Have you (or your child) ever treated T1D using any therapies other than insulin delivered through injections or an insulin pump? For example, inhalable insulin, type 2 diabetes drugs, etc. Tell us about your experience in the comments!

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- 5 minutes ago
  
  Lawrence S. likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
- 6 minutes ago
  
  Lawrence S. likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  Medicare requires me to see my diabetologist every 90 days to continue receiving pump and CGM supplies.
- 6 minutes ago
  
  Lawrence S. likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  This past year my doctor appts were my new social life!
- 6 minutes ago
  
  Lawrence S. likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  @George Lovelace. {{{{{Hugs}}}}} to you, sir. Are you getting support after the loss of your wife? I do hope so.
- 7 minutes ago
  
  Lawrence S. likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  Schush! I know it's supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I'm happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.
- 7 minutes ago
  
  Lawrence S. likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  I would prefer to see my endo twice a year. But insurance requires a visit once every 90 days to obtain an insulin pump and CGM, which is completely illogical. Insulin pump allows for better control soo....
- 8 minutes ago
  
  Lawrence S. likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
- 8 minutes ago
  
  Lawrence S. likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  I saw my endocrine provider 6 times this year instead of the usual four because I was having pump insertion site absorption issues so she saw me two extra times for problem solving resolution.
- 11 hours, 20 minutes ago
  
  Kris Sykes-David likes your comment at
  If you’ve ever used a connected insulin pen (also known as a “smart pen”), what was your experience like? Tell us more in the comments! A “smart pen” connected insulin pens can offer extra technology with the simplicity of injections, like tracking the timing and dose of insulin, tracking insulin-on-board, and calculating insulin doses based on carbohydrate entries.
  It helped me track when and how much insulin I had injected. It also would show me how much I had on board so if I needed to take additional insulin it would help me not to stack too much at a time.
- 11 hours, 21 minutes ago
  
  Kris Sykes-David likes your comment at
  If you’ve ever used a connected insulin pen (also known as a “smart pen”), what was your experience like? Tell us more in the comments! A “smart pen” connected insulin pens can offer extra technology with the simplicity of injections, like tracking the timing and dose of insulin, tracking insulin-on-board, and calculating insulin doses based on carbohydrate entries.
  I love it! Can't live without one.
- 18 hours, 9 minutes ago
  
  TEH likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
- 18 hours, 9 minutes ago
  
  TEH likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  I would prefer to see my endo twice a year. But insurance requires a visit once every 90 days to obtain an insulin pump and CGM, which is completely illogical. Insulin pump allows for better control soo....
- 1 day, 9 hours ago
  
  Janis Senungetuk likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
- 1 day, 13 hours ago
  
  KarenM6 likes your comment at
  In the past year, have you been required to change medications because of your health insurance?
  In July, I went on the only Medicare plan in my area that covered Afrezza. For 2024, no one is covering it. Like others, hate these formulary decisions by the Insurance providers.
- 1 day, 16 hours ago
  
  Ahh Life likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  Schush! I know it's supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I'm happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.
- 1 day, 17 hours ago
  
  Bekki Weston likes your comment at
  In the past year, have you been required to change medications because of your health insurance?
  Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.
- 1 day, 17 hours ago
  
  Bekki Weston likes your comment at
  In the past year, have you been required to change medications because of your health insurance?
  I answered NO for 2023 but in 2024 I will have to switch from Humalog to Novolog.
- 1 day, 17 hours ago
  
  Bill Williams likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
- 1 day, 18 hours ago
  
  Kristi Warmecke likes your comment at
  In the past year, have you been required to change medications because of your health insurance?
  With Medicare's change to the cost of insulin, my Part D plan dropped Novolog. $35 "limit" only works if insurers have your medication on their formulary.
- 1 day, 19 hours ago
  
  Kristi Warmecke likes your comment at
  In the past year, have you been required to change medications because of your health insurance?
  I was with Caremark now with Optimum and not a fan but was not a fan of Caremark in the beginning. Not a fan of mail order insulin! Opimum (still not sure it is spelled right) made me change from Novalog to Humalog. Both are the same, sure, but why should a RX company say what insulin I should be taking. Is that not my endocrinologist job? Would they not know what is best for me? Kind of burns me up how healthcare has gone in the past 5 to 10 years, miss the old days of knowing your pharmacist by first name and talking to them about the latest advancements in diabetic care at the conner pharmacy. Patient is no longer a factor in the equation. sorry for the rant.
- 1 day, 19 hours ago
  
  Kristi Warmecke likes your comment at
  In the past year, have you been required to change medications because of your health insurance?
  Lispro, aspart, and glulisine are also FDA-approved for pump use (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6695255/). These are the generic versions of Humalog, Novolog and Apidra, respectively.
- 1 day, 19 hours ago
  
  jo likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  This past year my doctor appts were my new social life!
- 1 day, 19 hours ago
  
  jo likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  Schush! I know it's supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I'm happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.
- 1 day, 19 hours ago
  
  Ahh Life likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
- 1 day, 21 hours ago
  
  Mick Martin likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
Clear All

Have you (or your child) ever treated T1D using any therapies other than insulin delivered through injections or an insulin pump? For example, inhalable insulin, type 2 diabetes drugs, etc. Tell us about your experience in the comments!

If you or someone in your immediate family has T1D, has the rest of your family been tested for T1D antibodies? If no, do you think your immediate family would be willing to be tested for T1D antibodies?

Sarah Howard

Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

2 Comments

Molly Jones

It took about three months of trying T2D drugs after a yearly checkup without my BG coming down for my GP to test for antibodies and diagnosis of T1D.

3 years ago Log in to Reply
Sherry Knapp-Brown

I have tried Afrezza and it worked well, but my insurance won’t cover it for ongoing use.

3 years ago Log in to Reply