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    • 2 hours, 39 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 13 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 13 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 14 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 16 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 19 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 22 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 22 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 22 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 22 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 22 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 23 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 23 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 14 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 16 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 17 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 20 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 20 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 21 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 21 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    If you use a CGM and share your CGM data with any of your loved ones through an app, for which types of CGM alerts does your network receive notifications? Select all that apply!

    Home > LC Polls > If you use a CGM and share your CGM data with any of your loved ones through an app, for which types of CGM alerts does your network receive notifications? Select all that apply!
    Previous

    Diabetes mellitus includes several types beyond type 1: there's type 2 diabetes mellitus, gestational diabetes mellitus, latent-autoimmune - and even more! Has anyone in your family been diagnosed with a type of diabetes mellitus other than type 1? Please select all that apply.

    Next

    Do you have different basal insulin rates for nights than for days?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    15 Comments

    1. Mark Schweim

      I share my data on Sugarmate web app, it’s bookmarked on Mom’s computer, but the only time it shows on her computer is if I go down and load it onto her browser, but even when able to be monitored on her computer, the only times Mom has ever looked at the readings have been times when I’ve loaded it on her computer and left the Sugarmate page showing on her browser. But instead of using the data she can see, she usually just closes the tab after I leave the computer so it ends up wasted effort to bother to have it on her computer.

      3 years ago Log in to Reply
    2. mbulzomi@optonline.net

      I have been doing this for a long time, of course I share my low alerts with my wife.

      3 years ago Log in to Reply
    3. Joan Fray

      My diabetes educator can look at my results, but she hasn’t ever called me. I don’t share with anyone. If I ever have a bad low where I need outside assistance or pass out, I’ll start sharing. Been doing this sixty plus years, hasn’t happened yet…..

      2
      3 years ago Log in to Reply
      1. wyndare3

        Congrats on not having a bad low over that period of time!

        4
        3 years ago Log in to Reply
    4. wyndare3

      I use LIbre 2 reader and cannot share alerts. Actually neither of us can get the Libre 2 app on our cell phones. Would switch to Libre 3 and replace phones but Medicare doesn’t cover the Libre 3 sensor(claimed to be more accurate) at this time.

      3 years ago Log in to Reply
    5. Jen Farley

      My husband also receives rapid rise and rapid drop. I will sometimes get a text asking if I am ok. If I do not answer he will text one of my daughters to check on me. Sometimes it is a lifesaver when it is two arrows down and was running at 110. Helps me get the quick glucose I need. Love the new technology.

      3 years ago Log in to Reply
    6. Jneticdiabetic

      Use Dexcom/Clarity app. My husband was getting low alarms, not since we recently updated Android phones the app doesn’t seem to work. ☹️

      3 years ago Log in to Reply
    7. Lawrence S.

      I do not share my CGM data through an app with my wife. She hears my alerts going off, and says, “how are you doing honey?”

      3
      3 years ago Log in to Reply
    8. Mig Vascos

      I recently began sharing my data with my son. The idea was more for him to understand how the ups and downs of diabetes work than for him to help me since he lives two hours away from me, plus the fact that he’s busy on meetings on a daily base, and turns off his phone at night, so not following the app all the time.
      From time to time he’s called to make sure I’m ok or to ask what’s going on that my graphs show big ups and downs.
      I’ve been on insulin for 50
      Years and I don’t think my children are concerned about me dying from a low.

      1
      3 years ago Log in to Reply
    9. Tod Herman

      I use a G6 but I put down only the two I use and share. I’ve turned off all the other ones that are just annoying. By habit, I check my levels constantly throughout the day when I am working or doing things that might cause me to drop.

      3 years ago Log in to Reply
    10. Patricia Kilwein

      I use a guardian 3 sensor with a minimed 770g from medtronic. App is still not working and I get a notification that app is not compatible with my android system. So waiting on Medtronic to resolve this issue. Hope it’s soon.

      3 years ago Log in to Reply
    11. Kevin McCue

      I used to share with family but quit when they complained about the nuisance karma disturbing their work/school/life. They may come a day when I do it again but it will be out necessity not curiosity

      1
      3 years ago Log in to Reply
    12. Molly Jones

      I mistakenly chose “other” as I didn’t read the “loved ones”. I share my CGM data with my husband, my neurologist and endo.
      I should have chosen both high and low alerts, as my husband is the only one who receives the high and low alerts in case I need immediate help.
      The other two receive the data to help me with my ongoing health and treatment. They are appreciated, but not loved ones.

      3 years ago Log in to Reply
    13. Ahh Life

      The guy sitting next to me at the monthly diabetic meeting pulled out his Medtronic 630G and said, “Hmm, 196.”

      I then pulled out my tSlim X2 and said, “See you two and raise you two.”

      The room erupted in laughter. Guess they thought we were playing poker. 😵

      2
      3 years ago Log in to Reply
    14. Kristen Clifford

      I need to get CareLink set up on my husband’s phone.

      3 years ago Log in to Reply

    If you use a CGM and share your CGM data with any of your loved ones through an app, for which types of CGM alerts does your network receive notifications? Select all that apply! Cancel reply

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