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    • 9 hours, 32 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 9 hours, 32 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 10 hours, 48 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 10 hours, 48 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 10 hours, 48 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 10 hours, 49 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 10 hours, 50 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 10 hours, 51 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 10 hours, 51 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 10 hours, 52 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 12 hours, 53 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 13 hours, 31 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 13 hours, 31 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 14 hours, 14 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 14 hours, 37 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 15 hours ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 15 hours ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 15 hours, 1 minute ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 15 hours, 16 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 16 hours, 17 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 16 hours, 17 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 7 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day, 7 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day, 7 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 13 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    Happy Mother’s Day to all the moms living with T1D, moms of children with T1D, and T1D caregivers out there! If you have navigated pregnancy while living with T1D, were there any resources that were particularly helpful to you? Tell us about them in the comments!

    Home > LC Polls > Happy Mother’s Day to all the moms living with T1D, moms of children with T1D, and T1D caregivers out there! If you have navigated pregnancy while living with T1D, were there any resources that were particularly helpful to you? Tell us about them in the comments!
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    When you fly on an airplane, do your blood sugars typically fluctuate outside of your typical patterns?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    14 Comments

    1. HMW

      Think Like A Pancreas by Gary Scheiner has a section on the fluctuations in insulin sensitivity during pregnancy which was very helpful. Having a Dexcom cgm was the best tool I had. And having close communication with my endocrinologist and certified diabetes educator for support. My baby had to spend 5 days in NICU to get his BG elevated to normal range but that also gave me time to recover from my c-section.

      1
      5 years ago Log in to Reply
    2. Lorri McLuckie

      I had a fantastic endocrinologist who helped me navigate through my 2 pregnancies (1983 and 1986), using only MDI and blood sugar testing based on color change on the test strips which only gave a blood glucose range such as 80-120 (glucose meters were not yet covered by my insurance).

      2
      5 years ago Log in to Reply
    3. Sally Numrich

      No CGMS at the time but with a great medical team, we had two smooth pregnancies! Endo, high risk OB, CDE, RD. Monthly ultrasounds with weekly towards the end. Lots of testing. My blood testing meter was my best friend testing like 15 times a day,

      1
      5 years ago Log in to Reply
    4. Marla Peaslee

      My best resource was my medical team. Daily contact with my CDP. The next best resource was the book, What To Expect When Your Expecting..

      1
      5 years ago Log in to Reply
    5. Janis Senungetuk

      There wasn’t much to offer in 1970. I’d have blood test ordered by my GP and find out the results the next week. I saw the OB-GYN on a monthly basis for the first four months, show him my urine test logbook and have my blood pressure and weight checked.I didn’t know anyone else who was living with T1, much less anyone else who was pregnant and living with T1.We were living in San Francisco, yet I was totally issolated from any resources that might have helped. At five months I started experiencing high blood pressure issues and started seeing the OB every other week. My husband and I were both completing our undergrad studies, so it was a stressful time, in addition to the pregnancy. A month to the day after graduation our daughter was born, by c-section, six weeks early. I had preeclampsia, had been in the hospital over the weekend, the delivery was induced and she arrived early Monday morning. We were well enough to leave the hospital together four days later.

      3
      5 years ago Log in to Reply
    6. Germaine Sarda

      My endo told me that I shouldn’t have the child I was pregnant with since my control wasn’t good. I found a specialist in high risk pregnancies and delivered a healthy baby with no complications. The specialist never used threats or scare tactics but rather guided me through a healthy pregnancy. If your doctor uses scare tactics, pregnant or not, find another one.

      5 years ago Log in to Reply
    7. Chris Deutsch

      With my second pregnancy in Taos, NM, 40-ish years ago, I started using a blood sugar meter for the first time. I think it was an Accu-check, and it was revolutionary!!

      5 years ago Log in to Reply
    8. Sara Weaver

      CGM! I started using CGM 15 years ago when pregnant w my 2nd child. It was soooo helpful! For my 1st child, I didn’t have CGM and tested my BG 12x/d w finger sticks. Love CGM!

      5 years ago Log in to Reply
    9. Kimberly Green

      pregnancy with Type 1 Diabetes book.

      1
      5 years ago Log in to Reply
    10. Jneticdiabetic

      My care team, which included my endo, OBGYN, and at the end of each pregnancy, a perinatologist. Also my CGM, though they weren’t as accurate in 2007-2009 and lots of general pregnancy books. BG was generally more stable during pregnancy. I was lucky to have two uncomplicated pregnancies and managed to carry both to 38-39wks. They were BIG ( ~10lbs each).

      5 years ago Log in to Reply
    11. Amy Schwinghammer

      “Pregnancy with Type 1 Diabetes” by Ginger Vieira and Jennifer Smith. I’m currently re-reading through my second pregnancy and it is SOOOO helpful!

      5 years ago Log in to Reply
    12. Alejandra Marquez

      I have been part of diabetes Sisters since I found them they were and are my support group for everthing. Plus, I met Gary Gary Scheiner https://integrateddiabetes.com/ and got the pregnancy coach services with Jennifer Smith, She was the best of the best during my pregnancy and after. Also she has a book for T1D pregnancy with Ginger Viera that is 100% recommendable.

      5 years ago Log in to Reply
    13. Molly Jones

      Didn’t make it through

      5 years ago Log in to Reply
    14. Donna Clemons

      Being Type 1 Celiac Epilepsy get along pretty well. Hate Tubing. Omni Pod loved . Counting carbs is not me. Foods I eat are vegs. And meats. Not fun.

      5 years ago Log in to Reply

    Happy Mother’s Day to all the moms living with T1D, moms of children with T1D, and T1D caregivers out there! If you have navigated pregnancy while living with T1D, were there any resources that were particularly helpful to you? Tell us about them in the comments! Cancel reply

    You must be logged in to post a comment.




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