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    • 5 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 11 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 18 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 7 hours, 29 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 18 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 18 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 19 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 21 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 1 hour ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 2 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 2 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 3 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 3 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 3 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 3 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 3 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 3 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 19 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 19 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 21 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 21 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 23 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 1 hour ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
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    In the past 12 months, have you changed medications or devices because of your health insurance?

    Home > LC Polls > In the past 12 months, have you changed medications or devices because of your health insurance?
    Previous

    Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you?

    Next

    Do you believe that your insulin has ever been less effective due to exposure to high temperatures?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. Becky Hertz

      Oops, should be no. Thought I was answering a different question.

      3 years ago Log in to Reply
    2. LizB

      I changed my brand of pump but not because of insurance. It was my choice, and they covered it.

      3 years ago Log in to Reply
    3. mojoseje

      Yes, I had to switch from Novolog to Humalog because the copay was 3 times as much. I was excited to see that President Biden included Novolog on the list of ten for negotiating better prices. I do feel I used less insulin on Novolog.
      I also had to stop taking another drug because the copay is too expensive.

      3 years ago Log in to Reply
    4. lenglish@cimginc.com

      I changed because I needed new pump…knowing that I was going on Medicare in the next few years I specifically looked based on what they would cover in the future.

      3 years ago Log in to Reply
      1. ELYSSE HELLER

        I will lose my healthcare coverage in 2 years when I turn 65 and also have to rely on Medicare; what did you find out if you would not mind sharing. I am terrified about loosing my healthcare coverage. Thanks,

        vampyre2391@gmail.com

        1
        3 years ago Log in to Reply
    5. AnitaS

      I had to change one of my medications. It wasn’t a diabetes medication though. When I told my doctor that my insurance wasn’t going to cover my original medication anymore, she said she was glad because she was ready to tell me that she was going to switch my medication anyway.

      3 years ago Log in to Reply
    6. Karington Johnston

      I’ve received a notification that I will need to change insulins due to my health insurance, but since I had just placed an order, I still have a few months

      3 years ago Log in to Reply
    7. Gary Rind

      not in the last 12 months. did have to get rid of FIASP, now take Lyumjev. it’s okay but not great.

      3 years ago Log in to Reply
    8. Angela Naccari

      I also incorrectly said “yes” when I should have answered “no”.

      3 years ago Log in to Reply
    9. Michelle Saunders

      I clicked other, as it has been a couple months more than 12, and it wasn’t because of insurance. I had to go to MDI from being on the Tslim and Dex, because my DoS doctor at the embassy where my husband is currently stationed, said he could not send a prescription to the company that I was getting my pump and dex supplies from. The best solution was to give me a copy of my prescription, that had COPY, as a huge watermark, and I was responsible for figuring out how to fax it to them.

      3 years ago Log in to Reply
    10. Richard Vaughn

      In January my Aetna/Medicare plan required me to start using the One Touch Verio glucometer. I had been using the Freestyle Lite glucometer for many years. I feel that the One Touch is less accurate. I miss my Freestyle Lite.

      1
      3 years ago Log in to Reply
      1. Trina Blake

        Hi Richard, see my answer to the question (a few days ago) about experiences with extrele lows to the point of loss of consciousness. It’s a long reply. Didn’t want to write it again.

        3 years ago Log in to Reply
    11. Lorri McLuckie

      Because of insurance, I had to change from Novolog to Humalog insulin.

      3 years ago Log in to Reply
      1. Amber Thompson

        My insurance changes their formulary on a regular basis from Humalog to Novolog and vice versa. Every insurance company I have been with over the 18 years of being diabetic.

        3 years ago Log in to Reply
    12. KarenM6

      I’ve changed almost everything, but not because of insurance.
      Pump because the other one was discontinued.
      CGM because I am hoping for better readings.
      Insulin because the one I was using wouldn’t work in the new pump.
      Test strips because I no longer had to use a particular meter.
      I think that’s all… I hope that’s all!

      3 years ago Log in to Reply
    13. Donna Condi

      Yes. I was using generic Novalog(Insulin Aspart) when I was getting my insulin through Medicare Durable Goods (Part B) and paying $0. When I found out that the rules had changed and Medicare began charging $35.00 through Part B, I decided that it was easier to go through my Part D drug plan and still be charged the same $35.00 with less hoops to jump through.And my drug plan would only pay for Novalog Brand insulin.

      3 years ago Log in to Reply
    14. mbulzomi@optonline.net

      I answered no, nothing to discuss.

      3 years ago Log in to Reply
    15. Jeff Balbirnie

      Vehemently against my will, multiple times. If an actual medical doctor, much less one who had seen/knew me made these requests, I would have no serious issue. A complete stranger, with no medical background whom I have no knowledge of/about and vice-versa forced these change(s) for zero (0) medical reason. I have a serious issue with these unwilling and unwelcome changes, every single time. No warning, no heads-up merely, the medication you were on suddenly changed formulary lists, and you are on the cheaper one that we require you to use. Major problem with the whole idea.

      1
      3 years ago Log in to Reply
      1. Ahh Life

        Welcome to the Byzantine American Who’s-on-First medical system. Maybe it was designed by Abbott &Costello.

        3 years ago Log in to Reply
    16. Steven Gill

      Retired in February, going insurance free until 2024. Does that count? (Changed jobs various times and changed insurance/docs but at least insulin and strips were covered).

      Dropped the “closed loop system” (pump with CGM) to libre3 and 1 insulin pen (glargine from Amazon), and the CGM and Lispro (generic humalog) from Wal-Mart.

      But these are just tools, up to us to know how to use them.

      3 years ago Log in to Reply

    In the past 12 months, have you changed medications or devices because of your health insurance? Cancel reply

    You must be logged in to post a comment.




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