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    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 11 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 13 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 19 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 20 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 13 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    How much have you spent (deductible, copay, out-of-pocket) on all of your diabetes supplies in the past three months?

    Home > LC Polls > How much have you spent (deductible, copay, out-of-pocket) on all of your diabetes supplies in the past three months?
    Previous

    Does your diabetes care provider discuss/bring up goals from a previous discussion/visit?

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    Did you change, add or start any new diabetes related devices to your T1D care in the past year?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    14 Comments

    1. Justin

      This year (2023) in MA the insurance companies put CGMs and regular supplies behind the deductible. Next year, they include CGMs free of charge with the other blood glucose monitors, but the other regular supplies, e.g. test strips, etc are still behind the deductible. It makes for an expense start of the year unless you upgrade to a Gold plan with no deductible.

      2 years ago Log in to Reply
    2. Gary Rind

      none since I hit my OOP max due to a non-T1D related operation in March. it’s nice to have to pay for scrips!

      2 years ago Log in to Reply
    3. Annie Wall

      I paid $0 since I paid my Medicare Part B deductible in the first quarter of the year. I do buy glucose gummies during the year but I don’t track how much I spend.

      This will change in 2024 because I have switched to a Medicare Advantage plan where I pay no premium, compared to the $3500 I would have paid for my supplemental. The savings will be considerable even though we’ll have more out-of-pocket costs.

      2 years ago Log in to Reply
    4. mlettinga

      As its end of year its $0 but my deductible was $7200 this year and I almost always meet it within first 3-4 months at beginning of year.

      2 years ago Log in to Reply
    5. Megan S

      I maxed my insurance out of pocket more than 3 months ago so I’ve had zero cost supplies and prescriptions and appointments.

      1
      2 years ago Log in to Reply
    6. Jane Cerullo

      $210 for insulin
      $60 copay on InPen
      $30 for insulin needles

      2 years ago Log in to Reply
    7. Edward Geary

      Again, supplies are fairly modest. Copays and co-insurance costs were approximately $2,500.00.

      1
      2 years ago Log in to Reply
    8. KIMBERELY SMITH

      20.00

      2 years ago Log in to Reply
    9. Mick Martin

      $0. I live in the UK (United Kingdom of Great Britain and Northern Ireland) where ALL of my diabetes supplies are paid for by our NHS (National Health Service), which is financed via direct taxation of all working people that earn more than a given amount.

      1
      2 years ago Log in to Reply
      1. ELYSSE HELLER

        I wish that the USA would have a national health care system, but alas, we do not because BIG PHARMA lobies against such “socialism”. Healthcare is a right, not a privalige. Opponents of medicare for all in the USA also argue that “patients will have to wait too long to be able to see a provider”. Well, people in my country are always having trouble getting an appointment that is not 4 or so months away. I stayed in the UK for two years many years ago and was so very envious of the healthcare system over there. I hope that one day people in my country will wake up and stop being so scared of democratic socialism.

        1
        2 years ago Log in to Reply
      2. Mick Martin

        @ELYSSE HELLER. I appreciate what you say, ma’am, but I’m not so sure about Healthcare being a right, rather than a privilege. During my time in the Military, I’ve served in countries where the very basics, such as having clean water, sanitation, etc. are not even considered a “right”. After all, someone has to pay … in one way or another.

        I am aware of how SOME people in the United States view your Healthcare system as I’ve lost internet ‘friends’ over the years, with a few of them not being able to afford insulin. I’m also aware that SOME people would argue about paying for something, such as in the Healthcare system we have in the UK, and getting nothing in return.

        I agree that BIG PHARMA controls a lot of what decisions are made in respective Governments. This is why the British Government will not pay for certain drugs and/or treatments, which results in people having to “beg” for assistance to raise funds to travel to countries, such as the United States, where these medications and/or treatments are available.

        Politicians over here ‘harp on’ about how our NHS (National Health Service) is the envy of the world. I suppose that, in some respects, that is true, but not in all ways. (Some of the racist critics over here ‘waffle on’ about how people come to the UK specifically to use the NHS, knowing full well that they’ll never be ‘tracked down’ to pay for what they receive.)

        I’m afraid that I don’t have ‘the answers’ that would ensure everyone has access to free medical care and attention. To me, that’s what we elect Members of Parliament for. Sadly, since the NHS was introduced in 1948, not many Politicians have seen fit to continue with the initial concept of ‘free at the point of use medical care to the whole population’. SOME people over here go along with taking out alternative insurance that pays for medical treatment and/or faster appointment times to see doctors/nurses/physiotherapists, etc. etc.

        2 years ago Log in to Reply
    10. Bonnie Lundblom

      My Medicare plan F cost is over $250/month but thankfully it covers everything related to my T1D expenses.

      2 years ago Log in to Reply
    11. mbulzomi@optonline.net

      Not much, just a couple of Bucks on Alcohol Pads and I.V. Prep pads.

      2 years ago Log in to Reply
    12. T1D4LongTime

      (I did not answer the question for the 3 months, but rather the last 3 months in which I reached my out of pocket). I’m fortunate that I have excellent private insurance. I have a $300 deductible and $1000 out-of-pocket, so $1300 for the year.

      2 years ago Log in to Reply

    How much have you spent (deductible, copay, out-of-pocket) on all of your diabetes supplies in the past three months? Cancel reply

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