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    • 17 hours, 39 minutes ago
      Amanda Barras likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Never. I have severe hypoglycemic unawareness. No symptoms even at glucose levels of 40.
    • 17 hours, 40 minutes ago
      Amanda Barras likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Nope. Love my technology! Having it frees up so much mental bandwidth that I would otherwise have to spend on finger sticks, calculating insulin doses, figuring how much insulin on board, etc. Also, I love not carrying a purse with all that "stuff" everywhere I go - I put my license & credit card in my phone case and I'm hands-free. Absolute magic!
    • 17 hours, 40 minutes ago
      Amanda Barras likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Vacation? Sounds like a bad idea, to me.
    • 17 hours, 40 minutes ago
      Amanda Barras likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Being on a pump and CGM is not something I would want to be without no matter what. The only way I would ever consider it being a vacation a life long vacation is if I was cured of T1D.
    • 17 hours, 41 minutes ago
      Amanda Barras likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      What's the alternative? MDI? No thanks. That did not work well for me when I was Dx-ed 35 years ago. I have kept my old 770 Medtronic pump and some resivors & infusion sets to fall back on.
    • 17 hours, 42 minutes ago
      Amanda Barras likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Only when the pump or sensor fails & I'm not with the next replacement. Not really a vacation. (I've had them fail on vacation, too.)
    • 17 hours, 42 minutes ago
      Amanda Barras likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      as soon as T1D "takes a vacation", then I will too! ;)
    • 18 hours, 39 minutes ago
      Mike S likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      It really depends on where I bottom out. 62 might take 15 minutes. 48 might take several hours. I’ve switched my low treatment from juice to Glow Gummies and my recoveries are both faster and more precise.
    • 21 hours, 46 minutes ago
      TEH likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      It varies significantly I can become hypo instead of hyper due to being sick at times.
    • 21 hours, 50 minutes ago
      KSannie likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      For me, to become functional again after a hypo, it takes about a half an hour. But to fully recover, meaning that I feel like it hadn't happened, is now more than hour. Getting older has definitely expanded those timelines.
    • 21 hours, 50 minutes ago
      KSannie likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      The older I get the longer it takes to recover. Luckily, I don’t have many lows now that I’m on a pump/CGM closed loop system.
    • 22 hours, 39 minutes ago
      lis be likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Only when the pump or sensor fails & I'm not with the next replacement. Not really a vacation. (I've had them fail on vacation, too.)
    • 22 hours, 39 minutes ago
      lis be likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      as soon as T1D "takes a vacation", then I will too! ;)
    • 22 hours, 39 minutes ago
      atr likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      For me, to become functional again after a hypo, it takes about a half an hour. But to fully recover, meaning that I feel like it hadn't happened, is now more than hour. Getting older has definitely expanded those timelines.
    • 22 hours, 39 minutes ago
      lis be likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      A really sticky low means it takes longer than usual for me to recover.
    • 22 hours, 40 minutes ago
      lis be likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      For me, to become functional again after a hypo, it takes about a half an hour. But to fully recover, meaning that I feel like it hadn't happened, is now more than hour. Getting older has definitely expanded those timelines.
    • 22 hours, 40 minutes ago
      lis be likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      The older I get the longer it takes to recover. Luckily, I don’t have many lows now that I’m on a pump/CGM closed loop system.
    • 22 hours, 40 minutes ago
      atr likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      The older I get the longer it takes to recover. Luckily, I don’t have many lows now that I’m on a pump/CGM closed loop system.
    • 22 hours, 46 minutes ago
      Lawrence S. likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      A really sticky low means it takes longer than usual for me to recover.
    • 22 hours, 47 minutes ago
      Lawrence S. likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      For me, to become functional again after a hypo, it takes about a half an hour. But to fully recover, meaning that I feel like it hadn't happened, is now more than hour. Getting older has definitely expanded those timelines.
    • 22 hours, 47 minutes ago
      Lawrence S. likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      The older I get the longer it takes to recover. Luckily, I don’t have many lows now that I’m on a pump/CGM closed loop system.
    • 22 hours, 47 minutes ago
      Lawrence S. likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      It varies significantly I can become hypo instead of hyper due to being sick at times.
    • 23 hours, 4 minutes ago
      KCR likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      For me, to become functional again after a hypo, it takes about a half an hour. But to fully recover, meaning that I feel like it hadn't happened, is now more than hour. Getting older has definitely expanded those timelines.
    • 23 hours, 4 minutes ago
      KCR likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      The older I get the longer it takes to recover. Luckily, I don’t have many lows now that I’m on a pump/CGM closed loop system.
    • 23 hours, 28 minutes ago
      Meerkat likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      For me, to become functional again after a hypo, it takes about a half an hour. But to fully recover, meaning that I feel like it hadn't happened, is now more than hour. Getting older has definitely expanded those timelines.
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    If you’re telling someone you just met about having T1D, which phrase(s) are you most likely to say? Select all apply.

