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    • 11 hours, 48 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 11 hours, 53 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 12 hours ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 6 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 6 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 6 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 6 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 8 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 12 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 12 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 14 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 14 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 15 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 15 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 15 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 15 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 7 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 7 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 9 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 9 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 11 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 12 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 12 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.

    Home > LC Polls > If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    10 Comments

    1. LizB

      One additional thing I would bring is one of my old backup pumps. “Loaner” was a choice, but I don’t need that as I can use my own old pump.

      1
      4 years ago Log in to Reply
    2. John Williamson

      I also take my previous insulin pump as backup even though I have never needed to use it.

      1
      4 years ago Log in to Reply
    3. KCR

      Having had a bad low in December for which I needed a microdose of glucagon, I’d now also bring a Gvoke syringe.

      2
      4 years ago Log in to Reply
    4. Marty

      I remember when everyone was stranded in place on 9/11. I always pack at least twice what I think I might need of everything, usually 3x as much insulin. My previous pump stays in my luggage.

      2
      4 years ago Log in to Reply
    5. luis.cosme@mac.com

      My T:Slim died yesterday.
      My t:slim died yesterday. I was out on a walk when it started screeching that urgent beep you get when you’re below 55 (or at least the Dexcom thinks so). I was at 85 per my Dexcom, which was still working. The screen wouldn’t wake up so it continued screeching every 3 minutes. I got back home about 20 minutes later and plugged it in to see if that would revive it. (Note that the battery was probably around 85% when I left but I wanted to make sure.)

      I called Tandem and she asked if it was blinking 3 red lights, which I hadn’t noticed in the daylight but I was able to confirm it after about a minute or so. She told me that the pump needs to be replaced and that the new one will arrive tomorrow (Monday). So two days without the pump.

      Fortunately, I kept my old Medtronic 630 with a box of reservoirs and infusion sets and was able to reprogram it using the t:connect app to recall my basal settings. (I had placed it in its storage mode without a battery.) Otherwise, I would’ve needed to get a prescription for Lantus and go to MDI for a couple of days, likely ruining my Saturday plans. Fortunately, the Dexcom continued working.

      So, the lesson for me is to take that back-up Medtronic with me when I travel out-of town (about once a month), even though it’s a pain to carry extra supplies.

      1
      4 years ago Log in to Reply
    6. Maureen Helinski

      I was away in Italy once and without realizing it I used up all my infusion sets. I went to a hospital but they couldn’t help. Fortunately I was home 8 days later and kept the same infusion set in me. It worked. I did have needles just in case.

      4 years ago Log in to Reply
    7. Heather Sharp-Keys

      I went out of town to a funeral last year. My CGM goes through cycles where 2 sensors in the box of three don’t work right the whole ten days. I was only going to be gone three days and had not had a bag low in a couple of weeks. I seriously thought about just taking one extra sensor, but that little diabetes voice most T1people have, told me to bring a whole box. It also told me to bring a glucagon kit. On the way to the funeral, my seatbelt ripped my sensor out. Never had that happen before. Stopped at a truck stop, put in a new sensor and noticed my sugar was in the mid 100s
      We got a bite to eat and some coffee. I took my Novolog for the carbs I ate and decided not to do a correction bolus until I got a reading from the new sensor. No more insulin as my sugar was 118. Sometime early the next morning my receiver started screeching for a critical low. I didn’t wake up. My mom who had moderate Alzheimer’s woke up, grabbed the glucagon, mixed it and gave it to me in the thigh. I woke up, barfed as I always do after glucagon, ate some glucose tabs and a PB&J after silencing the receiver. I hadn’t needed glucagon in over a year and I seriously doubted she would look in my purse, find it, mix it, and shoot it in me. it’s amazing what our brains can do in an emergency. Next trip take your glucagon!

      2
      4 years ago Log in to Reply
      1. KarenM6

        I agree, Heather! I don’t forget my Baqsimi anymore!!! My experience at an airport (written above) led me to request some type of glucagon. I really should have had it available, but didn’t. Lesson learned!!!

        4 years ago Log in to Reply
    8. KarenM6

      I had an experience once where I had to try 4 sensors before I found one that would work. (The needles weren’t releasing and I couldn’t get the inserter off without pulling the sensor out.) So I always do 2 or 3 times what I will expect to need.
      I did that for a trip overseas, but it didn’t work out. My sensors kept failing because they said I had to put a new one in. As I _was_ putting new ones in, it was quite annoying. And, because I was overseas, the company wouldn’t/couldn’t help me out. I had to go without a CGM for the final leg of my trip.
      But, I ended up really needing a working CGM because we had a late connecting plane arrival and had to run about a mile or two through the airport to make our next plane.
      We made it by the skin of our teeth. When we got on the plane and had settle in, I checked my BS and it was 43. (I am hypo unaware, so didn’t have any symptoms.)
      I just thought, “No wonder I had such a hard time running through the airport!”

      Anyway, I’ve experienced far too many CGM and pump issues to ever feel comfortable going away from my home with less than double what I will need! =:o

      2
      4 years ago Log in to Reply
    9. Wanacure

      If my Dexcom sensor was going to expire before the 7 days was up, yes I’d bring another. If my transmitter was going to expire before 7 days was up, I’d bring the replacement. If my two insulin vials were about to surpass 28 days, I’d bring a fresh vial of each type, with extra syringes as well.

      4 years ago Log in to Reply

    If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you. Cancel reply

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