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    • 5 hours, 55 minutes ago
      Amanda Ratliff likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      Obtaining access with T1 with insulin resistance is incredibly difficult and unaffordable.
    • 5 hours, 55 minutes ago
      Amanda Ratliff likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      Only can take Zepbound if insurance is willing to cover it because I don’t have a T2 dx required for Monujaro, etc. Zepbound is cost prohibitive and Monujaro is much more affordable, even tho they are the exact same product in different packaging. Before the Zepbound price Increase and/or insurance not covering it at all, I was very successful on it but was only able to take it for 9 months. They need to open these medications for severely insulin resistant T1s like myself.
    • 12 hours, 52 minutes ago
      Deborah Wright likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 13 hours, 57 minutes ago
      atr likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Yes. I was diagnosed in 2008 or 2009. I don't know how to explain how difficult it is living with celiac disease. It affects everything I eat. Eating at restaurants or other peoples houses, pot-luck dinners are high risk. There are many foods, or food supplements that have hidden gluten ingredients, such as soy sauce, caramel, licorice, and many more. I avoid eating food that other people cook. There is no such thing as a gluten free restaurant, unless the restaurant is completely gluten free (cross contamination of foods). Any food that may contain wheat, rye and barley cannot be eaten. Also, oats are a risk because of cross contamination with wheat, rye or barley. I bake my own bread from gluten free flour. There are lots of books and articles on the subject, but it is mostly learn as you go.
    • 14 hours, 44 minutes ago
      Kristi Warmecke likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 14 hours, 44 minutes ago
      Kristi Warmecke likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Also tested negative. That should have been an option.
    • 15 hours, 56 minutes ago
      Sarah Berry likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Tested. No celiac
    • 15 hours, 56 minutes ago
      Sarah Berry likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 17 hours, 14 minutes ago
      Derek West likes your comment at
      Have you noticed a difference in how hot versus cold caffeinated drinks affect your glucose levels?
      I do not drink cold caffeinated drinks!
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      Have you noticed a difference in how hot versus cold caffeinated drinks affect your glucose levels?
      I don’t drink caffeinated drinks.
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Have any of your T1D devices ever been recalled? Share in the comments on what steps you took after learning about the recall.
      No recalls, but there should be one right now for Tandem infusion sets. The new sets are impossible to remove when trying to separate in order to take a shower. Even my health care provider tried her luck with mine and failed. The times when I would just have to rip the whole thing off for a shower and then put a new one back on afterwards are accumulating. I have started to keep a record of how much insulin is being wasted and how many times it occurs. Called Tamden twice and so far got not much more than a "call us back if it continues".
    • 2 days, 15 hours ago
      Mike S likes your comment at
      Have any of your T1D devices ever been recalled? Share in the comments on what steps you took after learning about the recall.
      I use Omnipod 5 pods and there have been recalls of these pods, however i did not have any of therecalled batches!
    • 3 days, 10 hours ago
      Kathy Hanavan likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      Only can take Zepbound if insurance is willing to cover it because I don’t have a T2 dx required for Monujaro, etc. Zepbound is cost prohibitive and Monujaro is much more affordable, even tho they are the exact same product in different packaging. Before the Zepbound price Increase and/or insurance not covering it at all, I was very successful on it but was only able to take it for 9 months. They need to open these medications for severely insulin resistant T1s like myself.
    • 3 days, 11 hours ago
      Hadley likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 13 hours ago
      Amanda Barras likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It was not hard if one is paying out of pocket, but that's the rub. Medicare won't cover unless your doc goes through a lot of hoops and can document that you also have insulin resistance/Type 2 in addition to Type 1.
    • 3 days, 13 hours ago
      Amanda Barras likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 15 hours ago
      Lawrence S. likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 16 hours ago
      TEH likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 4 days, 14 hours ago
      Lawrence S. likes your comment at
      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      NEVER HAVE AND NEVER WILL. PERIOD.
    • 4 days, 14 hours ago
      Lawrence S. likes your comment at
      If you’re taking a GLP-1 medication, what side effects have you experienced? Select all that apply.
      I have been taking very low dose tirzepetide for about 6 months. Initially, I had some nausea which resolved after about a week. It is an amazing drug for us T1d's. My insulin dose is about 30% less with an increase in TIR and it is just easier to manage. I do not need to lose weight, but my doc who prescribes it a lot said I would not lose much and that is so. I lost about 7 lbs initially, but regained about 4 once the side effects wore off. Food noise is down which I didn't even realize was a particular issue. Paying out of pocket is onerous, but with low dose and a vial, it is not too bad.
    • 5 days, 9 hours ago
      Ahh Life likes your comment at
      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      I use a CBD/THC balm for joint and muscle pain.
    • 5 days, 9 hours ago
      atr likes your comment at
      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      I use a CBD/THC balm for joint and muscle pain.
    • 5 days, 12 hours ago
      lis be likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Take a deep breath. It is a marathon not a sprint. Get a good healthcare team including an endocrinologist, diabetes care and education specialist, and mental health professionals. Do your own research but use well respected sources.
    • 5 days, 12 hours ago
      lis be likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      The curve-balls that life throws at you may seem like the cosmic unfairness of a brain-cancer diagnosis. But T1D is not like that. It's a condition, not a disease so much. But as such the condition will require attention, awareness, tight-rope walking, and the help of others if you fall off the high wire. And, man oh man, is it ever an exciting high-wire act. --〜⁠(⁠꒪⁠꒳⁠꒪⁠)⁠〜--
    • 5 days, 12 hours ago
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      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Educate yourself on this condition from many perspectives. From the professional level, the patients, and many different books of those living with it. Try and keep up to date with changing hypotheses of treatment. Get to know your body and digestion so you can choose the best insulin rates. Keep a daily diet along with activity and stresses to correlate to your blood glucose.
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    People with T1D, if you went trick-or-treating after diagnosis, were you allowed to keep your candy? Tell us about your experience in the comments!

