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    • 11 minutes ago
      Lawrence S. likes your comment at
      How often do you review your glucose data beyond quick, real-time checks?
      “At appointments” was the best option for me, my medical appointments are only every 6 months, so this definition really means appointments with myself! I check my bg all the time, then review trends every 2-3 months, depending on the need. I’ve been traveling quite a bit so my need to review and make pump (AID) adjustments has been more frequent.
    • 11 minutes ago
      Lawrence S. likes your comment at
      How often do you review your glucose data beyond quick, real-time checks?
      Monthly to quarterly. Depending on control. If I notice more highs or lows I’ll copy check for trends and make dosing adjustments to straighten myself out. I almost never wait for appts to review and make changes on my own.
    • 1 hour, 20 minutes ago
      Steve Rumble likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      Getting motivated to leave my cozy recliner!!
    • 1 hour, 22 minutes ago
      Steve Rumble likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      Nothing usually gets in the way of exercising besides motivation
    • 3 hours ago
      Ahh Life likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      Old age (86). I'm tired.
    • 17 hours, 24 minutes ago
      Derek West likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 19 hours, 35 minutes ago
      Daniel Bestvater likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      If I am below 100 and haven't eaten recently or I am below 100 and trending downward, I eat and suspend pump before walking my dogs. Sometimes I have to postpone walks or intentionally plan them after a meal in order to prevent a low.
    • 19 hours, 37 minutes ago
      Daniel Bestvater likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 21 hours, 59 minutes ago
      Marty likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 22 hours, 23 minutes ago
      Phyllis Biederman likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 22 hours, 23 minutes ago
      Phyllis Biederman likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I find the hardest thing is getting started. Diabetes doesn’t really cause issues
    • 23 hours, 20 minutes ago
      Lawrence S. likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 23 hours, 21 minutes ago
      Lawrence S. likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not fear to practice exercise
    • 23 hours, 24 minutes ago
      TEH likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I do not have a “fear” of low glucose, but a healthy awareness. So, I always have glucose tabs on hand and check blood sugars during exercise.
    • 23 hours, 28 minutes ago
      Lawrence S. likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      Nothing usually gets in the way of exercising besides motivation
    • 1 day, 19 hours ago
      Bob Durstenfeld likes your comment at
      Which part of your diabetes routine feels the most consistent day-to-day?
      Successful diabetes management requires consistent routines. I picked morning, but all apply.
    • 1 day, 23 hours ago
      Derek West likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      I chose real life practical tips because of a suggestion I saw in an online forum. For the last week and a half I have been running my Tandem sleep mode 24/7, except while playing golf when I switched to exercise mode. My TIR has been higher than it’s been in a long time. I use a higher temp basil if I need more insulin for a short time and use a 0 temp basil if I get too low but mostly I just sail along keeping in range.
    • 2 days, 14 hours ago
      Tracy Jean likes your comment at
      Do you feel like diabetes-related decisions take more time and energy than other people realize?
      Most people think you wear a pump and it does everything. They have no idea about pre-bolus for food and adjustments, site changes or any of the other issues and decisions and actions we make every day.
    • 2 days, 23 hours ago
      Danielle Eastman likes your comment at
      Do you feel T1D has made you more adaptable to change, in general?
      I think it's actually made me go the opposite way - I really don't like change and cling to my routines 😂
    • 3 days, 1 hour ago
      lis be likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      A choice that was not available but one that is really needed is: " Aging with Type 1".
    • 3 days, 2 hours ago
      Ahh Life likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      A choice that was not available but one that is really needed is: " Aging with Type 1".
    • 3 days, 2 hours ago
      Ahh Life likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      For me, a “cruise director” for long-term Type 1 diabetes or chronic illness would be most beneficial — someone who looks at the whole person. General practitioners are increasingly rare, and specialists tend to work in silos, often without coordinating care, considering overlapping conditions, or cross-checking medications and prognoses. What’s needed is a knowledgeable care coordinator who understands long-term Type 1 diabetes, can help interpret conflicting specialist advice, guide patients toward the right specialist for specific symptoms (for example, whether migrating burning pain is diabetes-related or not), and maintain referral lists of providers who already understand how long-term diabetes affects their specialty.
    • 3 days, 14 hours ago
      Ahh Life likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      Funny you should ask, and I'm with Amanda Barras - dealing with the US insurance and networks system. I switched health plans, effective 1/1/26. My old plan stopped processing Rx's two weeks before (Rx's for pump and CGM supplies). With the network system in US healthcare, I can't see a doctor until September. Since I have different coverage for my supplies (including insulin) I need new Rx's. Having to check in often to see if their are open appointments from cancellations, and trying to see if a Zoom care or Urgent care will provide "bridge refills". My old health plan will not issue bridge refills. I 'spose it isn't strictly a T1D issue - but it's one that unites all of us with chronic medical conditions (and chronic poor medical service)
    • 3 days, 14 hours ago
      Ahh Life likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      Dealing with insurance coverage and getting claims approved due to coordination of benefits issues. We should not have to hold the hands of insurance and billing specialists in order for them to do their job so our medical bills get paid. Correctly. I have thought about going to school for medical billing jay to have more inside knowledge of how things work so I can articulate the problems more effectively and get resolution quicker.
    • 3 days, 18 hours ago
      Marty likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      Funny you should ask, and I'm with Amanda Barras - dealing with the US insurance and networks system. I switched health plans, effective 1/1/26. My old plan stopped processing Rx's two weeks before (Rx's for pump and CGM supplies). With the network system in US healthcare, I can't see a doctor until September. Since I have different coverage for my supplies (including insulin) I need new Rx's. Having to check in often to see if their are open appointments from cancellations, and trying to see if a Zoom care or Urgent care will provide "bridge refills". My old health plan will not issue bridge refills. I 'spose it isn't strictly a T1D issue - but it's one that unites all of us with chronic medical conditions (and chronic poor medical service)
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    If you could guess, about how many times a year do you miss planned events because of something T1D-related?

