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    • 1 hour, 46 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. πŸ“„πŸ–οΈo(≧o≦)o🧸
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really β€œearlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 13 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 15 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. πŸ“„πŸ–οΈo(≧o≦)o🧸
    • 1 day, 19 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. πŸ“„πŸ–οΈo(≧o≦)o🧸
    • 1 day, 20 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 21 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it β€” I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. πŸ„πŸ¦‹
    • 1 day, 22 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. πŸ“„πŸ–οΈo(≧o≦)o🧸
    • 1 day, 22 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. πŸ“„πŸ–οΈo(≧o≦)o🧸
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it β€” I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 15 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 16 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 19 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. πŸ„πŸ¦‹
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    How many appointments did you have in 2020 with your main diabetes healthcare provider?

    Home > LC Polls > How many appointments did you have in 2020 with your main diabetes healthcare provider?
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    For CGM users: How long have you had a CGM?

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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    15 Comments

    1. Britni Steingard

      I normally have 4/yr, but I started using a pump in February, so I’ve had at least twice that this year.

      5 years ago Log in to Reply
    2. Amanda Barras

      I only have 1x appt a year, each year. The only difference this year was it was a telemedicine appt instead of in person. Still had to go and get labs drawn at office a few days before tho.

      5 years ago Log in to Reply
    3. Mig Vascos

      For Medicare to cover my pump supplies, sensors and insulin, I’m required to see my endocrinologist every 3 months.

      5 years ago Log in to Reply
    4. Sherolyn Newell

      My doctor always says come back in three months, but usually it’s 4 months before she has an appointment open. That makes it 3 a year instead of 4.

      5 years ago Log in to Reply
    5. Stang777

      For the last 5 years or so, I have only been seeing my doc one time a year and this year was no different in that regard, but it was done as a video appointment instead of in person. I do go in twice a year for an A1c though and this year I only went in once, which was before the pandemic began. We skipped the one in I should have had in July and neither my doc or I cared about that at all. Both my doc and I are pretty sure we already know what my approximate A1c is as it has been very consistent all along, and I test often enough to know that there really would not have been much of a change.

      5 years ago Log in to Reply
    6. Jim Rogers

      I go 3 times a year as per my endocrinologist but after 37 years I kind of got it down now 😊

      5 years ago Log in to Reply
    7. Jana Foley

      I see my endo every three months. This year the last three visits have been telemedicine appointments. I would prefer them to be in person, but that’s not what they are doing right now. I still go in for labs prior to my appointments.

      5 years ago Log in to Reply
    8. John P McLaughlin

      I answered 5 times. Medicare requires a visit within 90 days in order to get supplies. Too much to manage, so I go every 10 weeks vs 12 weeks. All of those this year have been tele-med. Have A Sparkling Day! John P McLaughlin Sr

      5 years ago Log in to Reply
    9. Tim Lors

      For years I have been seeing my doc once a year to get lab work done and my prescriptions refilled. I will be going on Medicare soon, and don’t look forward to more frequent visits as they seem a waste of time & expense for someone whose TIR is 90%.

      5 years ago Log in to Reply
    10. Clare Fishman

      I have had 2 “visits” with my endo this year. 1 in person in early March and 1 via Telehealth in September. With Loop handling most of the insulin dosing decisions, basically the appointments are to make sure the prescriptions are written.

      5 years ago Log in to Reply
    11. Donna Condi

      I saw my endo twice and his NP the other two times.

      5 years ago Log in to Reply
    12. ANN GALLUZZO

      I went the 4 times per year required by Medicare for Type 1 diabetics on pumps.

      5 years ago Log in to Reply
    13. Bekki Weston

      Two, per usual, both in person. I’m not on Medicare yet, but looking to sign up in 2021. I’m curious, for all those on Medicare, who say they have to go every 3 months: is that because you only have Medicare? Or even if you have a Supplemental Insurance, do you still have to go every 3 months? Thanks for your input.

      5 years ago Log in to Reply
    14. Cheryl Seibert

      For decades, I saw my endo every 4 months (if I was doing well) and every 3 months if not. Now, as he approaches retirement and the number of diabetics are increasing, I see him every 4-6 months. He’s my lifeline.

      5 years ago Log in to Reply
    15. Ahh Life

      Four. All tele-medicine. Saves hours and hours of city traffic. The medicare requirement for every 90 days? Their committee of physicians and advisors recommends this, even though my secondary insurance does not. And many of us experienced veterans (long timers) find it risible at times. πŸ€·πŸ»β€β™‚β€ πŸ€·πŸ»β€β™‚β€ πŸ€·πŸ»β€β™‚β€

      5 years ago Log in to Reply

    How many appointments did you have in 2020 with your main diabetes healthcare provider? Cancel reply

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