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    • 33 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 21 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 14 hours, 4 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 31 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 15 hours, 31 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 15 hours, 31 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 17 hours, 43 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 17 hours, 44 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 17 hours, 45 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 18 hours, 27 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 50 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 21 hours, 47 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 19 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 21 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 22 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
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    Do you currently have a kit containing the T1D supplies you would need in case of a natural disaster or emergency?

    Home > LC Polls > Do you currently have a kit containing the T1D supplies you would need in case of a natural disaster or emergency?
    Previous

    If you wear a CGM, do you look at the Glucose Management Indicator (GMI) available in many CGM reports? If so, is your GMI typically higher than, lower than, or equal to your A1c?

    Next

    Which foods/drinks do you prefer to use to treat a low? Share your favorites in the comments!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    16 Comments

    1. LizB

      I have a small case that I carry in my bag when I’ll be away from home for more than a couple of hours, but not for days. It has an extra infusion set & reservoir for my pump, my current vial of insulin, some batteries for the pump, some syringes and a few alcohol & prep wipes. It was what I always had in my bag in the days when I went to/from the office everyday. So I could have that in an emergency but it wouldn’t get me far. My meter is in its own case and is kept on my desk, I don’t have any sensors or other CGM supplies ready to go.

      1
      5 years ago Log in to Reply
    2. Kristen Clifford

      It’s not assembled, but I do have what I need to put one together, including a bag the right size.

      2
      5 years ago Log in to Reply
    3. Sherolyn Newell

      Never thought of doing that. It’s a good idea.

      5 years ago Log in to Reply
    4. Sahran Holiday

      I have a small bag with the vial of insulin currently using to fill my Pod, always carry whenever I’m leaving the house further than walking distance, several pods with a frozen water bottle. There’s a spare Dexcom G6 sensor in my car.

      5 years ago Log in to Reply
    5. Anthony Harder

      I don’t know if my answer is yes or no (this I answered other). My daily T1D supplies are in the medicine cabinet with other medicines. I have reserves I keep in a different spot. Disasters will be a headache regardless where one keeps T1D supplies. However, keeping a “kit” and dragging that with me everywhere will soon become its own headache.

      1
      5 years ago Log in to Reply
    6. Richard Vaughn

      I would have a hard time keeping track of a “kit”. When I go shopping or take a several hour trip, I wear cargo pants. My diabetes equipment are in the 5 spacious pockets on my pants.

      2
      5 years ago Log in to Reply
    7. Bill Williams

      I don’t have an assembled kit but I keep a list on the refrigerator that I could put together in a few minutes.

      5 years ago Log in to Reply
    8. George Lovelace

      Being on Medicare I do have a ‘collection’ of necessary supplies, it’s just not in a Kit

      5 years ago Log in to Reply
    9. cynthia jaworski

      My answer depends upon what youmean. I have a small “pancreas” bag that goes from my dining room table to my purse, etc. It contains my cgm reader, spare needles, short-acting insulin pen, and sugar tablets. It goes with my everywhere. Everything else that I use on a daily basis, but not during the daytime hours, is together and could be packed up in a mater of seconds.

      5 years ago Log in to Reply
    10. ConnieT1D62

      I always keep extra “just in case” pump change and hypo treatment supplies with me in my everyday carryall bag. I also have a designated compartmental travel case made for diabetes self-care supplies that I stock with enough extras for 10 to 14 days in case of a natural disaster or emergency. The only thing I have to do is grab extra insulin from the fridge on my way to safety. I have Frio pouches in the kit to keep insulin cold. Periodically I check to make sure everything hasn’t passed the expiration date.

      5 years ago Log in to Reply
    11. Henry Renn

      With Medicare I only have supplies for 30 days at a time. I would have to throw all supplies (whatever is on hand) into duffle bag to evacuate or shelter in place.

      5 years ago Log in to Reply
    12. Amy Nance

      No, to contain everything I would need for a natural disaster or emergency it would need insulin – more than just the one vial I am currently using. I assume natural disaster means my house is demolished by fire, flood, tornado and that could mean I need more than one currently used vial and those are in my fridge. In addition, everything else, including a go bag, is at home-if it happens when I’m out and about In the community and can’t return home, I do not have a kit in my car, as storage in the car has extreme fluctuations in temperature and could or would ruin the supplies in the vehicle. I’m not without plans and ready to pack bags, but all emergent situations are not possible to plan for.

      5 years ago Log in to Reply
    13. Mike S

      I’m lucky enough to have several vials of back up insulin at the moment, but they are naturally in the fridge. I do have an extra G6 sensor and a few Omnipods in our go bag (along with an old finger prick meter), so if we were able to grab that it might help. BUT I’d only have the one semi-used insulin vial that’s in my every day kit…unless I could get to the fridge in time. Good reminder to replace the “emergency” Omnipod that I usually keep in my everyday kit too. (I actually used it last week, but not for the sort of emergency you’re talking about, just a randomly failed pod.)

      5 years ago Log in to Reply
    14. Sally Numrich

      Yes! A plastics storage box with handles in the cabinet right outside my bedroom. It has everything I would need. I rotate the Dexcom sensor when I get a new shipment so it doesn’t expire. Spare syringes, pump supplies, spare meter w/strips,glucose tablets, alcohol wipes etc. I of course do not have insulin but that stockpile is in the refrigerator & can grab when evacuating for wildfire, earthquake, tsunami (whatever natural disaster is coming our way). I figure I can never be over prepared and if I am someone in the evacuation center might not be.

      5 years ago Log in to Reply
    15. KarenM6

      Rotating out batteries is a bit of a nuisance, but important.
      What I figure is, if the natural disaster is bad enough, all regular stores and ways to get supplies will be affected. So, I think of the disaster plan/kit as if I am going back to treating my diabetes as if it’s 1970 again… shots instead of pods, no CGM, meter only, glucose tabs… i.e. enough “analog” diabetes to live. If I can also have the “digital” diabetes for long enough to get through the disaster, that is going to be a bonus.

      1
      5 years ago Log in to Reply
    16. Patricia Dalrymple

      Somewhat. I’ve learned living through this pandemic that it is difficult to plan for every type of emergency. My worst nightmare is running out of insulin, and I can’t plan for that because insurance controls it. I have a large makeup type plastic insulated bag with my pump supplies. I keep tablets handy. My glucometer is always within reach. My strips are with my pump supplies. My pump supplies are in a box. I have a Yeti that I’ve used in hurricanes (live in FLA). I have a Frio that I use on trips. It all makes me nervous.

      5 years ago Log in to Reply

    Do you currently have a kit containing the T1D supplies you would need in case of a natural disaster or emergency? Cancel reply

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