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    • 31 seconds ago
      Robin Melen likes your comment at
      How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
      Been at this for 40 years now. Not much a CDE can teach me at this point. More the reverse, actually.
    • 17 minutes ago
      MT likes your comment at
      How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
      After 20+ years as a Type I, my appointments are with my endo, where I end up educating him on the latest research. Most endo's patient population is almost exclusively Type 2 and are not as plugged into Type 1
    • 29 minutes ago
      Mick Martin likes your comment at
      How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
      7 video calls in preparation for going onto a closed loop system
    • 30 minutes ago
      Mick Martin likes your comment at
      How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
      I really like my educator. She keeps me up-to-date on all of the new tech and helps communicate with the vendors and figure out insurance stuff. It's a nice morale boast too; we review Dexcom data and talk about specific highs or lows and different techniques to try. I see my doctor every 6 months and my educator every 6 months, but we're on a schedule so I see one of the two every quarter.
    • 31 minutes ago
      Mick Martin likes your comment at
      How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
      My Diabetes Care Specialist is also a Nutritionist. I have found her advice and support vital to mastering T1 since my diagnosis 2 years ago
    • 1 hour, 6 minutes ago
      Ahh Life likes your comment at
      How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
      After 20+ years as a Type I, my appointments are with my endo, where I end up educating him on the latest research. Most endo's patient population is almost exclusively Type 2 and are not as plugged into Type 1
    • 1 hour, 18 minutes ago
      Samantha Walsh likes your comment at
      In honor of GivingTuesday, what are your favorite ways of giving to organizations you support? Select all that apply.
      Correction: Service to others is the rent you pay for your time on earth."
    • 1 hour, 42 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
    • 1 hour, 42 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my diabetologist every 90 days to continue receiving pump and CGM supplies.
    • 1 hour, 43 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      This past year my doctor appts were my new social life!
    • 1 hour, 43 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Schush! I know it's supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I'm happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.
    • 1 hour, 44 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      I would prefer to see my endo twice a year. But insurance requires a visit once every 90 days to obtain an insulin pump and CGM, which is completely illogical. Insulin pump allows for better control soo....
    • 1 hour, 44 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
    • 1 hour, 44 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      I saw my endocrine provider 6 times this year instead of the usual four because I was having pump insertion site absorption issues so she saw me two extra times for problem solving resolution.
    • 12 hours, 57 minutes ago
      Kris Sykes-David likes your comment at
      If you’ve ever used a connected insulin pen (also known as a “smart pen”), what was your experience like? Tell us more in the comments! A “smart pen” connected insulin pens can offer extra technology with the simplicity of injections, like tracking the timing and dose of insulin, tracking insulin-on-board, and calculating insulin doses based on carbohydrate entries.
      It helped me track when and how much insulin I had injected. It also would show me how much I had on board so if I needed to take additional insulin it would help me not to stack too much at a time.
    • 12 hours, 57 minutes ago
      Kris Sykes-David likes your comment at
      If you’ve ever used a connected insulin pen (also known as a “smart pen”), what was your experience like? Tell us more in the comments! A “smart pen” connected insulin pens can offer extra technology with the simplicity of injections, like tracking the timing and dose of insulin, tracking insulin-on-board, and calculating insulin doses based on carbohydrate entries.
      I love it! Can't live without one.
    • 19 hours, 45 minutes ago
      TEH likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
    • 19 hours, 45 minutes ago
      TEH likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      I would prefer to see my endo twice a year. But insurance requires a visit once every 90 days to obtain an insulin pump and CGM, which is completely illogical. Insulin pump allows for better control soo....
    • 1 day, 10 hours ago
      Janis Senungetuk likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      In July, I went on the only Medicare plan in my area that covered Afrezza. For 2024, no one is covering it. Like others, hate these formulary decisions by the Insurance providers.
    • 1 day, 18 hours ago
      Ahh Life likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Schush! I know it's supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I'm happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.
    • 1 day, 18 hours ago
      Bekki Weston likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.
    • 1 day, 18 hours ago
      Bekki Weston likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I answered NO for 2023 but in 2024 I will have to switch from Humalog to Novolog.
    • 1 day, 19 hours ago
      Bill Williams likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
    • 1 day, 20 hours ago
      Kristi Warmecke likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      With Medicare's change to the cost of insulin, my Part D plan dropped Novolog. $35 "limit" only works if insurers have your medication on their formulary.
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    How do you advocate for your diabetes goals/priorities with your care team?

    Home > LC Polls > How do you advocate for your diabetes goals/priorities with your care team?
    Previous

    Does your diabetes care provider discuss/bring up goals from a previous discussion/visit?

