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    • 5 hours, 46 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 16 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 16 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 17 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 19 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 23 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 1 hour ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 1 hour ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 1 hour ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 1 hour ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 1 hour ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 2 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 2 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 17 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 17 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 19 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 20 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 21 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 23 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 23 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 3 days ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 3 days ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Has a T1D diagnosis (yours or a loved one’s) influenced you to pursue a career in health care?

    Home > LC Polls > Has a T1D diagnosis (yours or a loved one's) influenced you to pursue a career in health care?
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    Without looking at any devices, do you know off the top of your head roughly how much insulin you take in a day?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    25 Comments

    1. Molly Jones

      A previous medical condition of epilepsy influenced my desire to understand this thing called a human body. My T1D diagnosis along with the difference my epilepsy compared to other family member’s epilepsies (who do not have T1D), has kept the interest strong to stay on top of published articles and volunteer in research, but my abilities for working are limited.

      5 years ago Log in to Reply
    2. GiGi Roark

      I was diagnosed a month after my tenth birthday in 1972. My doctor said I had a strong aptitude for working in the medical field. I did well in biology class and I loved learning about the human body. Unfortunately I had another undiagnosed condition that my teachers noticed but my parents didn’t see it. It became very debilitating in Jr high and high school. I wasn’t able to enjoy a social life because I was far too uncomfortable around people. It wasn’t because of my diabetes. I still took classes that would prepare me for a career in medicine. In my senior year I realized that I wasn’t going to be able to pursue my dream because of my social anxiety. It wasn’t until I was 43years old that I was diagnosed with an Autism Spectrum disorder (Asperger’s) after my young son was. I still have interest in how the body works and I’ve kept myself healthy for 48 years of T1D.

      5 years ago Log in to Reply
    3. Steven Gill

      I was diagnosed maybe 2 years after I stopped a semi, tend to think I had glucose problems back than (major fatigue, constant hunger and thirst). Otherwise my “career” hasn’t be influenced by diabetes, although individual tasks need constant care.

      5 years ago Log in to Reply
    4. Bob Durstenfeld

      When I college in 1977, I was admitted to Medical School. I was talked out of acceptance by the course advisor who thought that the 24-hour shifts would be unmanageable. This was decades before fingersticks, insulin pumps or CGM. I went on to a great career in engineering and marketing. My eldest son, also with T1D went to medical school and is now a cardiology fellow. He managed the 24-hour shifts just fine. He has a two-year-old daughter who also has T1D.

      5 years ago Log in to Reply
    5. Beth Franz

      Dx’d at age 40 after years working in Finance. Now that I’m semi-retired looking for a career change. I would love to understand how to become a CDE (or something equivalent) without having to go through nursing school? I’ve done research and can’t quite get a full picture of how that would work.

      5 years ago Log in to Reply
    6. Daniel Bestvater

      Yes, I became a pharmacist and diabetes educator to better understand Type 1 and to help others with the condition.

      5 years ago Log in to Reply
    7. Nevin Bowman

      No, but it has been tempting at times. It often feels like I know more about diabetes than health care providers. If the mountain of needed study was a little smaller, I might still consider it.

      5 years ago Log in to Reply
    8. Amanda Barras

      I have had 2 different NPs suggest I go into medicine because of how knowledgeable I was about my own care. I never did tho.

      5 years ago Log in to Reply
    9. Kathy Hanavan

      It didn’t affect my desire to become an NP, but I did ultimately choose to work in a diabetes clinic which was work that I loved. I am now retired.

      5 years ago Log in to Reply
    10. Jean Graham

      I have considered becoming a CDE. I have a masters degree in an (semi) unrelated field and would not be able to attend school full-time.

      5 years ago Log in to Reply
    11. Brenda Roberts Moosa

      It CHANGED my career from being a therapist in an office to being a stay at home mom managing twins with T1D

      5 years ago Log in to Reply
    12. Jana Foley

      No, going into healthcare of any kind has never been something I would consider. Some of us just weren’t created for that type of work.

      5 years ago Log in to Reply
    13. Cheryl Swenson

      I have considered something like CDE to help other parents with handling T1D care for their kids, but have not pursued it.

      5 years ago Log in to Reply
    14. Candace Jackson

      T1D has actually influenced me to not pursue a career in health care!!!

