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    • 5 hours, 49 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 7 hours, 15 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 7 hours, 16 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 7 hours, 16 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 9 hours, 28 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 9 hours, 29 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 9 hours, 30 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 10 hours, 12 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 11 hours, 35 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 13 hours, 32 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 4 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 4 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 4 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 4 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 5 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 6 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 7 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 7 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 11 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 13 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 13 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    Have you ever asked a hotel to provide a refrigerator so you can keep your insulin cool? Select all that apply.

    Home > LC Polls > Have you ever asked a hotel to provide a refrigerator so you can keep your insulin cool? Select all that apply.
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    Has your insulin ever accidentally frozen in a refrigerator? If so, please share more in the comments

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    After having blood drawn at a lab, how do you review the results? Please select all that apply.

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    19 Comments

    1. kristina blake

      I use Frio bags. Too often hotel refridgerators run too cold

      1
      2 years ago Log in to Reply
    2. Gary Rind

      I use pens so it isn’t an issue

      2 years ago Log in to Reply
    3. Gary Taylor

      No because every hotel I stay in has a refrigerator in their rooms.

      2
      2 years ago Log in to Reply
      1. Anita Stokar

        Same here

        2 years ago Log in to Reply
    4. Lawrence S.

      Yes, I always request a refrigerator. I always keep my unused insulin refrigerated.

      Here’s an ongoing experience, loosely related to this question. I am currently on vacation at a Florida beach. I meticulously packed all of my T1D supplies. But, wouldn’t you know it that when I reached in the refrigerator to pack food to take with me, I did not grab my Novolog insulin. I spent the entire day, yesterday, Thursday 5/25, talking to my insurance company, my doctor’s office, and several pharmacies, trying to get one vial of Novolog. I jumped through lots of hoops to get to the final step. Then, the pharmacist tells me that he’s out of Novolog (CVS). I went to Publix pharmacy and had to go through a prescription transfer process. When I get that done, the pharmacist tells me she’s out of Novolog. I go to another Publix pharmacy, and they have one vial, but they will not release it for 24 hours. Several hours later the pharmacist calls me and says he cannot sell me the insulin under Medicare part D because Publix has a policy that I have to insulin for a pump under Medicare part B. He won’t tell me the price, but says I have to wait until today to get it. He says I can get it under GoodRX for $88.
      My wife and I finished dinner at a local restaurant. At 8:00pm, we jumped into the care and drove 2hours home. Got back to our hotel after Midnight.
      The moral, don’t forget to pack the insulin!

      2
      2 years ago Log in to Reply
      1. Lawrence S.

        4/25, not 525. Also “Jumped into the car,” not “care”

        2 years ago Log in to Reply
    5. Sue Martin

      I used to have to ask for a refrigerator but nowadays many rooms come standard with them.

      2
      2 years ago Log in to Reply
    6. TomH

      I use a Frio pack when I travel so am not overly concerned; however, I expect hotels and cruise ships in the US and most of the developed world to provide a refrigerator/cooler in my room and they always have. However, I have traveled in Middle East and Africa (before T1 diagnosis) where some locations did not provide them. For long term travels, I’d request one or make other arrangements.

      2 years ago Log in to Reply
    7. Patricia Dalrymple

      I like to keep it cold and not all hotels I’ve stayed in supply them so I always ask. However, we are taking a train across the US and Canada soon and they do not provide refrigerators nor will they allow you to keep it in theirs. So I got a small rechargeable refrigerator that I saw online, but am now deciding to let the insulin get warm. Can only have a small suitcase and a personal item and I don’t want to check my bags. Fingers crossed.

      1
      2 years ago Log in to Reply
      1. KarenM6

        Hi Patricia –
        If there’s time before your trip, I would suggest ordering and using a product called Frio. You put it in water for 5 to 15 minutes (depending) to activate the “crystals” and then evaporation keeps the insulin cool for a few days. I’ve used it a number of times and like it a lot. It’s not a refrigerator cold, but the insulin will stay cool. After a few days, the holders just go back in water for a short time to reactivate the “crystals”. Just don’t oversoak or you won’t be able to get the vials or pens into the holder.
        I hope this helps!

        1
        2 years ago Log in to Reply
      2. Bob Durstenfeld

        Use a FRIO pack, it uses evaporation to keep insulin at 70 degrees

        2 years ago Log in to Reply
    8. James Phelps

      Always make sure there is a refrigerator in the room when making reservations

      1
      2 years ago Log in to Reply
    9. john36m

      If no regrigerator, I use an ice bucket.

      1
      2 years ago Log in to Reply
    10. Jeff Balbirnie

      Unless were talking Arizona, Texas, New Mexico, etc. type heat there are very few places IMHV where anyone would need to keep it anything but regular room temp. If it’s hot to that extent, sure maybe, but not usually required…

      2 years ago Log in to Reply
    11. PamK

      I did this before it became common place for hotels to include a mini fridge in each room. One time, there was no fridge available, so I had to keep my insulin in ice water overnight and put my blue ice in an ice bucket to try to refreeze it (didn’t work!).

      2 years ago Log in to Reply
    12. Maurine Bowser

      Yes when used insulin had to be refrigerated. Now the insulin being used can be at room temperature. I use a Frio pack on long trip occasionally.

      2 years ago Log in to Reply
    13. T1D4LongTime

      We book only hotel rooms with refrigerators. If traveling on a cruise or non-hotel accomodations, I always request a refrigerator. You do have to protect the insulin against freezing though. I keep the vials in a padded case and put them on the lowest rack away from the freezer compartment. ALWAYS check the temp setting beforehand. Freezer compartment is a good place for the FRIO pack.

      2 years ago Log in to Reply
    14. Randy Molen

      I have in the past, but it was a long time ago.

      2 years ago Log in to Reply
    15. dholl62@gmail.com

      If hotel or cruise ship has a locked refrigerator I ask them if they’ll unlock it and I’ve never had them refuse

      2 years ago Log in to Reply

    Have you ever asked a hotel to provide a refrigerator so you can keep your insulin cool? Select all that apply. Cancel reply

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