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    • 3 hours, 23 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 3 hours, 24 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 4 hours, 39 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 4 hours, 39 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 4 hours, 40 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 4 hours, 41 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 4 hours, 41 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 4 hours, 42 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 4 hours, 43 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 4 hours, 43 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 6 hours, 45 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 7 hours, 23 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 7 hours, 23 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 8 hours, 6 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 8 hours, 28 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 8 hours, 51 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 8 hours, 52 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 8 hours, 52 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 9 hours, 7 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 10 hours, 8 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 10 hours, 9 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 1 hour ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day, 1 hour ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day, 1 hour ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 6 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    Has your diabetes care provider ever discussed with you how to manage T1D while you have a cold or flu?

    Home > LC Polls > Has your diabetes care provider ever discussed with you how to manage T1D while you have a cold or flu?
    Previous

    Have you been diagnosed with T1D since COVID-19 became widespread in the U.S. (mid-March 2020)?

    Next

    If you wear a device, how many times in the past month have you accidentally ripped out a sensor or pump site?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    13 Comments

    1. Clare Fishman

      To be fair I have never asked.

      5 years ago Log in to Reply
    2. Molly Jones

      I have had most all of my Endos discuss this and the temporary basal rates needed. The possibility that my BG goes low instead of high has been brought up a few times.

      5 years ago Log in to Reply
    3. Ahh Life

      When it comes to “how to manage,” I am usually the provider, counselor, educator and the diabetes care person listens. Eagerly! ⚠ Isn’t it surprising how much you can learn when listening? ᕙ(`▿´)ᕗ

      5 years ago Log in to Reply
    4. Abigail Elias

      I’ve never felt a need for me to ask or for my care provider to discuss.

      5 years ago Log in to Reply
    5. connie ker

      I have read everything I can about T1D, lived with it for 22 years, and even took a class with a workbook that I still consult. For sick days, it is keep fluids going, know your numbers, take tylenol or certain cold flu medicines, take insulin but adjust to correct numbers, eat what you can tolerate and pray you will feel better soon. Clear liquids are a good place to start and hope they stay down.

      5 years ago Log in to Reply
    6. Rose Lentzke

      I have a sick day basal rate that I use when inactive due to illness. My endocrinologist was impressed. She usually doesn’t question what I do to stay in range.

      5 years ago Log in to Reply
    7. Danielle Eastman

      Found out the hard way!

      5 years ago Log in to Reply
    8. joan Fray

      Totally agree with Ahh Life -I, over course of 60 year affair with T1d, have learned what to do. Only problem comes when I can’t keep liquids down. Then electrolytes get out of balance and all bets are off. I keep rx for nausea in my purse, and diabetes go bag at all times. Probably kept me out of ER twice.

      5 years ago Log in to Reply
    9. cynthia jaworski

      I never asked. As always, be careful and watchful. If ill, be more so.

      5 years ago Log in to Reply
    10. ConnieT1D62

      Not lately. She asked me what I typically do for sick day management as part of her intake assessment when I started seeing her about 16 years. It’s never come up again because she knows I know what to do to take of myself with colds or flu. If I need to consult her about anything that comes up clinically she is just an email, phone call or text message away.

      5 years ago Log in to Reply
    11. Christina Trudo

      because this is one of the extreme basics of Need to Know stuff, it has been covered by most new providers. From time to time i have asked a CDE for an update just because I don’t get sick often and tend to forget. To all those who have said No, and especially those who commented “I never asked”, this is something a diabetes specialist absolutely should cover, and I might question one who doesn’t have it on a checklist of things to make sure you know when you are a new patient to them. After 58 years I have often asked for an educator appointment every few years just to make sure I have the basics still in mind. I was never one that was on top of all the newest stuff, though that is less so with the advent of the internet, but I tend not to give credence to most things I hear from those online who think they know it all….. usually they know all about their diabetes and body, at best.

      5 years ago Log in to Reply
    12. Pat Reynolds

      Covered in DAPHNE – I had the pumpers variant – a useful addition – plus it is useful to have it written down so that someone else an take over adjusting rates, etc, should I be incapacitated (must admit,I forsaw this as needful for holidays on remote islands, not for plague).

      5 years ago Log in to Reply
    13. Megan L

      Like a few others have said (as usual I can only see five comments), I haven’t, but I know what to do by now. My endo asks if I’ve been sick since my last appointment and asks how my diabetes was, but that’s about it. I’ve been seeing him for quite a while. He’s not concerned about me not knowing how my body is when I’m sick.

      5 years ago Log in to Reply

    Has your diabetes care provider ever discussed with you how to manage T1D while you have a cold or flu? Cancel reply

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