    Home > LC Polls > If you could guess, about how many times a year do you miss planned events because of something T1D-related?
    Previous

    Many people with T1D also live with attention-deficit hyperactivity disorder (ADHD). Do these conditions affect you or someone you love?

    Next

    Have you given yourself a rapid-acting insulin injection instead of a long-acting one by mistake (or vice versa)? Share how you handled this situation in the comments.

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    16 Comments

    1. rick phillips

      My own damn fault

      2 years ago Log in to Reply
    2. Mick Martin

      I selected “Other”, but that could quite as easily have been “0” as I don’t go out of the house, save for hospital and clinical appointments, and simply can’t afford to make plans to attend anywhere.

      1
      2 years ago Log in to Reply
    3. mojoseje

      I’ve never missed anything but I’ve been late because I won’t drive if my bg is too low.

      5
      2 years ago Log in to Reply
    4. Lawrence S.

      I have missed events (or work projects around the house) mostly because of other health issues, asthma, shoulder pain, celiac disease, back pain. T1D mostly effects home work projects. We don’t go out very often. I said “once or twice.” (Maybe).

      2 years ago Log in to Reply
    5. Anita Stokar

      I put 3-4, but it really varies. Could be 0 or could be 6.

      2
      2 years ago Log in to Reply
    6. Anne Blayney

      I almost never miss events because of urgent T1D situations (blood sugar issues, DKA, etc.) — but I frequently miss events because of diabetes complications (gastroparesis flares in particular). Plus there’s the calculus of risk, especially since the pandemic. When COVID and flu rates are high, how many events do I just not even consider because of that risk? That feels very different than bailing on an event that I planned to attend because of a diabetes emergency, but it still has the net result of me not going to an event.

      3
      2 years ago Log in to Reply
    7. cynthia jaworski

      Really, never ever.

      I have missed events due to pregnancy or flu or family responsibilities.

      2 years ago Log in to Reply
    8. Patricia Dalrymple

      I said 1-2. It’s rare but I won’t do things like tubing or kayaking because I don’t want to get my pump wet (live in FL and most involves salt water). Even in fresh water I wouldn’t risk it.

      2 years ago Log in to Reply
    9. Ahh Life

      Prior to gastroparesis, the first 65 – 70 years of T1D, the answer was zero. But alas and alack, I now am enslaved to a spastic digestive nerve that sits there and contemplates to itself in a complete soliloquy, “Will I or won’t I digest this carb?” And I cannot drive, travel, etc. until the dolting dither-er in chief makes up it’s mind.

      1
      2 years ago Log in to Reply
    10. Dave Akers

      Honestly I never miss an event…unless it’s an event I don’t want to attend, then Inuse T1D as a scapegoat to get out of it! 😳

      Or I use it to get me and kids to front of line at Disney! 😬

      1
      2 years ago Log in to Reply
    11. William Bennett

      If having to bail on an event early due to pump failure counts, then yeah, 1-2 a year maybe. Not often but not never.

      1
      2 years ago Log in to Reply
    12. Mark Schweim

      The way my work life went, I gave up planning to do things decades ago. If I wanted to work overtime, the most reliable way to get the overtime was to plan on doing something or going somewhere on my days off. If I had nothing planned, it was almost guaranteed that I’d have the time off. But without fail, if I had made any plans, it was guaranteed that work would require me to work the entire time of whatever I had planned to attend.

      2 years ago Log in to Reply
    13. mbulzomi@optonline.net

      Never is self-explanatory.

      2 years ago Log in to Reply
    14. ConnieT1D62

      Rarely. That should have been an option.

      2 years ago Log in to Reply
    15. Kelly Wilhelm

      The only thing I’ve missed have been 2 workouts when I woke up much lower than planned and was not able to rebound in time to go do a hard work workout. But generally speaking, it’s not an issue.

      2 years ago Log in to Reply
    16. Jeff Balbirnie

      Never considered the question before. Not very often that I am aware of

      2 years ago Log in to Reply

    If you could guess, about how many times a year do you miss planned events because of something T1D-related? Cancel reply

    You must be logged in to post a comment.




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