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    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 10 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 13 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 19 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 13 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Has your diabetes care provider ever discussed with you how to manage T1D while you have a cold or flu?

    Home > LC Polls > Has your diabetes care provider ever discussed with you how to manage T1D while you have a cold or flu?
    Previous

    Have you been diagnosed with T1D since COVID-19 became widespread in the U.S. (mid-March 2020)?

    Next

    If you wear a device, how many times in the past month have you accidentally ripped out a sensor or pump site?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    13 Comments

    1. Clare Fishman

      To be fair I have never asked.

      5 years ago Log in to Reply
    2. Molly Jones

      I have had most all of my Endos discuss this and the temporary basal rates needed. The possibility that my BG goes low instead of high has been brought up a few times.

      5 years ago Log in to Reply
    3. Ahh Life

      When it comes to “how to manage,” I am usually the provider, counselor, educator and the diabetes care person listens. Eagerly! ⚠ Isn’t it surprising how much you can learn when listening? ᕙ(`▿´)ᕗ

      5 years ago Log in to Reply
    4. Abigail Elias

      I’ve never felt a need for me to ask or for my care provider to discuss.

      5 years ago Log in to Reply
    5. connie ker

      I have read everything I can about T1D, lived with it for 22 years, and even took a class with a workbook that I still consult. For sick days, it is keep fluids going, know your numbers, take tylenol or certain cold flu medicines, take insulin but adjust to correct numbers, eat what you can tolerate and pray you will feel better soon. Clear liquids are a good place to start and hope they stay down.

      5 years ago Log in to Reply
    6. Rose Lentzke

      I have a sick day basal rate that I use when inactive due to illness. My endocrinologist was impressed. She usually doesn’t question what I do to stay in range.

      5 years ago Log in to Reply
    7. Danielle Eastman

      Found out the hard way!

      5 years ago Log in to Reply
    8. joan Fray

      Totally agree with Ahh Life -I, over course of 60 year affair with T1d, have learned what to do. Only problem comes when I can’t keep liquids down. Then electrolytes get out of balance and all bets are off. I keep rx for nausea in my purse, and diabetes go bag at all times. Probably kept me out of ER twice.

      5 years ago Log in to Reply
    9. cynthia jaworski

      I never asked. As always, be careful and watchful. If ill, be more so.

      5 years ago Log in to Reply
    10. ConnieT1D62

      Not lately. She asked me what I typically do for sick day management as part of her intake assessment when I started seeing her about 16 years. It’s never come up again because she knows I know what to do to take of myself with colds or flu. If I need to consult her about anything that comes up clinically she is just an email, phone call or text message away.

      5 years ago Log in to Reply
    11. Christina Trudo

      because this is one of the extreme basics of Need to Know stuff, it has been covered by most new providers. From time to time i have asked a CDE for an update just because I don’t get sick often and tend to forget. To all those who have said No, and especially those who commented “I never asked”, this is something a diabetes specialist absolutely should cover, and I might question one who doesn’t have it on a checklist of things to make sure you know when you are a new patient to them. After 58 years I have often asked for an educator appointment every few years just to make sure I have the basics still in mind. I was never one that was on top of all the newest stuff, though that is less so with the advent of the internet, but I tend not to give credence to most things I hear from those online who think they know it all….. usually they know all about their diabetes and body, at best.

      5 years ago Log in to Reply
    12. Pat Reynolds

      Covered in DAPHNE – I had the pumpers variant – a useful addition – plus it is useful to have it written down so that someone else an take over adjusting rates, etc, should I be incapacitated (must admit,I forsaw this as needful for holidays on remote islands, not for plague).

      5 years ago Log in to Reply
    13. Megan L

      Like a few others have said (as usual I can only see five comments), I haven’t, but I know what to do by now. My endo asks if I’ve been sick since my last appointment and asks how my diabetes was, but that’s about it. I’ve been seeing him for quite a while. He’s not concerned about me not knowing how my body is when I’m sick.

      5 years ago Log in to Reply

    Has your diabetes care provider ever discussed with you how to manage T1D while you have a cold or flu? Cancel reply

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