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    • 14 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 hour, 41 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 hour, 41 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 hour, 41 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 3 hours, 54 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 55 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 3 hours, 55 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 4 hours, 37 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 6 hours ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 58 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 23 hours, 20 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 23 hours, 23 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 23 hours, 24 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 23 hours, 24 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 23 hours, 32 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 7 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    Has your diabetes care provider ever discussed with you how to manage T1D while you have a cold or flu?

    Home > LC Polls > Has your diabetes care provider ever discussed with you how to manage T1D while you have a cold or flu?
    Previous

    Have you been diagnosed with T1D since COVID-19 became widespread in the U.S. (mid-March 2020)?

    Next

    If you wear a device, how many times in the past month have you accidentally ripped out a sensor or pump site?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    13 Comments

    1. Clare Fishman

      To be fair I have never asked.

      5 years ago Log in to Reply
    2. Molly Jones

      I have had most all of my Endos discuss this and the temporary basal rates needed. The possibility that my BG goes low instead of high has been brought up a few times.

      5 years ago Log in to Reply
    3. Ahh Life

      When it comes to “how to manage,” I am usually the provider, counselor, educator and the diabetes care person listens. Eagerly! ⚠ Isn’t it surprising how much you can learn when listening? ᕙ(`▿´)ᕗ

      5 years ago Log in to Reply
    4. Abigail Elias

      I’ve never felt a need for me to ask or for my care provider to discuss.

      5 years ago Log in to Reply
    5. connie ker

      I have read everything I can about T1D, lived with it for 22 years, and even took a class with a workbook that I still consult. For sick days, it is keep fluids going, know your numbers, take tylenol or certain cold flu medicines, take insulin but adjust to correct numbers, eat what you can tolerate and pray you will feel better soon. Clear liquids are a good place to start and hope they stay down.

      5 years ago Log in to Reply
    6. Rose Lentzke

      I have a sick day basal rate that I use when inactive due to illness. My endocrinologist was impressed. She usually doesn’t question what I do to stay in range.

      5 years ago Log in to Reply
    7. Danielle Eastman

      Found out the hard way!

      5 years ago Log in to Reply
    8. joan Fray

      Totally agree with Ahh Life -I, over course of 60 year affair with T1d, have learned what to do. Only problem comes when I can’t keep liquids down. Then electrolytes get out of balance and all bets are off. I keep rx for nausea in my purse, and diabetes go bag at all times. Probably kept me out of ER twice.

      5 years ago Log in to Reply
    9. cynthia jaworski

      I never asked. As always, be careful and watchful. If ill, be more so.

      5 years ago Log in to Reply
    10. ConnieT1D62

      Not lately. She asked me what I typically do for sick day management as part of her intake assessment when I started seeing her about 16 years. It’s never come up again because she knows I know what to do to take of myself with colds or flu. If I need to consult her about anything that comes up clinically she is just an email, phone call or text message away.

      5 years ago Log in to Reply
    11. Christina Trudo

      because this is one of the extreme basics of Need to Know stuff, it has been covered by most new providers. From time to time i have asked a CDE for an update just because I don’t get sick often and tend to forget. To all those who have said No, and especially those who commented “I never asked”, this is something a diabetes specialist absolutely should cover, and I might question one who doesn’t have it on a checklist of things to make sure you know when you are a new patient to them. After 58 years I have often asked for an educator appointment every few years just to make sure I have the basics still in mind. I was never one that was on top of all the newest stuff, though that is less so with the advent of the internet, but I tend not to give credence to most things I hear from those online who think they know it all….. usually they know all about their diabetes and body, at best.

      5 years ago Log in to Reply
    12. Pat Reynolds

      Covered in DAPHNE – I had the pumpers variant – a useful addition – plus it is useful to have it written down so that someone else an take over adjusting rates, etc, should I be incapacitated (must admit,I forsaw this as needful for holidays on remote islands, not for plague).

      5 years ago Log in to Reply
    13. Megan L

      Like a few others have said (as usual I can only see five comments), I haven’t, but I know what to do by now. My endo asks if I’ve been sick since my last appointment and asks how my diabetes was, but that’s about it. I’ve been seeing him for quite a while. He’s not concerned about me not knowing how my body is when I’m sick.

      5 years ago Log in to Reply

    Has your diabetes care provider ever discussed with you how to manage T1D while you have a cold or flu? Cancel reply

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