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    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 10 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 12 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 17 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 18 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 12 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 12 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 14 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 17 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 17 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Happy Mother’s Day to all the moms living with T1D, moms of children with T1D, and T1D caregivers out there! If you have navigated pregnancy while living with T1D, were there any resources that were particularly helpful to you? Tell us about them in the comments!

    Home > LC Polls > Happy Mother’s Day to all the moms living with T1D, moms of children with T1D, and T1D caregivers out there! If you have navigated pregnancy while living with T1D, were there any resources that were particularly helpful to you? Tell us about them in the comments!
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    14 Comments

    1. HMW

      Think Like A Pancreas by Gary Scheiner has a section on the fluctuations in insulin sensitivity during pregnancy which was very helpful. Having a Dexcom cgm was the best tool I had. And having close communication with my endocrinologist and certified diabetes educator for support. My baby had to spend 5 days in NICU to get his BG elevated to normal range but that also gave me time to recover from my c-section.

      1
      5 years ago Log in to Reply
    2. Lorri McLuckie

      I had a fantastic endocrinologist who helped me navigate through my 2 pregnancies (1983 and 1986), using only MDI and blood sugar testing based on color change on the test strips which only gave a blood glucose range such as 80-120 (glucose meters were not yet covered by my insurance).

      2
      5 years ago Log in to Reply
    3. Sally Numrich

      No CGMS at the time but with a great medical team, we had two smooth pregnancies! Endo, high risk OB, CDE, RD. Monthly ultrasounds with weekly towards the end. Lots of testing. My blood testing meter was my best friend testing like 15 times a day,

      1
      5 years ago Log in to Reply
    4. Marla Peaslee

      My best resource was my medical team. Daily contact with my CDP. The next best resource was the book, What To Expect When Your Expecting..

      1
      5 years ago Log in to Reply
    5. Janis Senungetuk

      There wasn’t much to offer in 1970. I’d have blood test ordered by my GP and find out the results the next week. I saw the OB-GYN on a monthly basis for the first four months, show him my urine test logbook and have my blood pressure and weight checked.I didn’t know anyone else who was living with T1, much less anyone else who was pregnant and living with T1.We were living in San Francisco, yet I was totally issolated from any resources that might have helped. At five months I started experiencing high blood pressure issues and started seeing the OB every other week. My husband and I were both completing our undergrad studies, so it was a stressful time, in addition to the pregnancy. A month to the day after graduation our daughter was born, by c-section, six weeks early. I had preeclampsia, had been in the hospital over the weekend, the delivery was induced and she arrived early Monday morning. We were well enough to leave the hospital together four days later.

      3
      5 years ago Log in to Reply
    6. Germaine Sarda

      My endo told me that I shouldn’t have the child I was pregnant with since my control wasn’t good. I found a specialist in high risk pregnancies and delivered a healthy baby with no complications. The specialist never used threats or scare tactics but rather guided me through a healthy pregnancy. If your doctor uses scare tactics, pregnant or not, find another one.

      5 years ago Log in to Reply
    7. Chris Deutsch

      With my second pregnancy in Taos, NM, 40-ish years ago, I started using a blood sugar meter for the first time. I think it was an Accu-check, and it was revolutionary!!

      5 years ago Log in to Reply
    8. Sara Weaver

      CGM! I started using CGM 15 years ago when pregnant w my 2nd child. It was soooo helpful! For my 1st child, I didn’t have CGM and tested my BG 12x/d w finger sticks. Love CGM!

      5 years ago Log in to Reply
    9. Kimberly Green

      pregnancy with Type 1 Diabetes book.

      1
      5 years ago Log in to Reply
    10. Jneticdiabetic

      My care team, which included my endo, OBGYN, and at the end of each pregnancy, a perinatologist. Also my CGM, though they weren’t as accurate in 2007-2009 and lots of general pregnancy books. BG was generally more stable during pregnancy. I was lucky to have two uncomplicated pregnancies and managed to carry both to 38-39wks. They were BIG ( ~10lbs each).

      5 years ago Log in to Reply
    11. Amy Schwinghammer

      “Pregnancy with Type 1 Diabetes” by Ginger Vieira and Jennifer Smith. I’m currently re-reading through my second pregnancy and it is SOOOO helpful!

      5 years ago Log in to Reply
    12. Alejandra Marquez

      I have been part of diabetes Sisters since I found them they were and are my support group for everthing. Plus, I met Gary Gary Scheiner https://integrateddiabetes.com/ and got the pregnancy coach services with Jennifer Smith, She was the best of the best during my pregnancy and after. Also she has a book for T1D pregnancy with Ginger Viera that is 100% recommendable.

      5 years ago Log in to Reply
    13. Molly Jones

      Didn’t make it through

      5 years ago Log in to Reply
    14. Donna Clemons

      Being Type 1 Celiac Epilepsy get along pretty well. Hate Tubing. Omni Pod loved . Counting carbs is not me. Foods I eat are vegs. And meats. Not fun.

      5 years ago Log in to Reply

    Happy Mother’s Day to all the moms living with T1D, moms of children with T1D, and T1D caregivers out there! If you have navigated pregnancy while living with T1D, were there any resources that were particularly helpful to you? Tell us about them in the comments! Cancel reply

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