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    • 38 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 38 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 40 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 4 hours, 41 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 6 hours, 43 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 7 hours, 25 minutes ago
      Anita Stokar likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 7 hours, 29 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 7 hours, 52 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 7 hours, 53 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 7 hours, 53 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 7 hours, 54 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 7 hours, 55 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 7 hours, 58 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 7 hours, 59 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 8 hours, 1 minute ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 8 hours, 2 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 8 hours, 15 minutes ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 8 hours, 28 minutes ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 8 hours, 44 minutes ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 20 hours, 40 minutes ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 22 hours, 58 minutes ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 23 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 23 hours, 1 minute ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      No one has said (in seriousness) you can't eat that, but I have gotten the question "Can you eat that?"
    • 1 day ago
      ConnieT1D62 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I get the 'you can't eat that, can you?' comments when friends see me eat a lot of carbs or have a nice dessert. I remind them that as long as I have insulin, I can eat whatever I want.
    • 1 day ago
      ConnieT1D62 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    Do you have hypoglycemia unawareness?

    Home > LC Polls > Do you have hypoglycemia unawareness?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    19 Comments

    1. Bob Durstenfeld

      I have hypo unawareness, but I am saved by my DEXCOM CGM and its alarms.

      5 years ago Log in to Reply
    2. Janice B

      I generally do not have any symptoms until I am well below 50. Thank goodness for my Dexcom and Tslim X2 with Control IQ.

      5 years ago Log in to Reply
    3. Gene Maggard

      Overnight unless I was to get really low I don’t wake up. And long before that the Dexcom screams out its warning so I can deal with it before it gets serious.

      5 years ago Log in to Reply
    4. connie ker

      I am thankful for the Freestyle Libre and use it constantly during the day and when I get up at night for the bathroom break. I live alone so it is imperative that I keep on top of trending arrows as well as numbers. So far, so good.

      5 years ago Log in to Reply
    5. Stacey White

      I am a teacher and I am easily distracted during the day with an array of things, now including teaching students virtually. I don’t always feel the low coming on and perhaps it’s due to adrenaline/stress. I do find that it takes, what feels like forever, to come back to normal again if I wasn’t able to treat it head on. I do wear the Dexcom CGM, but sometimes I feel like I’m so distracted that I don’t hear the alarms.

      5 years ago Log in to Reply
    6. Sherolyn Newell

      I do not feel lows until under 50 either. Dexcom gives me alarms, so it’s not usually a problem.

      5 years ago Log in to Reply
    7. joan Fray

      I also don’t feel low until I get into the 40s. With the Dexcom, that only happens if I am between sets on the warmup or if I’m somewhere and it stopped working. Maybe twice in the last 3 months.

      5 years ago Log in to Reply
    8. Mick Martin

      I’ve been hypo unaware for at least 20 years now, which has often lead to me being admitted to hospital, having been found in a state of collapse. (I’ve actually lapsed into a comatose state on 3 occasions, and on two of those occasions my wife was informed that she should prepare herself for the worst.) Happily, I now use CGM (since March of 2020) which has caused my pump to alarm, informing me that my blood glucose level is below my prescribed limit.

      5 years ago Log in to Reply
    9. Ernie Richmann

      Not usually aware until around 50 which is not happening very often since I have dexcom G6 and Tandem pump. Might go low if working long and hard or overestimated bolus.

      5 years ago Log in to Reply
    10. Ken Raiche

      I’m aware but ever so slightly, nothing like my diabetes infancy days. Thank God for the advancements made with CGM now all they need to do is improve on the adhesives being used.

      5 years ago Log in to Reply
    11. HMW

      I used to before I got the Medtronic 670G and have more time-in-range.

      5 years ago Log in to Reply
    12. ConnieT1D62

      Yes I do. Even with Dexcom I still don’t feel my lows until I am in the 50s but Dexcom lets me know when I am trending downwards so I can treat it before it tanks into needing rescue glucagon. So I answered Sometimes.

      5 years ago Log in to Reply
    13. Melinda Lipe

      I am aware of hypos, but the symptoms are so different now. And my G6 alerts me when it starts to slide downward.

      5 years ago Log in to Reply
    14. Annie Wall

      I said No only because Dexcom alarms me. Without Dexcom, I would probably would have had to answer Yes.

      5 years ago Log in to Reply
    15. Nicholas Argento

      I said other because I did have it, and it caused dozens of severe reactions over the years, but it resolved with use of CGM.

      5 years ago Log in to Reply
    16. Kristine Warmecke

      I don’t feel my lows, period. Thank goodness for my Dexcom. I’ve not needed glucagon since 2010.

      5 years ago Log in to Reply
    17. Carol Meares

      I have CGM but still get some lows and when the CGM alerts me, I don’t feel low. If it is dropping really fast however, I will feel it. Sometimes the CGM is wrong in the low range. It will show in the 50-60’s and I will be in the 70-80’s when I fingerstick with Contour Next. If I am trying to determine whether to treat, I will test twice but Contour Next is always similar in the following test unless I am dropping fast.

      5 years ago Log in to Reply
    18. Brian Kitt

      Most of the time I feel my hypoglycemia during the day then check on my Medtronic cgm to verify. At night I’m often woke up more often by my pump with a hypo than feeling it.

      5 years ago Log in to Reply
    19. ANN GALLUZZO

      It was because of my longstanding hypoglycemic unawareness that I was first able to get a CGM through my employer’s insurance. That started about 15 years after I was diagnosed. Some people say they no longer have it with a CGM, but that is not actually true. They still have it, but the CGM reminds them to check when their sugar is high or low.

      5 years ago Log in to Reply

    Do you have hypoglycemia unawareness? Cancel reply

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