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    • 4 hours, 50 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 4 hours, 51 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 5 hours, 1 minute ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 5 hours, 1 minute ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 5 hours, 9 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 5 hours, 22 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 5 hours, 58 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 5 hours, 58 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 5 hours, 58 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 9 hours, 7 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 11 hours, 55 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 22 hours, 37 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 day, 3 hours ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 4 hours ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 6 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
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    People with T1D, if you went trick-or-treating after diagnosis, were you allowed to keep your candy? Tell us about your experience in the comments!

    Home > LC Polls > People with T1D, if you went trick-or-treating after diagnosis, were you allowed to keep your candy? Tell us about your experience in the comments!
    Previous

    Today is the start of National Diabetes Awareness Month! Based on your experience, what percentage of the general population do you think knows the difference between type 1 diabetes and type 2 diabetes?

    Next

    With Daylight Savings Time ending this weekend, do you usually remember to change the time on your pump, meter and any other devices on the day of the change? Select any statements that apply to you.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    13 Comments

    1. Kathy Krapohl

      I was Dx at 24 !

      5 years ago Log in to Reply
    2. Kristine Warmecke

      Our parent’s, my middle brother & I both were dx. as children, let us pick out a few pieces to keep and then bought the rest from us. Minus the special, made just for us treats that some of our neighbors made. One of the joys of growing up in a rural small town in the 70’s & 80’s.

      5 years ago Log in to Reply
    3. Jim L

      I was dx at 15 so I have some fond memories of walking for miles then eating all I could hold. The good old days now it would 1 piece max!

      5 years ago Log in to Reply
    4. Amy Schneider

      When I was a kid the neighbors all bought sugar-free candy or fruit for me.

      5 years ago Log in to Reply
    5. Lizzi Skywalker

      My parents would go around to certain houses and give them sugar free candies to give to only me whenever I showed up, so that I could keep my candies and I wouldn’t feel left out.

      5 years ago Log in to Reply
    6. Richard Vaughn

      I was diagnosed in 1945 when I was 6. My family lived on a small farm and we did not have neighbors nearby. I never did trick or treating while growing up. Did kids do that back then?

      5 years ago Log in to Reply
    7. Jeannette Stratton

      I chose “other” because I was diagnosed at 18 years old. I realize now that I was lucky to have those carefree, candy-eating years. I love the stories of sweet neighbors making special treats though!

      5 years ago Log in to Reply
    8. Marla Peaslee

      I was given sugar free candy and gum, plus a small toy to swap out my candy. I went trick or treating with my family and friends growing up.

      5 years ago Log in to Reply
    9. Britni Steingard

      For the first few years my parents let me pick a couple favorites to keep for special occasions or for when I had a low blood sugar. Otherwise I traded my candy for money (a nickel per piece of candy, I think) and then my dad would take me to the toy store.

      5 years ago Log in to Reply
    10. Heidi Kay Williams

      My brother was 5 years younger than me. As a young teenager I would trade my candy for him to do chores for me – like I’d sell him 4 snickers to unload the dishwasher. I did keep the Reece’s all to myself.

      5 years ago Log in to Reply
    11. Vicki Andersen

      I was diagnosed at 23, so no one made that decision for me. I was an adult.

      5 years ago Log in to Reply
    12. GiGi Roark

      I was diagnosed in 1972 at the age of ten. My doctor advised my mom that in order to keep me from rebelling and feeling resentment over being a diabetic, it would be best to let me eat what other kids do, but to keep me active, and of course don’t allow me to gorge myself on sweets or any other junk food.

      5 years ago Log in to Reply
    13. Leona Hanson

      When I was 7years old I was diagnosed pre diabetic the doctor told my mom to reduce my suger down to very little but she would let me eat my halloween candy but if I ate to much it would make me sick so I typed to eat very little on my own now being T1D and an adult I eat very little candy but to bring up a low

      5 years ago Log in to Reply

    People with T1D, if you went trick-or-treating after diagnosis, were you allowed to keep your candy? Tell us about your experience in the comments! Cancel reply

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