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    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 9 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 14 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 15 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 15 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 16 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 10 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 12 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 15 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 15 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    People with T1D, if you went trick-or-treating after diagnosis, were you allowed to keep your candy? Tell us about your experience in the comments!

    Home > LC Polls > People with T1D, if you went trick-or-treating after diagnosis, were you allowed to keep your candy? Tell us about your experience in the comments!
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    Today is the start of National Diabetes Awareness Month! Based on your experience, what percentage of the general population do you think knows the difference between type 1 diabetes and type 2 diabetes?

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    With Daylight Savings Time ending this weekend, do you usually remember to change the time on your pump, meter and any other devices on the day of the change? Select any statements that apply to you.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    13 Comments

    1. Kathy Krapohl

      I was Dx at 24 !

      5 years ago Log in to Reply
    2. Kristine Warmecke

      Our parent’s, my middle brother & I both were dx. as children, let us pick out a few pieces to keep and then bought the rest from us. Minus the special, made just for us treats that some of our neighbors made. One of the joys of growing up in a rural small town in the 70’s & 80’s.

      5 years ago Log in to Reply
    3. Jim L

      I was dx at 15 so I have some fond memories of walking for miles then eating all I could hold. The good old days now it would 1 piece max!

      5 years ago Log in to Reply
    4. Amy Schneider

      When I was a kid the neighbors all bought sugar-free candy or fruit for me.

      5 years ago Log in to Reply
    5. Lizzi Skywalker

      My parents would go around to certain houses and give them sugar free candies to give to only me whenever I showed up, so that I could keep my candies and I wouldn’t feel left out.

      5 years ago Log in to Reply
    6. Richard Vaughn

      I was diagnosed in 1945 when I was 6. My family lived on a small farm and we did not have neighbors nearby. I never did trick or treating while growing up. Did kids do that back then?

      5 years ago Log in to Reply
    7. Jeannette Stratton

      I chose “other” because I was diagnosed at 18 years old. I realize now that I was lucky to have those carefree, candy-eating years. I love the stories of sweet neighbors making special treats though!

      5 years ago Log in to Reply
    8. Marla Peaslee

      I was given sugar free candy and gum, plus a small toy to swap out my candy. I went trick or treating with my family and friends growing up.

      5 years ago Log in to Reply
    9. Britni Steingard

      For the first few years my parents let me pick a couple favorites to keep for special occasions or for when I had a low blood sugar. Otherwise I traded my candy for money (a nickel per piece of candy, I think) and then my dad would take me to the toy store.

      5 years ago Log in to Reply
    10. Heidi Kay Williams

      My brother was 5 years younger than me. As a young teenager I would trade my candy for him to do chores for me – like I’d sell him 4 snickers to unload the dishwasher. I did keep the Reece’s all to myself.

      5 years ago Log in to Reply
    11. Vicki Andersen

      I was diagnosed at 23, so no one made that decision for me. I was an adult.

      5 years ago Log in to Reply
    12. GiGi Roark

      I was diagnosed in 1972 at the age of ten. My doctor advised my mom that in order to keep me from rebelling and feeling resentment over being a diabetic, it would be best to let me eat what other kids do, but to keep me active, and of course don’t allow me to gorge myself on sweets or any other junk food.

      5 years ago Log in to Reply
    13. Leona Hanson

      When I was 7years old I was diagnosed pre diabetic the doctor told my mom to reduce my suger down to very little but she would let me eat my halloween candy but if I ate to much it would make me sick so I typed to eat very little on my own now being T1D and an adult I eat very little candy but to bring up a low

      5 years ago Log in to Reply

    People with T1D, if you went trick-or-treating after diagnosis, were you allowed to keep your candy? Tell us about your experience in the comments! Cancel reply

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