      5 years ago Log in to Reply
    15. Kristine Warmecke

      I don’t know that it was soul my brother’s T1D at 7 months old that made me want to become RN, I know it played a role. Even as a young child, I was the care giver in our family. Even after I was dx. in 1982 at age 11, it didn’t didn’t sway me one way or another. I was just born to be a RN, as cliché as it is, it’s my calling.

      5 years ago Log in to Reply
    16. connie ker

      My HealthCare career was in my home with 3 of us being type 1 diabetics. Mom, Dad, and Son. That was a health career private duty!

      5 years ago Log in to Reply
    17. ConnieT1D62

      Yes. The diabetes self-care resistance & complacency of my early adult years eventually transformed into passionate diabetes self-care knowledge and understanding through lived experience. After I recovered from an episode of near death DKA I wanted to learn, grow and share diabetes life experience with others. I started by hanging out as a volunteer at the local ADA office and eventually was trained as a peer advocate, which involved attending structured classes designed to facilitate peer support groups for PWDs – both T1s and T2s. Eventually I was blessed to connect with a DCCT team in NYC, whereby I was recruited to participate in various studies related to young adults and diabetes. The doctors and nurses I met during this phase of my life (several of whom had T1D themselves) inspired me to pursue a career as a health care professional. I chose nursing. Despite living with T1D since age 8, and being part of DCCT studies, it took many years to earn the CDE credential once I became a RN. In 2016 I earned a MSN with a clinical specialty in diabetes nursing, education and program management. Now the CDE credential has transformed into CDCES – Certified Diabetes Care & Education Specialist.

      5 years ago Log in to Reply
    18. Trina Blake

      As I look back, I was Dx’d with T1D when I was 30 years old, so it’s been almost 40 years with it, it’s a case of coulda, woulda, shoulda. My gut was telling me to aim for med school. But as I got closer, the student debt intimidated me. Then many years later, the T1D. Like another responder said, working as a CDE would be rewarding. But my degrees aren’t in the right fields. I’ve often wondered if having a CDE certification program that included the RN, RD and exercise physiotherapy courses pertinent to D mgt would be a good idea. a good idea. As an example, why would an RN CDE need to have classes in surgical support procedures? It could also help dealing with the expected shortage of Endo’s. Yeah we couldn’t Rx, but working in an Endo practice would take care of that.

      5 years ago Log in to Reply
    19. Jennifer Wilson

      While I am not interested in a healthcare career, I do have an interest in being a stronger healthcare advocate for communities as a whole. A lot of people don’t know the care they could or should receive because they have not been exposed to a high quality of care or what should be the “standard” quality of care. A community who cares together is strong together.

      5 years ago Log in to Reply
    20. Tina Roberts

      Gosh no.

      5 years ago Log in to Reply
    21. Patricia Maddix

      I was diagnosed at age 12. Even as a child I had a lot of interest in cooking and food and after being around dietitians a lot in my early years decided that would be a profession that I would enjoy. I went on to get my degree and became a registered dietitian and eventually worked as a diabetes educator Until I retired in 2012

      5 years ago Log in to Reply
    22. Donna Condi

      I was 42 when diagnosed and at the end of my career. But had it come earlier I may have pursued a career as a dietitian.

      5 years ago Log in to Reply
    23. Nicholas Argento

      I was diagnosed at 8 yo, in 1968, and decided I wanted to be a doctor. A psychiatrist would likely say that was identification with the aggressor. But it worked to keep me focused, and to not become hopeless- the prognosis was more grim than promising for my cohort. I decide to be a diabetes specialist, did it, and never looked back. There is so much to offer now!

      5 years ago Log in to Reply
    24. Phyllis Biederman

      It is the reason I chose a second career as a nurse. I had wonderful nurses who taught me about my diabetes, opening my eyes to how we can live a happy, healthy life with T1 diabetes. I got the science behind it, because it has practical applications. And being in this field allows me to share, learn from others, learn about new technologies And advances in this field and I love the wholistic educational approach of nursing.

      5 years ago Log in to Reply
    25. Andrea J. Schedel

      I got a CNA license to care for a friend’s mom who had kidney failure due to T1D. I was with her 8 years through her death. It broke my heart. I’m too empathetic and at high-risk for Covid 19 & can’t do it anymore. I still want to do something in the medical field, but have no idea what.

      5 years ago Log in to Reply

    Has a T1D diagnosis (yours or a loved one's) influenced you to pursue a career in health care? Cancel reply

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