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    • 4 hours, 55 minutes ago
      lis be likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      I chose Cost or coverage. Because if you can't afford it, the rest doesn't matter.
    • 12 hours, 20 minutes ago
      Marty likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
    • 12 hours, 20 minutes ago
      Marty likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
    • 13 hours, 49 minutes ago
      mojoseje likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
    • 14 hours, 28 minutes ago
      atr likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
    • 14 hours, 44 minutes ago
      Bonnie kenney likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      If you don’t have accuracy and reliability, none of the rest matters.
    • 14 hours, 50 minutes ago
      Bill Ervin likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      If you don’t have accuracy and reliability, none of the rest matters.
    • 14 hours, 50 minutes ago
      Bill Ervin likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
    • 14 hours, 50 minutes ago
      Bill Ervin likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
    • 15 hours, 32 minutes ago
      Jaysen LeSage likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I find the hardest thing is getting started. Diabetes doesn’t really cause issues
    • 1 day, 6 hours ago
      ChrisW likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      Funny you should ask, and I'm with Amanda Barras - dealing with the US insurance and networks system. I switched health plans, effective 1/1/26. My old plan stopped processing Rx's two weeks before (Rx's for pump and CGM supplies). With the network system in US healthcare, I can't see a doctor until September. Since I have different coverage for my supplies (including insulin) I need new Rx's. Having to check in often to see if their are open appointments from cancellations, and trying to see if a Zoom care or Urgent care will provide "bridge refills". My old health plan will not issue bridge refills. I 'spose it isn't strictly a T1D issue - but it's one that unites all of us with chronic medical conditions (and chronic poor medical service)
    • 1 day, 6 hours ago
      ChrisW likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      For me, a “cruise director” for long-term Type 1 diabetes or chronic illness would be most beneficial — someone who looks at the whole person. General practitioners are increasingly rare, and specialists tend to work in silos, often without coordinating care, considering overlapping conditions, or cross-checking medications and prognoses. What’s needed is a knowledgeable care coordinator who understands long-term Type 1 diabetes, can help interpret conflicting specialist advice, guide patients toward the right specialist for specific symptoms (for example, whether migrating burning pain is diabetes-related or not), and maintain referral lists of providers who already understand how long-term diabetes affects their specialty.
    • 1 day, 11 hours ago
      kristina blake likes your comment at
      How often do you review your glucose data beyond quick, real-time checks?
      Monthly to quarterly. Depending on control. If I notice more highs or lows I’ll copy check for trends and make dosing adjustments to straighten myself out. I almost never wait for appts to review and make changes on my own.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How often do you review your glucose data beyond quick, real-time checks?
      “At appointments” was the best option for me, my medical appointments are only every 6 months, so this definition really means appointments with myself! I check my bg all the time, then review trends every 2-3 months, depending on the need. I’ve been traveling quite a bit so my need to review and make pump (AID) adjustments has been more frequent.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How often do you review your glucose data beyond quick, real-time checks?
      Monthly to quarterly. Depending on control. If I notice more highs or lows I’ll copy check for trends and make dosing adjustments to straighten myself out. I almost never wait for appts to review and make changes on my own.
    • 1 day, 16 hours ago
      Steve Rumble likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      Getting motivated to leave my cozy recliner!!
    • 1 day, 16 hours ago
      Steve Rumble likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      Nothing usually gets in the way of exercising besides motivation
    • 2 days, 8 hours ago
      Derek West likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 2 days, 10 hours ago
      Daniel Bestvater likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      If I am below 100 and haven't eaten recently or I am below 100 and trending downward, I eat and suspend pump before walking my dogs. Sometimes I have to postpone walks or intentionally plan them after a meal in order to prevent a low.
    • 2 days, 10 hours ago
      Daniel Bestvater likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 2 days, 13 hours ago
      Marty likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 2 days, 13 hours ago
      Phyllis Biederman likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 2 days, 13 hours ago
      Phyllis Biederman likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I find the hardest thing is getting started. Diabetes doesn’t really cause issues
    • 2 days, 14 hours ago
      Lawrence S. likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 2 days, 14 hours ago
      Lawrence S. likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not fear to practice exercise
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    If you’re telling someone you just met about having T1D, which phrase(s) are you most likely to say? Select all apply.

    Home > LC Polls > If you’re telling someone you just met about having T1D, which phrase(s) are you most likely to say? Select all apply.
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    9 Comments

    1. Mark Schmitt

      I would never tell someone I just met that I have T1D. They should judge me on me, not some annoying disease that I live with. Discrimination happens, especially agains diabetics.

      2
      2 years ago Log in to Reply
    2. William Bennett

      The question puts this in a live-conversation context. In a written context or something where I’m trying to be formal about it I’d be careful to say “I live with T1” rather than saying I “am” T1. But in conversation I wouldn’t bother most of the time. T’other thing is that I DO tend to stress the type, because it’s hard to get people to understand that I’m dealing with a more acute situation than just having to restrict carbs to lose weight or whatever. Most commonly it’s someone offering hi-carb food and I want to be clear that I’d love to have some but I’d have to take a lot of insulin for it and it’s mostly simpler if I practice avoidance. Sometimes that leads to a more detailed discussion, which can be interesting, though I try to avoid boring people with the ins and outs of it unless they seem to be actually interested.

      2 years ago Log in to Reply
    3. mlettinga

      I will often add “
      Which formally was called Juvenile Diabetes as most people don’t know what type 1 means.

      1
      2 years ago Log in to Reply
    4. Trina Blake

      I usually wait until a conversation gets to a point where mentioning a medical condition is a good fit. For example, discussing the issue of access to health care etc. I never use the word “diabetic” as a noun – just like I don’t use schizophrenic as a noun (a person is dealing with schizophrenia, etc.).

      I do make the most of an opportunity to educate when I can and I take care to include info regarding T2D as well (such as “no type of D is self-inflicted, describing the auto-immune nature of T1D, and the hereditary of one’s own family tree as being the highest risk for T2D, or the idea that the insulin resistance that is the hallmark of T2D is a root cause of the weight issues).

      2 years ago Log in to Reply
    5. Sue Martin

      I “have” this disease, I am not this disease.

      3
      2 years ago Log in to Reply
    6. Molly Jones

      I have a condition or disease, it’s nice that (some of) the public is aware of the different types.
      This website does not seem to want to accept answers until almost 20hrs after the question has been posted for the past few days.

      1
      2 years ago Log in to Reply
    7. Bill Marston

      “If you’re going to get an incurable chronic disease that’s most likely going to kill you, get TYPE 1 DIABETES! **You can manage the hell out of diabetes** – not like similarly acute permanent conditions of liver, lungs, kidneys, heart … (P.S. i don’t get into organ transplants for any of these, for simplicity and IMPACT on their thinking.)

      2 years ago Log in to Reply
    8. T1D4LongTime

      Also, I might say “I have long-term Type 1 diabetes”. Saying “long-term” may change the interaction with the person. A mother with a Type 1 child may be more willing to talk to you about T1D if they know you’ve lived with it since childhood. Many people assume an older person (over 50?) has Type 2 and cannot relate to those with T1D.

      2 years ago Log in to Reply
    9. Steven Gill

      I marked “I am…” but have said “I have” as well. I hold a similar

      2 years ago Log in to Reply

    If you’re telling someone you just met about having T1D, which phrase(s) are you most likely to say? Select all apply. Cancel reply

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