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    • 7 hours, 20 minutes ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I turned down a CGM study because the sponsors, a manufacturer, claimed the data would belong to them exclusively. While I may grant use of the data, its mine thank you!
    • 7 hours, 20 minutes ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Requests for my personal information that I don't want to share online.
    • 11 hours, 57 minutes ago
      KSannie likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      I understand enough to decide not to participate in the study ... sometimes.
    • 12 hours, 34 minutes ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 1 day, 13 hours ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 1 day, 23 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 1 day, 23 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 2 days, 7 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 2 days, 7 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 2 days, 7 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 2 days, 7 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 2 days, 11 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 2 days, 11 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 2 days, 12 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 2 days, 12 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    • 2 days, 13 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Unfortunately, I neither have the time or financial resources to travel out of state.
    • 2 days, 13 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 13 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 2 days, 14 hours ago
      Beckett Nelson likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days, 3 hours ago
      Bruce Schnitzler likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 3 days, 5 hours ago
      Ahh Life likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds matter to a surprising degree. The zip code you live in is better predictor of your heart disease risk than your LDL cholesterol level.
    • 3 days, 8 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds don’t matter, but ages and races should be considered as those would be factors that could affect outcomes of study. Not diversity for diversity sake, but testing to make sure therapies can work on everyone.
    • 3 days, 8 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 3 days, 8 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Even though we are all one in the human race, we all have a unique physiology. The more people with diverse genders, ages, and races will be the most informative.
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    In the past 12 months, have you experienced a hypoglycemic episode that resulted in a loss of consciousness?

    Home > LC Polls > In the past 12 months, have you experienced a hypoglycemic episode that resulted in a loss of consciousness?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    13 Comments

    1. n6jax@scinternet.net

      Yes, about 15 months ago.. I changed routine and took a nap without checking finger stick…. I should [did] have known better!!! I now have a CGM…

      4 years ago Log in to Reply
      1. n6jax@scinternet.net

        Oh, I am T1D for 68 years, and am 89 years OLD.. This was first time my wife had to call 911… Other 2 times I came around on my own in the past, I

        4
        4 years ago Log in to Reply
    2. jeredb

      I haven’t for almost 3 years. Since I started using dexcom cgm, the alerts keep this from happening. Prior to that, it happened to me a handful of times through my 30 years of type 1.

      2
      4 years ago Log in to Reply
    3. Kevin McCue

      Where’s the never in 29 years choice? Knock on wood, hasn’t happened and hopefully never will. Still fortunate that I can feel symptoms of lows coming in addition to using cgm and tandem pump to help.

      4 years ago Log in to Reply
    4. Mig Vascos

      No. The Dexcom CGM 6 keeps me aware if my sugar is going low so I can reverse it in time to avoid losing consciousness.
      The tandem control IQ based on the settings on my pump keeps my bg levels perfectly during the night.

      4 years ago Log in to Reply
    5. Jane Cerullo

      Been pretty low and confused but have never lost consciousness thankfully.

      4 years ago Log in to Reply
    6. connie ker

      This is what scares me the most because of living alone with T1D. The Abbott Freestyle Libre keeps me informed before tragedy might happen, so I rely on both sensor and meters to make certain I am OK.

      1
      4 years ago Log in to Reply
    7. LizB

      Not in the last 12 months. Last time was at work in 2018 when I was not using a CGM and I left my meter at home. I was in the middle of new job/old insurance and was planning on getting a new pump/CGM but had that bad low (911 was called) plus two more at home alone, although I managed to not pass out and finally pulled through myself. I love my pump but I realize that a CGM is as important, if not more, than the pump.

      1
      4 years ago Log in to Reply
    8. Mark Schweim

      I said unsure because I might have but recovered by myself due to the pump’s Control IQ suspending Insulin, but last time I needed any assistance was in 2003, about 2 months before I switched from MDI to Insulin Pump use.

      4 years ago Log in to Reply
    9. Ahh Life

      Kurz said, “The horror, the horror.” But now some say, “The stench, the stench. Oh, the malodorous malicious stench of the stench.” Different senses are experienced. Every hypoglycemic experience is different, experienced in different ways by different people. But they’re all vivid and intense. Loss of consciousness? That’s actually the good part. That’s when the experience is ended. That’s when the goodness of others and the community around you steps in and participates.

      4 years ago Log in to Reply
    10. Wanacure

      CGMs, if you can afford them, are lifesavers.

      4 years ago Log in to Reply
    11. Sadie Robinson

      I said no to LOC but there have been times of being pretty close. I have a CGM but I can be 109 and feeling great then in a few minutes 69 then 43. My endo over the years has tried her best to regulate my settings but we have not found that place yet!

      4 years ago Log in to Reply
    12. T1D5/1971

      Prior to CGM, I frequently had severe lows with too many EMS calls. Started with Dexcom in 2006 – never had a single severe low since. Not one single EMS call since 2006. I don’t miss that experience one bit.
      Probably wouldn’t have made it to the 50 year mark without Dexcom.

      4 years ago Log in to Reply

    In the past 12 months, have you experienced a hypoglycemic episode that resulted in a loss of consciousness? Cancel reply

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