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    • 2 hours, 42 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 13 hours, 25 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 14 hours, 52 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 14 hours, 52 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 14 hours, 52 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 17 hours, 5 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 17 hours, 5 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 17 hours, 6 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 17 hours, 48 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 11 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 21 hours, 8 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 14 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 14 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 14 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 18 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 20 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 21 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 21 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 21 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 21 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
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    If you could guess, about how many times a year do you miss planned events because of something T1D-related?

    Home > LC Polls > If you could guess, about how many times a year do you miss planned events because of something T1D-related?
    Previous

    Many people with T1D also live with attention-deficit hyperactivity disorder (ADHD). Do these conditions affect you or someone you love?

    Next

    Have you given yourself a rapid-acting insulin injection instead of a long-acting one by mistake (or vice versa)? Share how you handled this situation in the comments.

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    16 Comments

    1. rick phillips

      My own damn fault

      2 years ago Log in to Reply
    2. Mick Martin

      I selected “Other”, but that could quite as easily have been “0” as I don’t go out of the house, save for hospital and clinical appointments, and simply can’t afford to make plans to attend anywhere.

      1
      2 years ago Log in to Reply
    3. mojoseje

      I’ve never missed anything but I’ve been late because I won’t drive if my bg is too low.

      5
      2 years ago Log in to Reply
    4. Lawrence S.

      I have missed events (or work projects around the house) mostly because of other health issues, asthma, shoulder pain, celiac disease, back pain. T1D mostly effects home work projects. We don’t go out very often. I said “once or twice.” (Maybe).

      2 years ago Log in to Reply
    5. Anita Stokar

      I put 3-4, but it really varies. Could be 0 or could be 6.

      2
      2 years ago Log in to Reply
    6. Anne Blayney

      I almost never miss events because of urgent T1D situations (blood sugar issues, DKA, etc.) — but I frequently miss events because of diabetes complications (gastroparesis flares in particular). Plus there’s the calculus of risk, especially since the pandemic. When COVID and flu rates are high, how many events do I just not even consider because of that risk? That feels very different than bailing on an event that I planned to attend because of a diabetes emergency, but it still has the net result of me not going to an event.

      3
      2 years ago Log in to Reply
    7. cynthia jaworski

      Really, never ever.

      I have missed events due to pregnancy or flu or family responsibilities.

      2 years ago Log in to Reply
    8. Patricia Dalrymple

      I said 1-2. It’s rare but I won’t do things like tubing or kayaking because I don’t want to get my pump wet (live in FL and most involves salt water). Even in fresh water I wouldn’t risk it.

      2 years ago Log in to Reply
    9. Ahh Life

      Prior to gastroparesis, the first 65 – 70 years of T1D, the answer was zero. But alas and alack, I now am enslaved to a spastic digestive nerve that sits there and contemplates to itself in a complete soliloquy, “Will I or won’t I digest this carb?” And I cannot drive, travel, etc. until the dolting dither-er in chief makes up it’s mind.

      1
      2 years ago Log in to Reply
    10. Dave Akers

      Honestly I never miss an event…unless it’s an event I don’t want to attend, then Inuse T1D as a scapegoat to get out of it! 😳

      Or I use it to get me and kids to front of line at Disney! 😬

      1
      2 years ago Log in to Reply
    11. William Bennett

      If having to bail on an event early due to pump failure counts, then yeah, 1-2 a year maybe. Not often but not never.

      1
      2 years ago Log in to Reply
    12. Mark Schweim

      The way my work life went, I gave up planning to do things decades ago. If I wanted to work overtime, the most reliable way to get the overtime was to plan on doing something or going somewhere on my days off. If I had nothing planned, it was almost guaranteed that I’d have the time off. But without fail, if I had made any plans, it was guaranteed that work would require me to work the entire time of whatever I had planned to attend.

      2 years ago Log in to Reply
    13. mbulzomi@optonline.net

      Never is self-explanatory.

      2 years ago Log in to Reply
    14. ConnieT1D62

      Rarely. That should have been an option.

      2 years ago Log in to Reply
    15. Kelly Wilhelm

      The only thing I’ve missed have been 2 workouts when I woke up much lower than planned and was not able to rebound in time to go do a hard work workout. But generally speaking, it’s not an issue.

      2 years ago Log in to Reply
    16. Jeff Balbirnie

      Never considered the question before. Not very often that I am aware of

      2 years ago Log in to Reply

    If you could guess, about how many times a year do you miss planned events because of something T1D-related? Cancel reply

    You must be logged in to post a comment.




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