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    • 18 hours, 34 minutes ago
      KarenM6 likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 23 hours, 3 minutes ago
      Natalie Daley likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 1 day ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      Often? Try Always! I only see my doc 1x a year to legally fill Rx. Otherwise I manage 100% on my own and make all my own dosing adjustments.
    • 1 day ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 1 day, 19 hours ago
      Amanda Barras likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 1 day, 22 hours ago
      kristina blake likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 1 day, 23 hours ago
      Marty likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 2 days ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      This is one of those times when I want to ask T1DExchange “what is the motivation behind this question”? What are you trying to learn from it?
    • 2 days ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 2 days, 11 hours ago
      Bekki Weston likes your comment at
      If you use a CGM, is it accurate on day 1?
      It takes a few hours to get close.
    • 2 days, 11 hours ago
      Bekki Weston likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Usually when it's about to expire.
    • 2 days, 19 hours ago
      lis be likes your comment at
      How often do you adjust a planned physical activity because of how your glucose is trending?
      If I am above 150mg/dl don't need to carb up. If I am around 100mg/dl I definitely need to carb up. Aren't we always evaluating where we are and anticipating where we might land. That is part of active management.
    • 2 days, 23 hours ago
      Phyllis Biederman likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      For me it's compression lows - and that's it. I see that most complaints are about connection to phones. I don't (won't) use my phone. I have to have a work phone with me at least 60 hours a week, and I'm not interested in carrying (or wearing) two phones. I rarely lose connection between my Tandem X2 pump and the sensor/transmitter. Sometimes I will walk away while it's charging and take myself out of range, but that's on me.
    • 3 days ago
      Derek West likes your comment at
      What is the best spot for CGM accuracy
      Dexcom is ok with other locations if approved by your doctor.
    • 3 days ago
      Lawrence S. likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      1 and 2 days before its about to expire. It goes out of range several times those days. They should prescribe a 10 day CGM for every 8 days because on average, that is the use it seems we get.. and if you call to report it, you lose an hour on the phone!
    • 3 days ago
      Lawrence S. likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      It's a G7...one feature they added to the new version was random signal loss.
    • 3 days, 1 hour ago
      Meerkat likes your comment at
      Over the past week, what percent of the time have you been within your glucose target range?
      Around 95%
    • 3 days, 20 hours ago
      lis be likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      It’s usually at the end of my sensor session. Day 8 or 9
    • 3 days, 20 hours ago
      lis be likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      I tried to answer all of them but it wouldn’t let me. Or maybe my answer should be-for no apparent reason. It happens any time from day five on with no particular reason.
    • 3 days, 20 hours ago
      lis be likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Methinks the question doth another answer require. I almost clicked "out of range," but the occurrences often happen when withing 6 feet of CGM and the *#($% thing still has a signal loss. I re-orient so both devices are face to face. It STILL indicates signal loss. Then, after considerable time, these digital devices change their minds and say to each other, "OK, let's communicate again." My patience and frustration are suffering. 🗣˙◠˙
    • 3 days, 20 hours ago
      lis be likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Day 5 of 7, 4 out of 5 sensors in that box.
    • 3 days, 20 hours ago
      lis be likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      for no discernable reason.
    • 3 days, 20 hours ago
      lis be likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Usually when it's about to expire.
    • 3 days, 21 hours ago
      Lauren T likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      for no discernable reason.
    • 3 days, 22 hours ago
      CindyGoddard likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Usually when it's about to expire.
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    If you have a child with T1D, which of the following people do/did you feel comfortable with babysitting your child? Select all that apply to you.

    Home > LC Polls > If you have a child with T1D, which of the following people do/did you feel comfortable with babysitting your child? Select all that apply to you.
    Previous

    If you use an insulin pump, do you currently have a protective case on your pump or PDM?

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    Have you ever experienced other people acting fearful or otherwise negatively about you checking your BG levels or disposing of glucose strips because of the blood?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    9 Comments

    1. Don P

      fortunately to this date, none, oldest being 47, hopefully all remain that way in their lifetime.

      4 years ago Log in to Reply
    2. Bob Durstenfeld

      My son was dx’ed at 8 months old. The only people willing to watch him were family.

      4 years ago Log in to Reply
      1. Jneticdiabetic

        Wow! 8 mo old! I can’t imagine how challenging it must be to estimate insulin meal doses for children diagnosed at such a young ages when how much food will actually gets eaten is so unpredictable.
        Special props to T1D parents!