    Next

    Does your health care provider ask you if YOUR overall diabetes goals/priorities are aligned with your life goals during your visit or before the visit in prep?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    17 Comments

    1. Lawrence S.

      I said “Other”.
      Most times, I’m content to go to visits and review my blood test results, get my scripts renewed, and I’m on my way.
      Occasionally, if there are concerns or symptoms that I want to discuss I will bring them up during the visit. Sometimes, I write them down ahead of time if there are a few issues, or if it will be a while before my visit, and I don’t want to forget about the issue.

      9
      1 year ago Log in to Reply
    2. Gary Taylor

      I answered “other”. I have two primary goals: A1c under 7% (preferably 6.5%) and TIR of 80% or more. I mention those goals occasionally but not at every appointment. I assume that my diabetes care providers understand this and don’t need to be reminded every time.

      1
      1 year ago Log in to Reply
    3. MARIE

      I said other because it’s changed over time. In the beginning when it was all new, we were soaking up info and we presented lots of questions and our own goals.
      We got what we could from the doctors, educators, dieticians, etc. in terms of information and technology. But we quickly learned that many of the medical professionals would not share what they considered to be our aggressive goals and would actually criticize an A1c of 6.0 for being “too low”, so we just moved into ‘smile and nod’ mode. We try to speak as little possible about diabetes at non-endocrinology appointments. We don’t really have to ‘advocate’ with the endocrinologist as she knows our priorities and while she does not entirely endorse our approach, she does support us.

      4
      1 year ago Log in to Reply
    4. cynthia jaworski

      Again talking about goals. My goal, obviously, is to be as healthy as I can be.

      1 year ago Log in to Reply
    5. T1D4LongTime

      I always have a list of priorities and goals ready for my endo to review. This question should have been “Select all that apply”. I also email or call the office as well as listen to my endo’s recommendations as I may have missed an important management goal.

      2
      1 year ago Log in to Reply
    6. Tod Herman

      I keep a list in my phone of issues or questions that I want to discuss with my endo. I see her quarterly. I also keep track of my test results and A1C in that same list.

      Sometimes I don’t have any specific issues. The basic goals are simply to keep things in check and avoid the lows. My endo is fantastic and she lets me be human and “live a little” to enjoy life. I really can’t ask for anything more.

      1
      1 year ago Log in to Reply
    7. Sue Martin

      Goals? My care team only talks about keeping my BG lower. It seems they only really review the last couple of weeks of my data. No one has ever talked about long-term goals.

      4
      1 year ago Log in to Reply
    8. Milly Bassett

      I have a great Endo that allows me to text him when I have a concern with how my body is reacting to different things. Or when I have unusual low blood sugars or high blood sugars. We try to sort it out and sometimes we can fix it and sometimes we can’t. It’s a guessing game either way. But at least he’s there to to read my concerns and responds.

      1 year ago Log in to Reply
    9. Jordan Harshman

      I was looking for the response option “While I know my support team is there for me, I am primarily independent in setting goals and managing priorities.” I get my labs and am interested to hear from my endo about the latest science and tech, but otherwise set my own goals.

      5
      1 year ago Log in to Reply
    10. kristina blake

      I upload – via T-Connect – my pump and CGM data everyh month WHen it is time for a phone appt (I prefer those) the Endo “pulls” up the data and we can talk about whatever I often have to defend my aggressive T1D mgt, reminding them that I believe I deserve the “good labs and TIR” I remind them that I am smart, I’ve been doing this for over 40 years, and I am both willing and able to do the work it entails. Thanks goodness for the T-Connect reports, they “prove” that my A1C isn’t the result of very high bg’s offset by very low bg’s. Sometimes I feel like opening the conversations with “Oh, ye of little faith…”

      3
      1 year ago Log in to Reply
    11. Amanda Barras

      I both attend appts and try to remember my priorities or I email. If I forget to ask something at an appt I email later.

      1
      1 year ago Log in to Reply
    12. AnitaS

      I never really think of short or long term goals. I go to my appointments with a list of questions or ideas that I want to discuss with my diabetes P.A.

      1
      1 year ago Log in to Reply
    13. Eva

      I have a short list of question time I visit my endo.

      #1 – How do I stay my healthiest and fittest?
      #2 – How do I need to modify my diet and/or insulin/carb ratio to achieve my BG goals during exercise like tennis, running, or weight lifting.
      #3 – What additional tests can help me understand how my system (my body) is doing and what I can do better.

      1 year ago Log in to Reply
    14. KCR

      My goal is simply to live a healthy life with this disease. For me, this depends more on mental health practices (such as meditation and self-compassion) than diabetes goals specifically.

      2
      1 year ago Log in to Reply
    15. Wanacure

      I used to use website portal to send & receive emails. But right now having trouble accessing.

      1 year ago Log in to Reply
    16. Amy Schneider

      I don’t feel insurance allows my care team to spend the time I might want to go over goals/priorities.

      2
      1 year ago Log in to Reply
    17. Jennifer Edmiston

      I come to my visits with a list of items and also communicate with my team between visits. By doing both, I am able to stay on top of my goals and keep myself on track.

      1 year ago Log in to Reply

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