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    • 14 hours, 49 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 14 hours, 52 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 14 hours, 53 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 14 hours, 53 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 15 hours, 1 minute ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 16 hours, 54 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 16 hours, 54 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 16 hours, 57 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 20 hours, 57 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 22 hours, 59 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 23 hours, 45 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 12 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      No one has said (in seriousness) you can't eat that, but I have gotten the question "Can you eat that?"
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    If you wear a CGM and share your CGM data with any of your loved ones through an app, for which types of CGM alerts does your network receive notifications? Select all that apply!

    Home > LC Polls > If you wear a CGM and share your CGM data with any of your loved ones through an app, for which types of CGM alerts does your network receive notifications? Select all that apply!
    Previous

    Do you currently use any of the following CGM systems?

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    How would you bolus for a serving of chips and guacamole at a restaurant?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. Larry Martin

      I am really surprised you didnt have the choice to share it on Facebook. Don’t they need to to help with marketing for you guys?

      1
      4 years ago Log in to Reply
      1. ConnieT1D62

        That comment was unkind, sarcastic and not very nice. I have lived with T1D in my body since 1962, have been a TID participant for several years, and am a Masters prepared RN diabetes education specialist. I can say in defense of TID Exchange they are not in the business of marketing anything for anyone. The purpose of this website is to collect real life data and opinions about life with TID, and to provide relevant and meaningful information to help us all live better lives.

        4
        4 years ago Log in to Reply
    2. Mick Martin

      The only people I share my CGM data with is Medtronic, my endocrinologist, and my Diabetes Specialist Nurse (DSN).

      My wife has absolutely no interest as she believes that she already knows everything there is to know about diabetes. (sic)

      1
      4 years ago Log in to Reply
    3. Carol Cunningham

      I shared urgent low message with my spouse.
      I also share with my co worker. We are both T1D and are diabetes educators – this way we can show and explain the pros & cons of these devices.

      2
      4 years ago Log in to Reply
    4. Daniel Bestvater

      I used Dexcom share with my wife for a few months. Made her a nervous wreck! She’s a nurse and every time it was outside a non diabetics range she would panic!! So, no more sharing data!!

      3
      4 years ago Log in to Reply
    5. Steve Gold

      Nobody except my doctors is interested. Besides most don’t know how to interpret it.

      4
      4 years ago Log in to Reply
    6. Gerald Oefelein

      I share only with my diabetologist.

      4 years ago Log in to Reply
    7. TomH

      I use Dexcom’s Share with my endocrinologist (gets the data, not alerts to my knowledge) and my wife (she gets alerts). My wife is helpful in that she doesn’t panic, but will ask how I’m doing if a high or low lasts very long.

      1
      4 years ago Log in to Reply
    8. Kevin McCue

      I shared data for a week, but had to discontinue due alarms interfering with their daily activities. Welcome to T1d

      2
      4 years ago Log in to Reply
    9. Natalie Daley

      Sharing data with the doctor is the other reason for wearing a CGM. It should have been an to choose.

      1
      4 years ago Log in to Reply
    10. Sahran Holiday

      Have a new endocrinologist. May share data if she wants to when I see her next time.

      4 years ago Log in to Reply
    11. Janis Senungetuk

      Other: only share with endo and diabetes educator

      4 years ago Log in to Reply
    12. Jneticdiabetic

      I think this question is intends to ask about real-time CGM data sharing rather than giving your medical team access to device reports. I use a Medtronic 670G, so no live sharing capabilities. I did previously use a Dexcom and shared with my husband. It was a little bit too much having both the alarms and my well-intended husband reminding me when my BGs were off. If I could limit alerts to just low warnings, I would consider that for safety. I bet sharing is helpful for parents of little ones with T1D.

      4 years ago Log in to Reply
    13. TEH

      I used the 670G and now 770G. My wife hears the alarms somtimes, not always. I usually share a summary of my meal time SG response.

      4 years ago Log in to Reply
    14. Carol Meares

      I actually share my data with my doc but only during the appt.

      4 years ago Log in to Reply
    15. George Lovelace

      Only Endo has access to Data

      1
      4 years ago Log in to Reply
    16. LizB

      My endo takes my 770g pump to download at my visits but I know there is a way for me to sharethe Carelink data without them needing to take my pump from me. I keep forgetting to ask.
      Prior to the 770 my sister had asked if there was a way for anyone else to see my data and at the time there wasn’t. Now that there is I still won’t share with her because she won’t share her Dexcom with me!

      4 years ago Log in to Reply
    17. KarenM6

      I only share with specific doctors, not any loved ones. So, no alarms and no data sent to family or friends.
      I don’t need even _more_ people hounding me about my choices and my diabetes care.

      4 years ago Log in to Reply
    18. PamK

      I actually started sharing with my spouse so that he could see what my daily BG readings look like. He had been hovering – – “Your sugar is at 75, shouldn’t you be eating something?” or, “You didn’t eat/drink much, don’t you think you should have more?” So, I asked him to allow me to share so that he could get a better idea of what my life with diabetes is like.

      I have found, now that he has calmed down, that I really like sharing. It is so nice to know he has my back! If he sees I am low and doesn’t see any signs that I am treating it, he’ll call or text me to make sure I am aware. I is a comfort to know he’s there!

      2
      4 years ago Log in to Reply
    19. Leona Hanson

      I would share but there’s no internet out side of the house so I don’t use the share

      4 years ago Log in to Reply

    If you wear a CGM and share your CGM data with any of your loved ones through an app, for which types of CGM alerts does your network receive notifications? Select all that apply! Cancel reply

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