        4 years ago Log in to Reply
    3. Yaffa Steubinger

      I don’t have children with T1 but I have two grandkids with it. Their parents felt comfortable leaving their kids with me, since I have T1

      4 years ago Log in to Reply
    4. pru barry

      My three kids are all in their fifties, and fortunately for all of us, none have diabetes. You can’t know how lucky that makes me feel. I’ve always believed that it would be easier to have diabetes than to have a child with the condition. And after almost 70 years of lots of shots, test tape, and all the rest of it, I still feel that way. Three years ago, my labradoodle was moved into our category following a case of pancreatitis, so my belief has been reality checked. I’m not complaining because my now much smaller world has something in it that I have the experience to deal with. I’m almost ridiculously grateful to have the years of experience learning first hand how to manage Charlie’s insulin regimen, applying Libre’s to make sure he’s in range as much as possible, and giving him 4 shots a day of 2 different insulins. Some have called it a bad joke. I call it serendipity. Charlie reinforces my will to take care of both of us, and to find something to be happy about each and every day.

      2
      4 years ago Log in to Reply
    5. Melinda Lipe

      So many of these questions are not appropriate for those of us with long term T1. I think my mom tried so hard, but it was not an easy answer. I managed to have severe lows most everywhere and with everyone we knew when I was left in their care. It was a nightmare until I grew older.

      1
      4 years ago Log in to Reply
      1. ConnieT1D62

        Me too! I think part of the hot mess syndrome suffered by many of us from that era was the fact that we were on such limited & primitive insulin formulations – often NPH once or twice a day, or maybe one shot of NPH with some R or Lente given later on. But still, we were lucky to have insulin to keep us alive.

        Diabetes self-care was much more complicated and difficult in those days and we had to work hard with the limited resources that we had. For us T1D long-timers, it’s a miraculous blessing that we are still alive and thriving with diabetes tech advances!!!

        4 years ago Log in to Reply
    6. ConnieT1D62

      I was a young child with T1 diabetes back in the 1960s. My single divorced mom worked full-time as a dance teacher & choreographer 6 days a week, usually in the afternoons and evenings. My younger brother and I spent a lot of time with babysitters when we weren’t at school. None of the babysitters had T1 diabetes but my mom taught them whatever she knew from what she was taught. My mom left detailed instruction notes for the babysitters about meal prep, snacks, S&S of insulin reaction, what to do give me if I was having one, and when to call a doctor, i.e. if I was having a seizure.

      On Saturdays we often stayed with my father relatives, usually his sister so we could play with our cousins of similar age. At that time nobody else had diabetes on either side of the family. My aunt was a grade school teacher so she did have some familiarity about kids with diabetes from her own experience as a teacher. Because of the insulin I was on I often had severe insulin reactions just before lunch time if I didn’t eat a mid-morning snack. My aunt was always very diligent about making sure I had something to eat – like a peanut butter and apple sandwich cut into little squares for snack time.

      4 years ago Log in to Reply
    7. Bruce Johnson

      I have been a T1D since the age of 13 and have a younger sister (3 years) who had been insulin dependent since a few months after birth. My mother, of course, was very concerned when babysitting of my sister started. Fortunately my mom and dads close association when forming a local chapter of the Canadian Diabetes Association in the 1950’s / ’60’s they met and associated with other diabetic families, health professionals associated with the disease and others from much larger communities. The babysitting often included other siblings as well. There were 5 children in the family and some of us thought we were the “best babysitter” and through the incredible patience of our parents did get that opportunity, probably at a much younger age than others and it made us feel kind of proud of ourselves especially amongst our grandparents and the many other relatives and friends. I will never forget the very first time my parents were able to go out of town together for several days. There was so many relatives both for and against that! I was of course brought up in a “diabetic family” so when I was diagnosed at 13 and was being taught how to give myself an injection every morning I devised a plan to help my little sister to finally be able to inject herself as well and it worked! WE all knew how to sterilize the glass syringes and sharpen and sterilize the stainless steel needles, but our Dad was the only one who would inject my sister until I got out of the hospital and then we often played games daring each other who could do it first. I was released from the hospital by mid October and my sister was teaching her other siblings how to inject her morning insulin dose before Xmas. Our parents, but especially my Dad, were so grateful that a big portion of their daily lives was getting to be as close to normal than it had ever been for over 13 years. My youngest sister would still require a baby sitter for several more years but now the options had expanded. Her life took on a new meaning as well because she was able to do more things as there were enough of us to be around whenever needed. My point of this story about babysitting a diabetic child is it can be done by almost anyone who is determined they want to do that, a little bit courageous and happy they can assist others when asked.

      4 years ago Log in to Reply

    If you have a child with T1D, which of the following people do/did you feel comfortable with babysitting your child? Select all that apply to you. Cancel reply

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