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    • 4 hours, 32 minutes ago
      lis be likes your comment at
      How willing would you be to take immunosuppressants if you were considering an islet cell transplant?
      Nope, T1D is a manageable thing with today's technology. I'll keep the devil I know.
    • 5 hours, 3 minutes ago
      dako likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      It seems to get harder every year. They seem to be looking for younger and newly diagnosed people.
    • 5 hours, 3 minutes ago
      dako likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      Agreed, and there are plenty of issues aging with T1D.
    • 10 hours, 24 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 10 hours, 25 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 10 hours, 25 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 18 hours, 50 minutes ago
      Karen Newe likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 20 hours, 38 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these. I'm not interested and have not even heard of some of them. The fewer gadgets the better.
    • 20 hours, 38 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      How about “None of the above”?
    • 20 hours, 38 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these
    • 1 day, 2 hours ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I agree with Molly. I’m moderately concerned because if I were extremely or very concerned, I just wouldn’t participate. I’m concerned for others who are brave enough to risk their own health for the sake of research and helping others.
    • 1 day, 2 hours ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 6 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 1 day, 6 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 6 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 6 hours ago
      Natalie Daley likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 7 hours ago
      ChrisW likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      Well the first person in this trial has been insulin-free for over 1-1/2 years and has been feeling fine. All 12 participants in this trial so far are off of insulin. The trial is now going to include people with t-1 diabetes and some kidney damage as this immunosuppressant (tegoprubart) has shown no toxic effects to islet cells or to kidneys. I will keep watching as the trial progresses. This question only asked if we had heard about it. I didn't see the question as an advertisement.
    • 1 day, 7 hours ago
      ChrisW likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 7 hours ago
      Brian Vodehnal likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Concern is relative to outcome. Getting a five year reprieve on the daily management of T1D might be worth it.
    • 1 day, 8 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 8 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Moderately as this is for others. I don't imagine being offered this myself.
    • 1 day, 9 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 9 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 1 day, 9 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 9 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I just love your comments. 😃
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    For women: If you’ve reached menopause (no period for 12 months in a row), did you have symptoms during perimenopause (the years before menopause)? Select all that apply.

    Home > LC Polls > For women: If you’ve reached menopause (no period for 12 months in a row), did you have symptoms during perimenopause (the years before menopause)? Select all that apply.
    Previous

    Do you have any of the following autoimmune diseases in addition to T1D? Select all that apply.

    Next

    How would you describe the scar tissue you have from T1D management? Please share more in the comments!

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    13 Comments

    1. Karen Newe

      I became T1 after menopause

      2 years ago Log in to Reply
    2. Patricia Dalrymple

      I’m not sure I was ever perimenopausal at least not diagnosed. In April 2009 (never forget that) I just stopped. Then in September 2009 I had a hysterectomy. Plenty of symptoms after I was thrown into menopause although I still do have my ovaries. But the main issue is I could no longer sleep through the night. I always wake up at least once now whether or not I have to go to the bathroom. I didn’t suffer with hot flashes much but a couple of times a year I might still wake up drenched even now. But I’ll take that over a cycle any day.

      2 years ago Log in to Reply
    3. cynthia jaworski

      I don’t recall symptoms, but my husband seems to think that I had alot of them….

      2 years ago Log in to Reply
    4. Janice B

      I experienced very few symptoms- a few hot flashes.

      2 years ago Log in to Reply
    5. AimmcG

      I was experiencing symptoms of MS during that time as well. So, I was never sure if issues were caused by, T1D, Menopause, or MS. I will never know.

      2 years ago Log in to Reply
    6. Sue Herflicker

      This is very interesting. I had hypoglycemia for most of my life. Always low blood sugars especially that time of the month. After Menopause my blood sugars started climbing and at age 56 was diagnosed with LADA. I had migraines during perimenopause. I had never had one before. Most common symptom besides higher blood sugars was hot flashes.

      2 years ago Log in to Reply
    7. Becky Hertz

      I had maybe a total of 5 hot flashes. Didn’t notice any other symptoms. I had an “early” menopause as did my non-D sister.

      2 years ago Log in to Reply
    8. Janis Senungetuk

      This was 25 yers ago. I was having a very difficult time with what seemed like a continuous roller coaster of highs and very low, lows. The MD I was seeing, an Internist, continued to tell me that perimenopause was not the issue. She continued to change both the dosage and timing of my MDI schedule to the point where I was injecting 8 times a day, meter testing 10 times a day while trying to stay engaged in my work activities and be a compassionate human with my family and community. After two and a half years of this exhausting battle I started HRT (hormone replacement therapy) and completed the transition in a year.

      2 years ago Log in to Reply
    9. Eva

      Perimenopause is tricky. Felt like I was having power surges.

      2 years ago Log in to Reply
    10. Anita Stokar

      I’m not really sure when perimenopause started, but as I got older, I did notice drier skin and not sleeping through the night. However, I am not really sure those are diabetes related.

      2 years ago Log in to Reply
    11. Natalie Daley

      I’m 77. Menopause, something I haven’t thought of in decades, was more than 25 years ago. I was so busy, I didn’t have time to deal with symptoms. After the first significant, public hot flash, I went to my doctor and asked what’s in the pharmacopia that makes this go away? I got some of it and went back to handling three kids and a full time, high tension job.

      2 years ago Log in to Reply
    12. ELYSSE HELLER

      I have had amenorrhea (lack of menstruating) since age 25 after I gave birth to my son. They performed all sorts of tests and the only explanation that the doctors could give me was (guess what) “this might be caused by your diabetic status”.

      2 years ago Log in to Reply
    13. Vicki Andersen

      I had frozen shoulder on both sides at two different times. I have been told it can be caused by hormonal changes during Perimenopause.

      2 years ago Log in to Reply

    For women: If you’ve reached menopause (no period for 12 months in a row), did you have symptoms during perimenopause (the years before menopause)? Select all that apply. Cancel reply

    You must be logged in to post a comment.




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