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    • 12 hours, 36 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 12 hours, 41 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 12 hours, 48 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 7 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 9 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 13 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 13 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 14 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 15 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 16 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 16 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 7 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 7 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 10 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 10 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 11 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    For women: If you’ve reached menopause (no period for 12 months in a row), did you have symptoms during perimenopause (the years before menopause)? Select all that apply.

    Home > LC Polls > For women: If you’ve reached menopause (no period for 12 months in a row), did you have symptoms during perimenopause (the years before menopause)? Select all that apply.
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    Do you have any of the following autoimmune diseases in addition to T1D? Select all that apply.

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    How would you describe the scar tissue you have from T1D management? Please share more in the comments!

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    13 Comments

    1. Karen Newe

      I became T1 after menopause

      2 years ago Log in to Reply
    2. Patricia Dalrymple

      I’m not sure I was ever perimenopausal at least not diagnosed. In April 2009 (never forget that) I just stopped. Then in September 2009 I had a hysterectomy. Plenty of symptoms after I was thrown into menopause although I still do have my ovaries. But the main issue is I could no longer sleep through the night. I always wake up at least once now whether or not I have to go to the bathroom. I didn’t suffer with hot flashes much but a couple of times a year I might still wake up drenched even now. But I’ll take that over a cycle any day.

      2 years ago Log in to Reply
    3. cynthia jaworski

      I don’t recall symptoms, but my husband seems to think that I had alot of them….

      2 years ago Log in to Reply
    4. Janice B

      I experienced very few symptoms- a few hot flashes.

      2 years ago Log in to Reply
    5. AimmcG

      I was experiencing symptoms of MS during that time as well. So, I was never sure if issues were caused by, T1D, Menopause, or MS. I will never know.

      2 years ago Log in to Reply
    6. Sue Herflicker

      This is very interesting. I had hypoglycemia for most of my life. Always low blood sugars especially that time of the month. After Menopause my blood sugars started climbing and at age 56 was diagnosed with LADA. I had migraines during perimenopause. I had never had one before. Most common symptom besides higher blood sugars was hot flashes.

      2 years ago Log in to Reply
    7. Becky Hertz

      I had maybe a total of 5 hot flashes. Didn’t notice any other symptoms. I had an “early” menopause as did my non-D sister.

      2 years ago Log in to Reply
    8. Janis Senungetuk

      This was 25 yers ago. I was having a very difficult time with what seemed like a continuous roller coaster of highs and very low, lows. The MD I was seeing, an Internist, continued to tell me that perimenopause was not the issue. She continued to change both the dosage and timing of my MDI schedule to the point where I was injecting 8 times a day, meter testing 10 times a day while trying to stay engaged in my work activities and be a compassionate human with my family and community. After two and a half years of this exhausting battle I started HRT (hormone replacement therapy) and completed the transition in a year.

      2 years ago Log in to Reply
    9. Eva

      Perimenopause is tricky. Felt like I was having power surges.

      2 years ago Log in to Reply
    10. Anita Stokar

      I’m not really sure when perimenopause started, but as I got older, I did notice drier skin and not sleeping through the night. However, I am not really sure those are diabetes related.

      2 years ago Log in to Reply
    11. Natalie Daley

      I’m 77. Menopause, something I haven’t thought of in decades, was more than 25 years ago. I was so busy, I didn’t have time to deal with symptoms. After the first significant, public hot flash, I went to my doctor and asked what’s in the pharmacopia that makes this go away? I got some of it and went back to handling three kids and a full time, high tension job.

      2 years ago Log in to Reply
    12. ELYSSE HELLER

      I have had amenorrhea (lack of menstruating) since age 25 after I gave birth to my son. They performed all sorts of tests and the only explanation that the doctors could give me was (guess what) “this might be caused by your diabetic status”.

      2 years ago Log in to Reply
    13. Vicki Andersen

      I had frozen shoulder on both sides at two different times. I have been told it can be caused by hormonal changes during Perimenopause.

      2 years ago Log in to Reply

    For women: If you’ve reached menopause (no period for 12 months in a row), did you have symptoms during perimenopause (the years before menopause)? Select all that apply. Cancel reply

    You must be logged in to post a comment.




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