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    • 10 hours, 42 minutes ago
      Dennis Dacey likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 17 hours, 43 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 17 hours, 43 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 17 hours, 54 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 17 hours, 54 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 18 hours, 2 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 18 hours, 15 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 18 hours, 50 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 18 hours, 51 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 18 hours, 51 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 22 hours ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 1 day, 11 hours ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 12 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 day, 12 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 day, 12 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 1 day, 15 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 15 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 15 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 day, 15 hours ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 17 hours ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 19 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 2 days, 10 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 2 days, 10 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 2 days, 10 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    How much have you spent (deductible, copay, out-of-pocket) on all of your diabetes supplies in the past three months?

    Home > LC Polls > How much have you spent (deductible, copay, out-of-pocket) on all of your diabetes supplies in the past three months?
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    Did you change, add or start any new diabetes related devices to your T1D care in the past year?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    14 Comments

    1. Justin

      This year (2023) in MA the insurance companies put CGMs and regular supplies behind the deductible. Next year, they include CGMs free of charge with the other blood glucose monitors, but the other regular supplies, e.g. test strips, etc are still behind the deductible. It makes for an expense start of the year unless you upgrade to a Gold plan with no deductible.

      2 years ago Log in to Reply
    2. Gary Rind

      none since I hit my OOP max due to a non-T1D related operation in March. it’s nice to have to pay for scrips!

      2 years ago Log in to Reply
    3. Annie Wall

      I paid $0 since I paid my Medicare Part B deductible in the first quarter of the year. I do buy glucose gummies during the year but I don’t track how much I spend.

      This will change in 2024 because I have switched to a Medicare Advantage plan where I pay no premium, compared to the $3500 I would have paid for my supplemental. The savings will be considerable even though we’ll have more out-of-pocket costs.

      2 years ago Log in to Reply
    4. mlettinga

      As its end of year its $0 but my deductible was $7200 this year and I almost always meet it within first 3-4 months at beginning of year.

      2 years ago Log in to Reply
    5. Megan S

      I maxed my insurance out of pocket more than 3 months ago so I’ve had zero cost supplies and prescriptions and appointments.

      1
      2 years ago Log in to Reply
    6. Jane Cerullo

      $210 for insulin
      $60 copay on InPen
      $30 for insulin needles

      2 years ago Log in to Reply
    7. Edward Geary

      Again, supplies are fairly modest. Copays and co-insurance costs were approximately $2,500.00.

      1
      2 years ago Log in to Reply
    8. KIMBERELY SMITH

      20.00

      2 years ago Log in to Reply
    9. Mick Martin

      $0. I live in the UK (United Kingdom of Great Britain and Northern Ireland) where ALL of my diabetes supplies are paid for by our NHS (National Health Service), which is financed via direct taxation of all working people that earn more than a given amount.

      1
      2 years ago Log in to Reply
      1. ELYSSE HELLER

        I wish that the USA would have a national health care system, but alas, we do not because BIG PHARMA lobies against such “socialism”. Healthcare is a right, not a privalige. Opponents of medicare for all in the USA also argue that “patients will have to wait too long to be able to see a provider”. Well, people in my country are always having trouble getting an appointment that is not 4 or so months away. I stayed in the UK for two years many years ago and was so very envious of the healthcare system over there. I hope that one day people in my country will wake up and stop being so scared of democratic socialism.

        1
        2 years ago Log in to Reply
      2. Mick Martin

        @ELYSSE HELLER. I appreciate what you say, ma’am, but I’m not so sure about Healthcare being a right, rather than a privilege. During my time in the Military, I’ve served in countries where the very basics, such as having clean water, sanitation, etc. are not even considered a “right”. After all, someone has to pay … in one way or another.

        I am aware of how SOME people in the United States view your Healthcare system as I’ve lost internet ‘friends’ over the years, with a few of them not being able to afford insulin. I’m also aware that SOME people would argue about paying for something, such as in the Healthcare system we have in the UK, and getting nothing in return.

        I agree that BIG PHARMA controls a lot of what decisions are made in respective Governments. This is why the British Government will not pay for certain drugs and/or treatments, which results in people having to “beg” for assistance to raise funds to travel to countries, such as the United States, where these medications and/or treatments are available.

        Politicians over here ‘harp on’ about how our NHS (National Health Service) is the envy of the world. I suppose that, in some respects, that is true, but not in all ways. (Some of the racist critics over here ‘waffle on’ about how people come to the UK specifically to use the NHS, knowing full well that they’ll never be ‘tracked down’ to pay for what they receive.)

        I’m afraid that I don’t have ‘the answers’ that would ensure everyone has access to free medical care and attention. To me, that’s what we elect Members of Parliament for. Sadly, since the NHS was introduced in 1948, not many Politicians have seen fit to continue with the initial concept of ‘free at the point of use medical care to the whole population’. SOME people over here go along with taking out alternative insurance that pays for medical treatment and/or faster appointment times to see doctors/nurses/physiotherapists, etc. etc.

        2 years ago Log in to Reply
    10. Bonnie Lundblom

      My Medicare plan F cost is over $250/month but thankfully it covers everything related to my T1D expenses.

      2 years ago Log in to Reply
    11. mbulzomi@optonline.net

      Not much, just a couple of Bucks on Alcohol Pads and I.V. Prep pads.

      2 years ago Log in to Reply
    12. T1D4LongTime

      (I did not answer the question for the 3 months, but rather the last 3 months in which I reached my out of pocket). I’m fortunate that I have excellent private insurance. I have a $300 deductible and $1000 out-of-pocket, so $1300 for the year.

      2 years ago Log in to Reply

    How much have you spent (deductible, copay, out-of-pocket) on all of your diabetes supplies in the past three months? Cancel reply

    You must be logged in to post a comment.




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