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Have you ever participated in a T1D clinical trial? Tell us about it in the comments!
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I participated in the Dexcom/Tandem closed-loop trial to test Control !Q. In 1977 I participated in the early Platinum Glucose Sensor trials. Long before CGM existed or the compute power or miniature radios.
After becoming a type one diabetic at the age of 23 in 1983 I joined a Lilly trial of laboratory made insulin versus the beef and pork insulins that were available at the time. After the study I continued using that insulin that is used today.
I participated in a clinical trial of a c-peptide replacement hormone. It was thought that c-peptide was an important hormone for nerve cell protection. It turned out not to be the case, but I got a years worth of very comprehensive medical care and got paid for it. It was a double blind study and I did get the active drug.
Have been in several clinical trials for T1D: – early 2000’s: some sort of rapid acting insulin that never went to market – 2018: glucagon replacement – do not remember the name but think it is the one recently released – 2018 to 2019: Medtronic 670G closed loop – currently enrolled: Insulet Horizon closed loop study
I’ve been many over the years. Starting the year of my diagnose 1982, I joined the Diabetic Registry that my younger brother had been in since it started; Four days and 3 nights in the hospital every year having the same in-depth testing done. They were excited to have another sibling group. I’ve also done a hypoglycemia unawareness study, a few I can’t remember with my parents involved, one for neuropathy prevention, one for abnormal EKG in a healthy looking heart per ECHO, etc. Anything to help father the prevention of completions and better treatment of T1D.
I had a islet cell transplant 10 years ago. I’ve been involved with many research studies since I was diagnosed in 1971 at 15years
Was a volunteer with DCCT (Diabetes Control & Complications Trial) from 1986 until it stopped. Continue with the followup EDIC.
I received an implantable pump about 30 years ago. It was amazing at the time (I was not on an external pump back then). I went to my endocrinologist monthly to get it refilled. The trial ended due to someone at the plant messing up the trial, so I was told. I did like doing the trial and loved not taking “shots”. It definitely made me open to pumping!
I was in the clinical trial for inhaled insulin (in the placebo group so I just remained on my regular humalog and Lememir) the trial lasted several years. I had to have 3 lung function tests every couple of months. Then I was in a phase 1 and phase 2 trial for an SG2 inhibitor.
Don’t live close enough to town or a big city to do trials or I would esspiacly with me being a brittle diabetic
I ask my endo, see what T1D invites me to, or look up clinical trials for interesting things I would be eligible for. I have downloaded data, given blood, filled out questions and not had enough of the peptides for one of the trials I wanted the most. The more people who get involved the faster a disease can be fully understood.
One Study on an insulin patch. Awful because I had to get a blood draw from a venous line every hour. Another study about a pill that was never approved for type 1 patients. It worked great for me!