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    • 7 hours, 12 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 7 hours, 18 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 7 hours, 24 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 1 hour ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 1 hour ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 1 hour ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 2 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 4 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 7 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 8 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 9 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 10 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 10 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 10 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 10 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 10 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 11 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 2 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 2 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 4 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 5 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 6 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 8 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 8 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    If you could guess, about how many times a year do you miss planned events because of something T1D-related?

    Home > LC Polls > If you could guess, about how many times a year do you miss planned events because of something T1D-related?
    Previous

    Many people with T1D also live with attention-deficit hyperactivity disorder (ADHD). Do these conditions affect you or someone you love?

    Next

    Have you given yourself a rapid-acting insulin injection instead of a long-acting one by mistake (or vice versa)? Share how you handled this situation in the comments.

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    16 Comments

    1. rick phillips

      My own damn fault

      2 years ago Log in to Reply
    2. Mick Martin

      I selected “Other”, but that could quite as easily have been “0” as I don’t go out of the house, save for hospital and clinical appointments, and simply can’t afford to make plans to attend anywhere.

      1
      2 years ago Log in to Reply
    3. mojoseje

      I’ve never missed anything but I’ve been late because I won’t drive if my bg is too low.

      5
      2 years ago Log in to Reply
    4. Lawrence S.

      I have missed events (or work projects around the house) mostly because of other health issues, asthma, shoulder pain, celiac disease, back pain. T1D mostly effects home work projects. We don’t go out very often. I said “once or twice.” (Maybe).

      2 years ago Log in to Reply
    5. Anita Stokar

      I put 3-4, but it really varies. Could be 0 or could be 6.

      2
      2 years ago Log in to Reply
    6. Anne Blayney

      I almost never miss events because of urgent T1D situations (blood sugar issues, DKA, etc.) — but I frequently miss events because of diabetes complications (gastroparesis flares in particular). Plus there’s the calculus of risk, especially since the pandemic. When COVID and flu rates are high, how many events do I just not even consider because of that risk? That feels very different than bailing on an event that I planned to attend because of a diabetes emergency, but it still has the net result of me not going to an event.

      3
      2 years ago Log in to Reply
    7. cynthia jaworski

      Really, never ever.

      I have missed events due to pregnancy or flu or family responsibilities.

      2 years ago Log in to Reply
    8. Patricia Dalrymple

      I said 1-2. It’s rare but I won’t do things like tubing or kayaking because I don’t want to get my pump wet (live in FL and most involves salt water). Even in fresh water I wouldn’t risk it.

      2 years ago Log in to Reply
    9. Ahh Life

      Prior to gastroparesis, the first 65 – 70 years of T1D, the answer was zero. But alas and alack, I now am enslaved to a spastic digestive nerve that sits there and contemplates to itself in a complete soliloquy, “Will I or won’t I digest this carb?” And I cannot drive, travel, etc. until the dolting dither-er in chief makes up it’s mind.

      1
      2 years ago Log in to Reply
    10. Dave Akers

      Honestly I never miss an event…unless it’s an event I don’t want to attend, then Inuse T1D as a scapegoat to get out of it! 😳

      Or I use it to get me and kids to front of line at Disney! 😬

      1
      2 years ago Log in to Reply
    11. William Bennett

      If having to bail on an event early due to pump failure counts, then yeah, 1-2 a year maybe. Not often but not never.

      1
      2 years ago Log in to Reply
    12. Mark Schweim

      The way my work life went, I gave up planning to do things decades ago. If I wanted to work overtime, the most reliable way to get the overtime was to plan on doing something or going somewhere on my days off. If I had nothing planned, it was almost guaranteed that I’d have the time off. But without fail, if I had made any plans, it was guaranteed that work would require me to work the entire time of whatever I had planned to attend.

      2 years ago Log in to Reply
    13. mbulzomi@optonline.net

      Never is self-explanatory.

      2 years ago Log in to Reply
    14. ConnieT1D62

      Rarely. That should have been an option.

      2 years ago Log in to Reply
    15. Kelly Wilhelm

      The only thing I’ve missed have been 2 workouts when I woke up much lower than planned and was not able to rebound in time to go do a hard work workout. But generally speaking, it’s not an issue.

      2 years ago Log in to Reply
    16. Jeff Balbirnie

      Never considered the question before. Not very often that I am aware of

      2 years ago Log in to Reply

    If you could guess, about how many times a year do you miss planned events because of something T1D-related? Cancel reply

    You must be logged in to post a comment.




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