Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 1 hour, 10 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 1 hour, 10 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 1 hour, 21 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 1 hour, 21 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 1 hour, 28 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 1 hour, 42 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 2 hours, 17 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 2 hours, 17 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 2 hours, 17 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 5 hours, 26 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 8 hours, 14 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 18 hours, 57 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 20 hours, 23 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 20 hours, 24 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 20 hours, 24 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 22 hours, 36 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 22 hours, 37 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 22 hours, 38 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 23 hours, 20 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 2 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 18 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 18 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 18 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 18 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    In the past 12 months, have you changed medications or devices because of your health insurance?

    Home > LC Polls > In the past 12 months, have you changed medications or devices because of your health insurance?
    Previous

    Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you?

    Next

    Do you believe that your insulin has ever been less effective due to exposure to high temperatures?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Advocacy

    Blue Circle Health: A Free Virtual Program Expanding Support for Adults Living with Type 1 Diabetes 

    Michael Howerton, 4 days ago 4 min read  
    News

    Thyroid Eye Disease (TED): What You Need to Know 

    Jewels Doskicz, 6 days ago 4 min read  
    News

    Immunosuppressants in T1D Research: Expert Opinions from Diabetes Pharmacist Diana Isaacs 

    Jewels Doskicz, 1 week ago 5 min read  
    2025 Learning Session

    The 2025 T1DX-QI Learning Session: Driving Better Diabetes Care 

    Sarah Howard, 3 weeks ago 7 min read  
    Lifestyle

    Barriers to Care in Aging: Voices from the T1D Community 

    Jewels Doskicz, 3 weeks ago 7 min read  
    Lifestyle

    When T1D Becomes a Calling: Stories From our Team 

    Jewels Doskicz, 1 month ago 11 min read  

    20 Comments

    1. Becky Hertz

      Oops, should be no. Thought I was answering a different question.

      2 years ago Log in to Reply
    2. LizB

      I changed my brand of pump but not because of insurance. It was my choice, and they covered it.

      2 years ago Log in to Reply
    3. mojoseje

      Yes, I had to switch from Novolog to Humalog because the copay was 3 times as much. I was excited to see that President Biden included Novolog on the list of ten for negotiating better prices. I do feel I used less insulin on Novolog.
      I also had to stop taking another drug because the copay is too expensive.

      2 years ago Log in to Reply
    4. lenglish@cimginc.com

      I changed because I needed new pump…knowing that I was going on Medicare in the next few years I specifically looked based on what they would cover in the future.

      2 years ago Log in to Reply
      1. ELYSSE HELLER

        I will lose my healthcare coverage in 2 years when I turn 65 and also have to rely on Medicare; what did you find out if you would not mind sharing. I am terrified about loosing my healthcare coverage. Thanks,

        vampyre2391@gmail.com

        1
        2 years ago Log in to Reply
    5. AnitaS

      I had to change one of my medications. It wasn’t a diabetes medication though. When I told my doctor that my insurance wasn’t going to cover my original medication anymore, she said she was glad because she was ready to tell me that she was going to switch my medication anyway.

      2 years ago Log in to Reply
    6. Karington Johnston

      I’ve received a notification that I will need to change insulins due to my health insurance, but since I had just placed an order, I still have a few months

      2 years ago Log in to Reply
    7. Gary Rind

      not in the last 12 months. did have to get rid of FIASP, now take Lyumjev. it’s okay but not great.

      2 years ago Log in to Reply
    8. Angela Naccari

      I also incorrectly said “yes” when I should have answered “no”.

      2 years ago Log in to Reply
    9. Michelle Saunders

      I clicked other, as it has been a couple months more than 12, and it wasn’t because of insurance. I had to go to MDI from being on the Tslim and Dex, because my DoS doctor at the embassy where my husband is currently stationed, said he could not send a prescription to the company that I was getting my pump and dex supplies from. The best solution was to give me a copy of my prescription, that had COPY, as a huge watermark, and I was responsible for figuring out how to fax it to them.

      2 years ago Log in to Reply
    10. Richard Vaughn

      In January my Aetna/Medicare plan required me to start using the One Touch Verio glucometer. I had been using the Freestyle Lite glucometer for many years. I feel that the One Touch is less accurate. I miss my Freestyle Lite.

      1
      2 years ago Log in to Reply
      1. Trina Blake

        Hi Richard, see my answer to the question (a few days ago) about experiences with extrele lows to the point of loss of consciousness. It’s a long reply. Didn’t want to write it again.

        2 years ago Log in to Reply
    11. Lorri McLuckie

      Because of insurance, I had to change from Novolog to Humalog insulin.

      2 years ago Log in to Reply
      1. Amber Thompson

        My insurance changes their formulary on a regular basis from Humalog to Novolog and vice versa. Every insurance company I have been with over the 18 years of being diabetic.

        2 years ago Log in to Reply
    12. KarenM6

      I’ve changed almost everything, but not because of insurance.
      Pump because the other one was discontinued.
      CGM because I am hoping for better readings.
      Insulin because the one I was using wouldn’t work in the new pump.
      Test strips because I no longer had to use a particular meter.
      I think that’s all… I hope that’s all!

      2 years ago Log in to Reply
    13. Donna Condi

      Yes. I was using generic Novalog(Insulin Aspart) when I was getting my insulin through Medicare Durable Goods (Part B) and paying $0. When I found out that the rules had changed and Medicare began charging $35.00 through Part B, I decided that it was easier to go through my Part D drug plan and still be charged the same $35.00 with less hoops to jump through.And my drug plan would only pay for Novalog Brand insulin.

      2 years ago Log in to Reply
    14. mbulzomi@optonline.net

      I answered no, nothing to discuss.

      2 years ago Log in to Reply
    15. Jeff Balbirnie

      Vehemently against my will, multiple times. If an actual medical doctor, much less one who had seen/knew me made these requests, I would have no serious issue. A complete stranger, with no medical background whom I have no knowledge of/about and vice-versa forced these change(s) for zero (0) medical reason. I have a serious issue with these unwilling and unwelcome changes, every single time. No warning, no heads-up merely, the medication you were on suddenly changed formulary lists, and you are on the cheaper one that we require you to use. Major problem with the whole idea.

      1
      2 years ago Log in to Reply
      1. Ahh Life

        Welcome to the Byzantine American Who’s-on-First medical system. Maybe it was designed by Abbott &Costello.

        2 years ago Log in to Reply
    16. Steven Gill

      Retired in February, going insurance free until 2024. Does that count? (Changed jobs various times and changed insurance/docs but at least insulin and strips were covered).

      Dropped the “closed loop system” (pump with CGM) to libre3 and 1 insulin pen (glargine from Amazon), and the CGM and Lispro (generic humalog) from Wal-Mart.

      But these are just tools, up to us to know how to use them.

      2 years ago Log in to Reply

    In the past 12 months, have you changed medications or devices because of your health insurance? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]