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    • 1 hour, 8 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 12 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 14 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 20 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 21 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 15 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Do you have hypoglycemia unawareness?

    Home > LC Polls > Do you have hypoglycemia unawareness?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    19 Comments

    1. Bob Durstenfeld

      I have hypo unawareness, but I am saved by my DEXCOM CGM and its alarms.

      5 years ago Log in to Reply
    2. Janice B

      I generally do not have any symptoms until I am well below 50. Thank goodness for my Dexcom and Tslim X2 with Control IQ.

      5 years ago Log in to Reply
    3. Gene Maggard

      Overnight unless I was to get really low I don’t wake up. And long before that the Dexcom screams out its warning so I can deal with it before it gets serious.

      5 years ago Log in to Reply
    4. connie ker

      I am thankful for the Freestyle Libre and use it constantly during the day and when I get up at night for the bathroom break. I live alone so it is imperative that I keep on top of trending arrows as well as numbers. So far, so good.

      5 years ago Log in to Reply
    5. Stacey White

      I am a teacher and I am easily distracted during the day with an array of things, now including teaching students virtually. I don’t always feel the low coming on and perhaps it’s due to adrenaline/stress. I do find that it takes, what feels like forever, to come back to normal again if I wasn’t able to treat it head on. I do wear the Dexcom CGM, but sometimes I feel like I’m so distracted that I don’t hear the alarms.

      5 years ago Log in to Reply
    6. Sherolyn Newell

      I do not feel lows until under 50 either. Dexcom gives me alarms, so it’s not usually a problem.

      5 years ago Log in to Reply
    7. joan Fray

      I also don’t feel low until I get into the 40s. With the Dexcom, that only happens if I am between sets on the warmup or if I’m somewhere and it stopped working. Maybe twice in the last 3 months.

      5 years ago Log in to Reply
    8. Mick Martin

      I’ve been hypo unaware for at least 20 years now, which has often lead to me being admitted to hospital, having been found in a state of collapse. (I’ve actually lapsed into a comatose state on 3 occasions, and on two of those occasions my wife was informed that she should prepare herself for the worst.) Happily, I now use CGM (since March of 2020) which has caused my pump to alarm, informing me that my blood glucose level is below my prescribed limit.

      5 years ago Log in to Reply
    9. Ernie Richmann

      Not usually aware until around 50 which is not happening very often since I have dexcom G6 and Tandem pump. Might go low if working long and hard or overestimated bolus.

      5 years ago Log in to Reply
    10. Ken Raiche

      I’m aware but ever so slightly, nothing like my diabetes infancy days. Thank God for the advancements made with CGM now all they need to do is improve on the adhesives being used.

      5 years ago Log in to Reply
    11. HMW

      I used to before I got the Medtronic 670G and have more time-in-range.

      5 years ago Log in to Reply
    12. ConnieT1D62

      Yes I do. Even with Dexcom I still don’t feel my lows until I am in the 50s but Dexcom lets me know when I am trending downwards so I can treat it before it tanks into needing rescue glucagon. So I answered Sometimes.

      5 years ago Log in to Reply
    13. Melinda Lipe

      I am aware of hypos, but the symptoms are so different now. And my G6 alerts me when it starts to slide downward.

      5 years ago Log in to Reply
    14. Annie Wall

      I said No only because Dexcom alarms me. Without Dexcom, I would probably would have had to answer Yes.

      5 years ago Log in to Reply
    15. Nicholas Argento

      I said other because I did have it, and it caused dozens of severe reactions over the years, but it resolved with use of CGM.

      5 years ago Log in to Reply
    16. Kristine Warmecke

      I don’t feel my lows, period. Thank goodness for my Dexcom. I’ve not needed glucagon since 2010.

      5 years ago Log in to Reply
    17. Carol Meares

      I have CGM but still get some lows and when the CGM alerts me, I don’t feel low. If it is dropping really fast however, I will feel it. Sometimes the CGM is wrong in the low range. It will show in the 50-60’s and I will be in the 70-80’s when I fingerstick with Contour Next. If I am trying to determine whether to treat, I will test twice but Contour Next is always similar in the following test unless I am dropping fast.

      5 years ago Log in to Reply
    18. Brian Kitt

      Most of the time I feel my hypoglycemia during the day then check on my Medtronic cgm to verify. At night I’m often woke up more often by my pump with a hypo than feeling it.

      5 years ago Log in to Reply
    19. ANN GALLUZZO

      It was because of my longstanding hypoglycemic unawareness that I was first able to get a CGM through my employer’s insurance. That started about 15 years after I was diagnosed. Some people say they no longer have it with a CGM, but that is not actually true. They still have it, but the CGM reminds them to check when their sugar is high or low.

      5 years ago Log in to Reply

    Do you have hypoglycemia unawareness? Cancel reply

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