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    • 43 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 43 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 1 hour, 17 minutes ago
      Gerald Oefelein likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 13 hours, 7 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 13 hours, 7 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 14 hours, 21 minutes ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 17 hours, 54 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 17 hours, 56 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 21 hours, 19 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 21 hours, 20 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 21 hours, 20 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 21 hours, 20 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 21 hours, 21 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 21 hours, 45 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 21 hours, 45 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 22 hours, 34 minutes ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      T1D & T2D are meaningless acronyms for most, nearly all, nondiabetics. Juvenile diabetes vs diabetes is the closest known pairing and that's still few.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 1 hour ago
      Mike S likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 1 hour ago
      Lauren T likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 1 hour ago
      Meerkat likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 20 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 21 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, and even with low cholesterol levels all my life, CT Scan show extensive calcified coronary artery disease.
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    Do you currently have a kit containing the T1D supplies you would need in case of a natural disaster or emergency?

    Home > LC Polls > Do you currently have a kit containing the T1D supplies you would need in case of a natural disaster or emergency?
    Previous

    If you wear a CGM, do you look at the Glucose Management Indicator (GMI) available in many CGM reports? If so, is your GMI typically higher than, lower than, or equal to your A1c?

    Next

    Which foods/drinks do you prefer to use to treat a low? Share your favorites in the comments!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    16 Comments

    1. LizB

      I have a small case that I carry in my bag when I’ll be away from home for more than a couple of hours, but not for days. It has an extra infusion set & reservoir for my pump, my current vial of insulin, some batteries for the pump, some syringes and a few alcohol & prep wipes. It was what I always had in my bag in the days when I went to/from the office everyday. So I could have that in an emergency but it wouldn’t get me far. My meter is in its own case and is kept on my desk, I don’t have any sensors or other CGM supplies ready to go.

      1
      5 years ago Log in to Reply
    2. Kristen Clifford

      It’s not assembled, but I do have what I need to put one together, including a bag the right size.

      2
      5 years ago Log in to Reply
    3. Sherolyn Newell

      Never thought of doing that. It’s a good idea.

      5 years ago Log in to Reply
    4. Sahran Holiday

      I have a small bag with the vial of insulin currently using to fill my Pod, always carry whenever I’m leaving the house further than walking distance, several pods with a frozen water bottle. There’s a spare Dexcom G6 sensor in my car.

      5 years ago Log in to Reply
    5. Anthony Harder

      I don’t know if my answer is yes or no (this I answered other). My daily T1D supplies are in the medicine cabinet with other medicines. I have reserves I keep in a different spot. Disasters will be a headache regardless where one keeps T1D supplies. However, keeping a “kit” and dragging that with me everywhere will soon become its own headache.

      1
      5 years ago Log in to Reply
    6. Richard Vaughn

      I would have a hard time keeping track of a “kit”. When I go shopping or take a several hour trip, I wear cargo pants. My diabetes equipment are in the 5 spacious pockets on my pants.

      2
      5 years ago Log in to Reply
    7. Bill Williams

      I don’t have an assembled kit but I keep a list on the refrigerator that I could put together in a few minutes.

      5 years ago Log in to Reply
    8. George Lovelace

      Being on Medicare I do have a ‘collection’ of necessary supplies, it’s just not in a Kit

      5 years ago Log in to Reply
    9. cynthia jaworski

      My answer depends upon what youmean. I have a small “pancreas” bag that goes from my dining room table to my purse, etc. It contains my cgm reader, spare needles, short-acting insulin pen, and sugar tablets. It goes with my everywhere. Everything else that I use on a daily basis, but not during the daytime hours, is together and could be packed up in a mater of seconds.

      5 years ago Log in to Reply
    10. ConnieT1D62

      I always keep extra “just in case” pump change and hypo treatment supplies with me in my everyday carryall bag. I also have a designated compartmental travel case made for diabetes self-care supplies that I stock with enough extras for 10 to 14 days in case of a natural disaster or emergency. The only thing I have to do is grab extra insulin from the fridge on my way to safety. I have Frio pouches in the kit to keep insulin cold. Periodically I check to make sure everything hasn’t passed the expiration date.

      5 years ago Log in to Reply
    11. Henry Renn

      With Medicare I only have supplies for 30 days at a time. I would have to throw all supplies (whatever is on hand) into duffle bag to evacuate or shelter in place.

      5 years ago Log in to Reply
    12. Amy Nance

      No, to contain everything I would need for a natural disaster or emergency it would need insulin – more than just the one vial I am currently using. I assume natural disaster means my house is demolished by fire, flood, tornado and that could mean I need more than one currently used vial and those are in my fridge. In addition, everything else, including a go bag, is at home-if it happens when I’m out and about In the community and can’t return home, I do not have a kit in my car, as storage in the car has extreme fluctuations in temperature and could or would ruin the supplies in the vehicle. I’m not without plans and ready to pack bags, but all emergent situations are not possible to plan for.

      5 years ago Log in to Reply
    13. Mike S

      I’m lucky enough to have several vials of back up insulin at the moment, but they are naturally in the fridge. I do have an extra G6 sensor and a few Omnipods in our go bag (along with an old finger prick meter), so if we were able to grab that it might help. BUT I’d only have the one semi-used insulin vial that’s in my every day kit…unless I could get to the fridge in time. Good reminder to replace the “emergency” Omnipod that I usually keep in my everyday kit too. (I actually used it last week, but not for the sort of emergency you’re talking about, just a randomly failed pod.)

      5 years ago Log in to Reply
    14. Sally Numrich

      Yes! A plastics storage box with handles in the cabinet right outside my bedroom. It has everything I would need. I rotate the Dexcom sensor when I get a new shipment so it doesn’t expire. Spare syringes, pump supplies, spare meter w/strips,glucose tablets, alcohol wipes etc. I of course do not have insulin but that stockpile is in the refrigerator & can grab when evacuating for wildfire, earthquake, tsunami (whatever natural disaster is coming our way). I figure I can never be over prepared and if I am someone in the evacuation center might not be.

      5 years ago Log in to Reply
    15. KarenM6

      Rotating out batteries is a bit of a nuisance, but important.
      What I figure is, if the natural disaster is bad enough, all regular stores and ways to get supplies will be affected. So, I think of the disaster plan/kit as if I am going back to treating my diabetes as if it’s 1970 again… shots instead of pods, no CGM, meter only, glucose tabs… i.e. enough “analog” diabetes to live. If I can also have the “digital” diabetes for long enough to get through the disaster, that is going to be a bonus.

      1
      5 years ago Log in to Reply
    16. Patricia Dalrymple

      Somewhat. I’ve learned living through this pandemic that it is difficult to plan for every type of emergency. My worst nightmare is running out of insulin, and I can’t plan for that because insurance controls it. I have a large makeup type plastic insulated bag with my pump supplies. I keep tablets handy. My glucometer is always within reach. My strips are with my pump supplies. My pump supplies are in a box. I have a Yeti that I’ve used in hurricanes (live in FLA). I have a Frio that I use on trips. It all makes me nervous.

      5 years ago Log in to Reply

    Do you currently have a kit containing the T1D supplies you would need in case of a natural disaster or emergency? Cancel reply

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