    Home > LC Polls > If you’re telling someone you just met about having T1D, which phrase(s) are you most likely to say? Select all apply.
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    9 Comments

    1. Mark Schmitt

      I would never tell someone I just met that I have T1D. They should judge me on me, not some annoying disease that I live with. Discrimination happens, especially agains diabetics.

      2
      2 years ago Log in to Reply
    2. William Bennett

      The question puts this in a live-conversation context. In a written context or something where I’m trying to be formal about it I’d be careful to say “I live with T1” rather than saying I “am” T1. But in conversation I wouldn’t bother most of the time. T’other thing is that I DO tend to stress the type, because it’s hard to get people to understand that I’m dealing with a more acute situation than just having to restrict carbs to lose weight or whatever. Most commonly it’s someone offering hi-carb food and I want to be clear that I’d love to have some but I’d have to take a lot of insulin for it and it’s mostly simpler if I practice avoidance. Sometimes that leads to a more detailed discussion, which can be interesting, though I try to avoid boring people with the ins and outs of it unless they seem to be actually interested.

      2 years ago Log in to Reply
    3. mlettinga

      I will often add “
      Which formally was called Juvenile Diabetes as most people don’t know what type 1 means.

      1
      2 years ago Log in to Reply
    4. Trina Blake

      I usually wait until a conversation gets to a point where mentioning a medical condition is a good fit. For example, discussing the issue of access to health care etc. I never use the word “diabetic” as a noun – just like I don’t use schizophrenic as a noun (a person is dealing with schizophrenia, etc.).

      I do make the most of an opportunity to educate when I can and I take care to include info regarding T2D as well (such as “no type of D is self-inflicted, describing the auto-immune nature of T1D, and the hereditary of one’s own family tree as being the highest risk for T2D, or the idea that the insulin resistance that is the hallmark of T2D is a root cause of the weight issues).

      2 years ago Log in to Reply
    5. Sue Martin

      I “have” this disease, I am not this disease.

      3
      2 years ago Log in to Reply
    6. Molly Jones

      I have a condition or disease, it’s nice that (some of) the public is aware of the different types.
      This website does not seem to want to accept answers until almost 20hrs after the question has been posted for the past few days.

      1
      2 years ago Log in to Reply
    7. Bill Marston

      “If you’re going to get an incurable chronic disease that’s most likely going to kill you, get TYPE 1 DIABETES! **You can manage the hell out of diabetes** – not like similarly acute permanent conditions of liver, lungs, kidneys, heart … (P.S. i don’t get into organ transplants for any of these, for simplicity and IMPACT on their thinking.)

      2 years ago Log in to Reply
    8. T1D4LongTime

      Also, I might say “I have long-term Type 1 diabetes”. Saying “long-term” may change the interaction with the person. A mother with a Type 1 child may be more willing to talk to you about T1D if they know you’ve lived with it since childhood. Many people assume an older person (over 50?) has Type 2 and cannot relate to those with T1D.

      2 years ago Log in to Reply
    9. Steven Gill

      I marked “I am…” but have said “I have” as well. I hold a similar

      2 years ago Log in to Reply

    If you’re telling someone you just met about having T1D, which phrase(s) are you most likely to say? Select all apply. Cancel reply

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