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    • 5 hours, 42 minutes ago
      AnitaS likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Only "illness" that makes it really difficult to control my blood sugar is getting steroid injections into my cervical spine or fingers. I leave my basal rate on my pump at 250% and need much higher bolus doses and many "extra" doses if my blood sugar remains really high. I tell the MD's that it turns my insulin into tap water and try to avoid it, experience with having gotten these injections over the past few years has helped, but having blood sugars of 400-500 despite much higher basal and bolus dosing is so frustrating!
    • 5 hours, 43 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 43 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 43 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 43 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 43 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 43 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 43 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 43 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 43 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 43 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 43 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 43 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 43 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 43 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 43 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 43 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 43 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 43 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 43 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 5 hours, 43 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
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      Randell Cole has commented in the same post you commented in :
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    • 6 hours, 49 minutes ago
      Randell Cole has commented in the same post you commented in :
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      Randell Cole has commented in the same post you commented in :
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    How do you advocate for your diabetes goals/priorities with your care team?

    Home > LC Polls > How do you advocate for your diabetes goals/priorities with your care team?
    Previous

    Does your diabetes care provider discuss/bring up goals from a previous discussion/visit?

    Next

    Does your health care provider ask you if YOUR overall diabetes goals/priorities are aligned with your life goals during your visit or before the visit in prep?

    Samantha Robinson

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    17 Comments

    1. Lawrence S.

      I said “Other”.
      Most times, I’m content to go to visits and review my blood test results, get my scripts renewed, and I’m on my way.
      Occasionally, if there are concerns or symptoms that I want to discuss I will bring them up during the visit. Sometimes, I write them down ahead of time if there are a few issues, or if it will be a while before my visit, and I don’t want to forget about the issue.

      9
      4 months ago Log in to Reply
    2. Gary Taylor

      I answered “other”. I have two primary goals: A1c under 7% (preferably 6.5%) and TIR of 80% or more. I mention those goals occasionally but not at every appointment. I assume that my diabetes care providers understand this and don’t need to be reminded every time.

      1
      4 months ago Log in to Reply
    3. MARIE

      I said other because it’s changed over time. In the beginning when it was all new, we were soaking up info and we presented lots of questions and our own goals.
      We got what we could from the doctors, educators, dieticians, etc. in terms of information and technology. But we quickly learned that many of the medical professionals would not share what they considered to be our aggressive goals and would actually criticize an A1c of 6.0 for being “too low”, so we just moved into ‘smile and nod’ mode. We try to speak as little possible about diabetes at non-endocrinology appointments. We don’t really have to ‘advocate’ with the endocrinologist as she knows our priorities and while she does not entirely endorse our approach, she does support us.

      4
      4 months ago Log in to Reply
    4. cynthia jaworski

      Again talking about goals. My goal, obviously, is to be as healthy as I can be.

      4 months ago Log in to Reply
    5. T1D4LongTime

      I always have a list of priorities and goals ready for my endo to review. This question should have been “Select all that apply”. I also email or call the office as well as listen to my endo’s recommendations as I may have missed an important management goal.

      2
      4 months ago Log in to Reply
    6. Tod Herman

      I keep a list in my phone of issues or questions that I want to discuss with my endo. I see her quarterly. I also keep track of my test results and A1C in that same list.

      Sometimes I don’t have any specific issues. The basic goals are simply to keep things in check and avoid the lows. My endo is fantastic and she lets me be human and “live a little” to enjoy life. I really can’t ask for anything more.

      1
      4 months ago Log in to Reply
    7. Sue Martin

      Goals? My care team only talks about keeping my BG lower. It seems they only really review the last couple of weeks of my data. No one has ever talked about long-term goals.

      4
      4 months ago Log in to Reply
    8. Milly Bassett

      I have a great Endo that allows me to text him when I have a concern with how my body is reacting to different things. Or when I have unusual low blood sugars or high blood sugars. We try to sort it out and sometimes we can fix it and sometimes we can’t. It’s a guessing game either way. But at least he’s there to to read my concerns and responds.

      4 months ago Log in to Reply
    9. Jordan Harshman

      I was looking for the response option “While I know my support team is there for me, I am primarily independent in setting goals and managing priorities.” I get my labs and am interested to hear from my endo about the latest science and tech, but otherwise set my own goals.

      5
      4 months ago Log in to Reply
    10. kristina blake

      I upload – via T-Connect – my pump and CGM data everyh month WHen it is time for a phone appt (I prefer those) the Endo “pulls” up the data and we can talk about whatever I often have to defend my aggressive T1D mgt, reminding them that I believe I deserve the “good labs and TIR” I remind them that I am smart, I’ve been doing this for over 40 years, and I am both willing and able to do the work it entails. Thanks goodness for the T-Connect reports, they “prove” that my A1C isn’t the result of very high bg’s offset by very low bg’s. Sometimes I feel like opening the conversations with “Oh, ye of little faith…”

      3
      4 months ago Log in to Reply
    11. Amanda Barras

      I both attend appts and try to remember my priorities or I email. If I forget to ask something at an appt I email later.

      1
      4 months ago Log in to Reply
    12. AnitaS

      I never really think of short or long term goals. I go to my appointments with a list of questions or ideas that I want to discuss with my diabetes P.A.

      1
      4 months ago Log in to Reply
    13. Eva

      I have a short list of question time I visit my endo.

      #1 – How do I stay my healthiest and fittest?
      #2 – How do I need to modify my diet and/or insulin/carb ratio to achieve my BG goals during exercise like tennis, running, or weight lifting.
      #3 – What additional tests can help me understand how my system (my body) is doing and what I can do better.

      4 months ago Log in to Reply
    14. KCR

      My goal is simply to live a healthy life with this disease. For me, this depends more on mental health practices (such as meditation and self-compassion) than diabetes goals specifically.

      2
      4 months ago Log in to Reply
    15. Wanacure

      I used to use website portal to send & receive emails. But right now having trouble accessing.

      4 months ago Log in to Reply
    16. Amy Schneider

      I don’t feel insurance allows my care team to spend the time I might want to go over goals/priorities.

      2
      4 months ago Log in to Reply
    17. Jennifer Edmiston

      I come to my visits with a list of items and also communicate with my team between visits. By doing both, I am able to stay on top of my goals and keep myself on track.

      3 months ago Log in to Reply

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