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    • 2 hours, 42 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      There are several conversations about this across social media. Many people chime in and vote for a new, more accurate name for type 1.. some of the popular alternatives- Pancreatic Autoimmune Disease, Beta Cell Destruction Disease, Autoimmune Diabetes, Autoimmune Insulin Failure, Autoimmune Absolute Insulin Deficiency (AAID)
    • 2 hours, 42 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 2 hours, 43 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 2 hours, 43 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 4 hours, 56 minutes ago
      Kristi Warmecke likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 7 hours, 28 minutes ago
      Lee Tincher likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      If I could get a CGM that is consistent and predictable I'd be very happy with the Twiist or the Tandem. The weak point with pumps used to be infusion sites, but now that we are relying on poor performing technology to support potentially great algorithms itis quite frustrating.
    • 9 hours, 22 minutes ago
      Beckett Nelson likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 10 hours, 47 minutes ago
      John Barbuto likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      I have been using a insulin smart pen for the last 2 years; I find that it meets my current needs to ensure good management and results
    • 11 hours, 30 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 11 hours, 31 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 12 hours, 5 minutes ago
      Gerald Oefelein likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 23 hours, 54 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 23 hours, 55 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 1 hour ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 4 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 1 day, 4 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 8 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 1 day, 8 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 8 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 1 day, 8 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 1 day, 8 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 1 day, 8 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 8 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 9 hours ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 12 hours ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
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    In the past 12 months, have you changed medications or devices because of your health insurance?

    Home > LC Polls > In the past 12 months, have you changed medications or devices because of your health insurance?
    Previous

    Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you?

    Next

    Do you believe that your insulin has ever been less effective due to exposure to high temperatures?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. Becky Hertz

      Oops, should be no. Thought I was answering a different question.

      2 years ago Log in to Reply
    2. LizB

      I changed my brand of pump but not because of insurance. It was my choice, and they covered it.

      2 years ago Log in to Reply
    3. mojoseje

      Yes, I had to switch from Novolog to Humalog because the copay was 3 times as much. I was excited to see that President Biden included Novolog on the list of ten for negotiating better prices. I do feel I used less insulin on Novolog.
      I also had to stop taking another drug because the copay is too expensive.

      2 years ago Log in to Reply
    4. lenglish@cimginc.com

      I changed because I needed new pump…knowing that I was going on Medicare in the next few years I specifically looked based on what they would cover in the future.

      2 years ago Log in to Reply
      1. ELYSSE HELLER

        I will lose my healthcare coverage in 2 years when I turn 65 and also have to rely on Medicare; what did you find out if you would not mind sharing. I am terrified about loosing my healthcare coverage. Thanks,

        vampyre2391@gmail.com

        1
        2 years ago Log in to Reply
    5. AnitaS

      I had to change one of my medications. It wasn’t a diabetes medication though. When I told my doctor that my insurance wasn’t going to cover my original medication anymore, she said she was glad because she was ready to tell me that she was going to switch my medication anyway.

      2 years ago Log in to Reply
    6. Karington Johnston

      I’ve received a notification that I will need to change insulins due to my health insurance, but since I had just placed an order, I still have a few months

      2 years ago Log in to Reply
    7. Gary Rind

      not in the last 12 months. did have to get rid of FIASP, now take Lyumjev. it’s okay but not great.

      2 years ago Log in to Reply
    8. Angela Naccari

      I also incorrectly said “yes” when I should have answered “no”.

      2 years ago Log in to Reply
    9. Michelle Saunders

      I clicked other, as it has been a couple months more than 12, and it wasn’t because of insurance. I had to go to MDI from being on the Tslim and Dex, because my DoS doctor at the embassy where my husband is currently stationed, said he could not send a prescription to the company that I was getting my pump and dex supplies from. The best solution was to give me a copy of my prescription, that had COPY, as a huge watermark, and I was responsible for figuring out how to fax it to them.

      2 years ago Log in to Reply
    10. Richard Vaughn

      In January my Aetna/Medicare plan required me to start using the One Touch Verio glucometer. I had been using the Freestyle Lite glucometer for many years. I feel that the One Touch is less accurate. I miss my Freestyle Lite.

      1
      2 years ago Log in to Reply
      1. Trina Blake

        Hi Richard, see my answer to the question (a few days ago) about experiences with extrele lows to the point of loss of consciousness. It’s a long reply. Didn’t want to write it again.

        2 years ago Log in to Reply
    11. Lorri McLuckie

      Because of insurance, I had to change from Novolog to Humalog insulin.

      2 years ago Log in to Reply
      1. Amber Thompson

        My insurance changes their formulary on a regular basis from Humalog to Novolog and vice versa. Every insurance company I have been with over the 18 years of being diabetic.

        2 years ago Log in to Reply
    12. KarenM6

      I’ve changed almost everything, but not because of insurance.
      Pump because the other one was discontinued.
      CGM because I am hoping for better readings.
      Insulin because the one I was using wouldn’t work in the new pump.
      Test strips because I no longer had to use a particular meter.
      I think that’s all… I hope that’s all!

      2 years ago Log in to Reply
    13. Donna Condi

      Yes. I was using generic Novalog(Insulin Aspart) when I was getting my insulin through Medicare Durable Goods (Part B) and paying $0. When I found out that the rules had changed and Medicare began charging $35.00 through Part B, I decided that it was easier to go through my Part D drug plan and still be charged the same $35.00 with less hoops to jump through.And my drug plan would only pay for Novalog Brand insulin.

      2 years ago Log in to Reply
    14. mbulzomi@optonline.net

      I answered no, nothing to discuss.

      2 years ago Log in to Reply
    15. Jeff Balbirnie

      Vehemently against my will, multiple times. If an actual medical doctor, much less one who had seen/knew me made these requests, I would have no serious issue. A complete stranger, with no medical background whom I have no knowledge of/about and vice-versa forced these change(s) for zero (0) medical reason. I have a serious issue with these unwilling and unwelcome changes, every single time. No warning, no heads-up merely, the medication you were on suddenly changed formulary lists, and you are on the cheaper one that we require you to use. Major problem with the whole idea.

      1
      2 years ago Log in to Reply
      1. Ahh Life

        Welcome to the Byzantine American Who’s-on-First medical system. Maybe it was designed by Abbott &Costello.

        2 years ago Log in to Reply
    16. Steven Gill

      Retired in February, going insurance free until 2024. Does that count? (Changed jobs various times and changed insurance/docs but at least insulin and strips were covered).

      Dropped the “closed loop system” (pump with CGM) to libre3 and 1 insulin pen (glargine from Amazon), and the CGM and Lispro (generic humalog) from Wal-Mart.

      But these are just tools, up to us to know how to use them.

      2 years ago Log in to Reply

    In the past 12 months, have you changed medications or devices because of your health insurance? Cancel reply

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