLY encouraged and this is not a battle I want to fight.

      5 years ago Log in to Reply
    6. Greg Felton

      Not within the past 6 months, but every few years my insurance designates either Humalog or Novolog as the covered insulin. Within the past few years they named a single brand of test strips as the preferred brand.

      5 years ago Log in to Reply
    7. Grey Gray

      Insurance.. I wish.. lilly cares Humalog program for the uninsured. Thank you lilly

      5 years ago Log in to Reply
    8. Mick Martin

      I don’t have to pay for my prescription medications as it’s covered by our NHS (National Health Service), which is funded via direct taxation of all working people that earn over a prescribed minimum. (I live in the United Kingdom of Great Britain and Northern Ireland.)

      5 years ago Log in to Reply
    9. Kathy Hanavan

      I have been forced to change a non diabetes med, but not my insulin.

      5 years ago Log in to Reply
    10. Rick Martin

      Been forced – Mannkind Cares offered me “free” Afrezza. I have very poor absorption – and seem to develop (despite good hygiene practices) infections in injection sites. So, inhaled insulin was the answer. The docs pleaded my case with insurance for months to no avail. So, I’m back to injections – tried pump but absorption was poor and infections too numerous to continue. The > $1,000/mo for Afrezza was simply too steep to remain on once the Mannkind Cares program dumped me.

      5 years ago Log in to Reply
    11. Annie Wall

      The only thing that happened recently was for a prescription of eye drops that I was taking for eye pressure. I had to switch to something else because of manufacturing problems the company was having. I had to wonder if that was covid related but I’ll never know. The good thing for me is that my diabetes supplies, including insulin, are completely free for me this year, $0 co-pays.

      5 years ago Log in to Reply
    12. Mark Schweim

      Happens almost every time my Insurance changes… They keep flopping me back & forth between Humalog and Novolog Insulin. Still have about 2 months of Humalog remaining but current insurance switched me back to Novolog again so I have one vial Novolog waiting for when I run out of Humalog.

      5 years ago Log in to Reply
    13. gary rind

      my PBM has been lots of fun to deal with but my endo has worked with them to get the insulin he wants. was forced off novolog to humalog but endo eventually got prior authorization for FIASP. however, strips were another story. only brand they cover is OneTouch Verio and it was so bad that I paid entirely from my own pocket for Choice meter / strips from Amazon. now using FreeStyle Libre 14 day and they cover it.

      5 years ago Log in to Reply
    14. Daniel Bestvater

      Pre-existing condition (T1D) so I can’t get any insurance coverage in Ontario Canada.

      5 years ago Log in to Reply
    15. Barbara Long

      My insurance wants a switch to Lispro—generic version. My doc said no, so for now I remain on branded Humalog. Idk. I need to ask in other forums I guess whether people have had issues with the switch from brand to generic. Makes me nervous.

      5 years ago Log in to Reply
    16. Phyllis Donahue

      Wish I could change my insurance it covers nothing. Would love to change pump and get dex6 also. Just to expensive.

      5 years ago Log in to Reply
    17. connie ker

      Being a senior, the Medicare RX with Cigna is the best company to use having type 1 diabetes. The tier 6 is for diabetics and no co-pay for insulins even in the coverage gap. But you have to be 65 years old on Medicare to enroll.

      5 years ago Log in to Reply
    18. Sue Herflicker

      My insurance will not pay for my Novolog anymore, now I have to use homolog and not diabetic related they won’t pay for my ventolin inhaler, I have to use the generic Albuterol … Not a happy camper!

      5 years ago Log in to Reply
    19. Annie Maley

      With my prior insurance I could either get 3 vials of Humalog for $150 through my Medicare part A & B due to insulin pump or pay about $80 for 3 vials through my husbands private insurance. We now have Caremark Rx’s thru GEHA and they wanted $600 for a 84 day supply of Humalog. Had to switch to Novolog and will still pay over $200. What the ??? I thought insulin was supposed to be coming cheaper, not more expensive. So PO’d. 🙁 I know. Stop whining. At least I have insurance.

      5 years ago Log in to Reply
    20. Chris Deutsch

      12 months ago my RX order for NovoPen was changed to Humalog KwikPens. Since it’s a big hassle to change ae

      5 years ago Log in to Reply
    21. Leona Hanson

      I’m on Medicaid insurance they don’t change my diabetes supplies just my pills I take but there just trying to save you money the generic is a dollar copay name brands are 3.00 copays but I do understand that 1 medication works better than the other the doctor has to tell them why the one works better than the generic

      5 years ago Log in to Reply
    22. Carlene Vaitones

      I’ve had to switch from Apidra to Humalog. I prefer Apidra as it’s more fast acting for me and I don’t have to wait 40 minutes before I eat like I do with Humalog.

      5 years ago Log in to Reply

    In the past six months, have you been forced to change medications because of your health insurance? Cancel reply

    You must be logged in to post a comment.




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