    Home > LC Polls > People with T1D, if you went trick-or-treating after diagnosis, were you allowed to keep your candy? Tell us about your experience in the comments!
    Previous

    Today is the start of National Diabetes Awareness Month! Based on your experience, what percentage of the general population do you think knows the difference between type 1 diabetes and type 2 diabetes?

    Next

    With Daylight Savings Time ending this weekend, do you usually remember to change the time on your pump, meter and any other devices on the day of the change? Select any statements that apply to you.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    13 Comments

    1. Kathy Krapohl

      I was Dx at 24 !

      6 years ago Log in to Reply
    2. Kristine Warmecke

      Our parent’s, my middle brother & I both were dx. as children, let us pick out a few pieces to keep and then bought the rest from us. Minus the special, made just for us treats that some of our neighbors made. One of the joys of growing up in a rural small town in the 70’s & 80’s.

      6 years ago Log in to Reply
    3. Jim L

      I was dx at 15 so I have some fond memories of walking for miles then eating all I could hold. The good old days now it would 1 piece max!

      6 years ago Log in to Reply
    4. Amy Schneider

      When I was a kid the neighbors all bought sugar-free candy or fruit for me.

      6 years ago Log in to Reply
    5. Lizzi Skywalker

      My parents would go around to certain houses and give them sugar free candies to give to only me whenever I showed up, so that I could keep my candies and I wouldn’t feel left out.

      6 years ago Log in to Reply
    6. Richard Vaughn

      I was diagnosed in 1945 when I was 6. My family lived on a small farm and we did not have neighbors nearby. I never did trick or treating while growing up. Did kids do that back then?

      6 years ago Log in to Reply
    7. Jeannette Stratton

      I chose “other” because I was diagnosed at 18 years old. I realize now that I was lucky to have those carefree, candy-eating years. I love the stories of sweet neighbors making special treats though!

      6 years ago Log in to Reply
    8. Marla Peaslee

      I was given sugar free candy and gum, plus a small toy to swap out my candy. I went trick or treating with my family and friends growing up.

      6 years ago Log in to Reply
    9. Britni Steingard

      For the first few years my parents let me pick a couple favorites to keep for special occasions or for when I had a low blood sugar. Otherwise I traded my candy for money (a nickel per piece of candy, I think) and then my dad would take me to the toy store.

      6 years ago Log in to Reply
    10. Heidi Kay Williams

      My brother was 5 years younger than me. As a young teenager I would trade my candy for him to do chores for me – like I’d sell him 4 snickers to unload the dishwasher. I did keep the Reece’s all to myself.

      6 years ago Log in to Reply
    11. Vicki Andersen

      I was diagnosed at 23, so no one made that decision for me. I was an adult.

      6 years ago Log in to Reply
    12. GiGi Roark

      I was diagnosed in 1972 at the age of ten. My doctor advised my mom that in order to keep me from rebelling and feeling resentment over being a diabetic, it would be best to let me eat what other kids do, but to keep me active, and of course don’t allow me to gorge myself on sweets or any other junk food.

      5 years ago Log in to Reply
    13. Leona Hanson

      When I was 7years old I was diagnosed pre diabetic the doctor told my mom to reduce my suger down to very little but she would let me eat my halloween candy but if I ate to much it would make me sick so I typed to eat very little on my own now being T1D and an adult I eat very little candy but to bring up a low

      5 years ago Log in to Reply

    People with T1D, if you went trick-or-treating after diagnosis, were you allowed to keep your candy? Tell us about your experience in the comments! Cancel reply

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