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    • 5 hours, 20 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 5 hours, 20 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 6 hours, 36 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 6 hours, 36 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 6 hours, 36 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 6 hours, 37 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 6 hours, 38 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 6 hours, 39 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 6 hours, 39 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 6 hours, 39 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 8 hours, 41 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 9 hours, 19 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 9 hours, 19 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 10 hours, 2 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 10 hours, 24 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 10 hours, 48 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 10 hours, 48 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 10 hours, 49 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 11 hours, 4 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 12 hours, 4 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 12 hours, 5 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 3 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day, 3 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day, 3 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 8 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    How much have you spent (deductible, copay, out-of-pocket) on all of your diabetes supplies in the past three months?

    Home > LC Polls > How much have you spent (deductible, copay, out-of-pocket) on all of your diabetes supplies in the past three months?
    Previous

    Does your diabetes care provider discuss/bring up goals from a previous discussion/visit?

    Next

    Did you change, add or start any new diabetes related devices to your T1D care in the past year?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    14 Comments

    1. Justin

      This year (2023) in MA the insurance companies put CGMs and regular supplies behind the deductible. Next year, they include CGMs free of charge with the other blood glucose monitors, but the other regular supplies, e.g. test strips, etc are still behind the deductible. It makes for an expense start of the year unless you upgrade to a Gold plan with no deductible.

      2 years ago Log in to Reply
    2. Gary Rind

      none since I hit my OOP max due to a non-T1D related operation in March. it’s nice to have to pay for scrips!

      2 years ago Log in to Reply
    3. Annie Wall

      I paid $0 since I paid my Medicare Part B deductible in the first quarter of the year. I do buy glucose gummies during the year but I don’t track how much I spend.

      This will change in 2024 because I have switched to a Medicare Advantage plan where I pay no premium, compared to the $3500 I would have paid for my supplemental. The savings will be considerable even though we’ll have more out-of-pocket costs.

      2 years ago Log in to Reply
    4. mlettinga

      As its end of year its $0 but my deductible was $7200 this year and I almost always meet it within first 3-4 months at beginning of year.

      2 years ago Log in to Reply
    5. Megan S

      I maxed my insurance out of pocket more than 3 months ago so I’ve had zero cost supplies and prescriptions and appointments.

      1
      2 years ago Log in to Reply
    6. Jane Cerullo

      $210 for insulin
      $60 copay on InPen
      $30 for insulin needles

      2 years ago Log in to Reply
    7. Edward Geary

      Again, supplies are fairly modest. Copays and co-insurance costs were approximately $2,500.00.

      1
      2 years ago Log in to Reply
    8. KIMBERELY SMITH

      20.00

      2 years ago Log in to Reply
    9. Mick Martin

      $0. I live in the UK (United Kingdom of Great Britain and Northern Ireland) where ALL of my diabetes supplies are paid for by our NHS (National Health Service), which is financed via direct taxation of all working people that earn more than a given amount.

      1
      2 years ago Log in to Reply
      1. ELYSSE HELLER

        I wish that the USA would have a national health care system, but alas, we do not because BIG PHARMA lobies against such “socialism”. Healthcare is a right, not a privalige. Opponents of medicare for all in the USA also argue that “patients will have to wait too long to be able to see a provider”. Well, people in my country are always having trouble getting an appointment that is not 4 or so months away. I stayed in the UK for two years many years ago and was so very envious of the healthcare system over there. I hope that one day people in my country will wake up and stop being so scared of democratic socialism.

        1
        2 years ago Log in to Reply
      2. Mick Martin

        @ELYSSE HELLER. I appreciate what you say, ma’am, but I’m not so sure about Healthcare being a right, rather than a privilege. During my time in the Military, I’ve served in countries where the very basics, such as having clean water, sanitation, etc. are not even considered a “right”. After all, someone has to pay … in one way or another.

        I am aware of how SOME people in the United States view your Healthcare system as I’ve lost internet ‘friends’ over the years, with a few of them not being able to afford insulin. I’m also aware that SOME people would argue about paying for something, such as in the Healthcare system we have in the UK, and getting nothing in return.

        I agree that BIG PHARMA controls a lot of what decisions are made in respective Governments. This is why the British Government will not pay for certain drugs and/or treatments, which results in people having to “beg” for assistance to raise funds to travel to countries, such as the United States, where these medications and/or treatments are available.

        Politicians over here ‘harp on’ about how our NHS (National Health Service) is the envy of the world. I suppose that, in some respects, that is true, but not in all ways. (Some of the racist critics over here ‘waffle on’ about how people come to the UK specifically to use the NHS, knowing full well that they’ll never be ‘tracked down’ to pay for what they receive.)

        I’m afraid that I don’t have ‘the answers’ that would ensure everyone has access to free medical care and attention. To me, that’s what we elect Members of Parliament for. Sadly, since the NHS was introduced in 1948, not many Politicians have seen fit to continue with the initial concept of ‘free at the point of use medical care to the whole population’. SOME people over here go along with taking out alternative insurance that pays for medical treatment and/or faster appointment times to see doctors/nurses/physiotherapists, etc. etc.

        2 years ago Log in to Reply
    10. Bonnie Lundblom

      My Medicare plan F cost is over $250/month but thankfully it covers everything related to my T1D expenses.

      2 years ago Log in to Reply
    11. mbulzomi@optonline.net

      Not much, just a couple of Bucks on Alcohol Pads and I.V. Prep pads.

      2 years ago Log in to Reply
    12. T1D4LongTime

      (I did not answer the question for the 3 months, but rather the last 3 months in which I reached my out of pocket). I’m fortunate that I have excellent private insurance. I have a $300 deductible and $1000 out-of-pocket, so $1300 for the year.

      2 years ago Log in to Reply

    How much have you spent (deductible, copay, out-of-pocket) on all of your diabetes supplies in the past three months? Cancel reply

    You must be logged in to post a comment.




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