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    • 4 hours, 57 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 4 hours, 57 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 5 hours, 8 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 5 hours, 8 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 5 hours, 15 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 5 hours, 29 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 6 hours, 4 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 6 hours, 4 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 6 hours, 5 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 9 hours, 13 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 12 hours, 2 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 22 hours, 44 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 day, 3 hours ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 4 hours ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 6 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
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    Has your diabetes care provider ever discussed with you how to manage T1D while you have a cold or flu?

    Home > LC Polls > Has your diabetes care provider ever discussed with you how to manage T1D while you have a cold or flu?
    Previous

    Have you been diagnosed with T1D since COVID-19 became widespread in the U.S. (mid-March 2020)?

    Next

    If you wear a device, how many times in the past month have you accidentally ripped out a sensor or pump site?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    13 Comments

    1. Clare Fishman

      To be fair I have never asked.

      5 years ago Log in to Reply
    2. Molly Jones

      I have had most all of my Endos discuss this and the temporary basal rates needed. The possibility that my BG goes low instead of high has been brought up a few times.

      5 years ago Log in to Reply
    3. Ahh Life

      When it comes to “how to manage,” I am usually the provider, counselor, educator and the diabetes care person listens. Eagerly! ⚠ Isn’t it surprising how much you can learn when listening? ᕙ(`▿´)ᕗ

      5 years ago Log in to Reply
    4. Abigail Elias

      I’ve never felt a need for me to ask or for my care provider to discuss.

      5 years ago Log in to Reply
    5. connie ker

      I have read everything I can about T1D, lived with it for 22 years, and even took a class with a workbook that I still consult. For sick days, it is keep fluids going, know your numbers, take tylenol or certain cold flu medicines, take insulin but adjust to correct numbers, eat what you can tolerate and pray you will feel better soon. Clear liquids are a good place to start and hope they stay down.

      5 years ago Log in to Reply
    6. Rose Lentzke

      I have a sick day basal rate that I use when inactive due to illness. My endocrinologist was impressed. She usually doesn’t question what I do to stay in range.

      5 years ago Log in to Reply
    7. Danielle Eastman

      Found out the hard way!

      5 years ago Log in to Reply
    8. joan Fray

      Totally agree with Ahh Life -I, over course of 60 year affair with T1d, have learned what to do. Only problem comes when I can’t keep liquids down. Then electrolytes get out of balance and all bets are off. I keep rx for nausea in my purse, and diabetes go bag at all times. Probably kept me out of ER twice.

      5 years ago Log in to Reply
    9. cynthia jaworski

      I never asked. As always, be careful and watchful. If ill, be more so.

      5 years ago Log in to Reply
    10. ConnieT1D62

      Not lately. She asked me what I typically do for sick day management as part of her intake assessment when I started seeing her about 16 years. It’s never come up again because she knows I know what to do to take of myself with colds or flu. If I need to consult her about anything that comes up clinically she is just an email, phone call or text message away.

      5 years ago Log in to Reply
    11. Christina Trudo

      because this is one of the extreme basics of Need to Know stuff, it has been covered by most new providers. From time to time i have asked a CDE for an update just because I don’t get sick often and tend to forget. To all those who have said No, and especially those who commented “I never asked”, this is something a diabetes specialist absolutely should cover, and I might question one who doesn’t have it on a checklist of things to make sure you know when you are a new patient to them. After 58 years I have often asked for an educator appointment every few years just to make sure I have the basics still in mind. I was never one that was on top of all the newest stuff, though that is less so with the advent of the internet, but I tend not to give credence to most things I hear from those online who think they know it all….. usually they know all about their diabetes and body, at best.

      5 years ago Log in to Reply
    12. Pat Reynolds

      Covered in DAPHNE – I had the pumpers variant – a useful addition – plus it is useful to have it written down so that someone else an take over adjusting rates, etc, should I be incapacitated (must admit,I forsaw this as needful for holidays on remote islands, not for plague).

      5 years ago Log in to Reply
    13. Megan L

      Like a few others have said (as usual I can only see five comments), I haven’t, but I know what to do by now. My endo asks if I’ve been sick since my last appointment and asks how my diabetes was, but that’s about it. I’ve been seeing him for quite a while. He’s not concerned about me not knowing how my body is when I’m sick.

      5 years ago Log in to Reply

    Has your diabetes care provider ever discussed with you how to manage T1D while you have a cold or flu? Cancel reply

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