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    • 25 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 25 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 26 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 27 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 27 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 28 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 29 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 29 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 2 hours, 30 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 3 hours, 8 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 3 hours, 9 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 3 hours, 52 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 4 hours, 14 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 4 hours, 37 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 4 hours, 38 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 4 hours, 38 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 4 hours, 53 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 5 hours, 54 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 5 hours, 55 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 20 hours, 55 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 20 hours, 55 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 20 hours, 56 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 2 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 2 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 3 hours ago
      Marthaeg likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
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    Do you have hypoglycemia unawareness?

    Home > LC Polls > Do you have hypoglycemia unawareness?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    19 Comments

    1. Bob Durstenfeld

      I have hypo unawareness, but I am saved by my DEXCOM CGM and its alarms.

      5 years ago Log in to Reply
    2. Janice B

      I generally do not have any symptoms until I am well below 50. Thank goodness for my Dexcom and Tslim X2 with Control IQ.

      5 years ago Log in to Reply
    3. Gene Maggard

      Overnight unless I was to get really low I don’t wake up. And long before that the Dexcom screams out its warning so I can deal with it before it gets serious.

      5 years ago Log in to Reply
    4. connie ker

      I am thankful for the Freestyle Libre and use it constantly during the day and when I get up at night for the bathroom break. I live alone so it is imperative that I keep on top of trending arrows as well as numbers. So far, so good.

      5 years ago Log in to Reply
    5. Stacey White

      I am a teacher and I am easily distracted during the day with an array of things, now including teaching students virtually. I don’t always feel the low coming on and perhaps it’s due to adrenaline/stress. I do find that it takes, what feels like forever, to come back to normal again if I wasn’t able to treat it head on. I do wear the Dexcom CGM, but sometimes I feel like I’m so distracted that I don’t hear the alarms.

      5 years ago Log in to Reply
    6. Sherolyn Newell

      I do not feel lows until under 50 either. Dexcom gives me alarms, so it’s not usually a problem.

      5 years ago Log in to Reply
    7. joan Fray

      I also don’t feel low until I get into the 40s. With the Dexcom, that only happens if I am between sets on the warmup or if I’m somewhere and it stopped working. Maybe twice in the last 3 months.

      5 years ago Log in to Reply
    8. Mick Martin

      I’ve been hypo unaware for at least 20 years now, which has often lead to me being admitted to hospital, having been found in a state of collapse. (I’ve actually lapsed into a comatose state on 3 occasions, and on two of those occasions my wife was informed that she should prepare herself for the worst.) Happily, I now use CGM (since March of 2020) which has caused my pump to alarm, informing me that my blood glucose level is below my prescribed limit.

      5 years ago Log in to Reply
    9. Ernie Richmann

      Not usually aware until around 50 which is not happening very often since I have dexcom G6 and Tandem pump. Might go low if working long and hard or overestimated bolus.

      5 years ago Log in to Reply
    10. Ken Raiche

      I’m aware but ever so slightly, nothing like my diabetes infancy days. Thank God for the advancements made with CGM now all they need to do is improve on the adhesives being used.

      5 years ago Log in to Reply
    11. HMW

      I used to before I got the Medtronic 670G and have more time-in-range.

      5 years ago Log in to Reply
    12. ConnieT1D62

      Yes I do. Even with Dexcom I still don’t feel my lows until I am in the 50s but Dexcom lets me know when I am trending downwards so I can treat it before it tanks into needing rescue glucagon. So I answered Sometimes.

      5 years ago Log in to Reply
    13. Melinda Lipe

      I am aware of hypos, but the symptoms are so different now. And my G6 alerts me when it starts to slide downward.

      5 years ago Log in to Reply
    14. Annie Wall

      I said No only because Dexcom alarms me. Without Dexcom, I would probably would have had to answer Yes.

      5 years ago Log in to Reply
    15. Nicholas Argento

      I said other because I did have it, and it caused dozens of severe reactions over the years, but it resolved with use of CGM.

      5 years ago Log in to Reply
    16. Kristine Warmecke

      I don’t feel my lows, period. Thank goodness for my Dexcom. I’ve not needed glucagon since 2010.

      5 years ago Log in to Reply
    17. Carol Meares

      I have CGM but still get some lows and when the CGM alerts me, I don’t feel low. If it is dropping really fast however, I will feel it. Sometimes the CGM is wrong in the low range. It will show in the 50-60’s and I will be in the 70-80’s when I fingerstick with Contour Next. If I am trying to determine whether to treat, I will test twice but Contour Next is always similar in the following test unless I am dropping fast.

      5 years ago Log in to Reply
    18. Brian Kitt

      Most of the time I feel my hypoglycemia during the day then check on my Medtronic cgm to verify. At night I’m often woke up more often by my pump with a hypo than feeling it.

      5 years ago Log in to Reply
    19. ANN GALLUZZO

      It was because of my longstanding hypoglycemic unawareness that I was first able to get a CGM through my employer’s insurance. That started about 15 years after I was diagnosed. Some people say they no longer have it with a CGM, but that is not actually true. They still have it, but the CGM reminds them to check when their sugar is high or low.

      5 years ago Log in to Reply

    Do you have hypoglycemia unawareness? Cancel reply

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