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    • 8 hours, 30 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 8 hours, 35 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 8 hours, 42 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 3 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 3 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 3 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 3 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 5 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 8 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 9 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 10 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 11 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 11 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 11 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 11 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 11 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 12 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 12 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 3 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 3 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 6 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 6 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 7 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 9 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 9 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    If you use a CGM, at what glucose level is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at midnight in your local time zone.

    Home > LC Polls > If you use a CGM, at what glucose level is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at midnight in your local time zone.
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    While CGM sensors are approved to wear for 7 to 14 days, how many days do you find your CGM sensor gives you the most accurate readings?

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    If you use a CGM, at what glucose level is your “low” alert set? If you use multiple alert schedules, select the number that is your “low” alert at 12 p.m. in your local time zone.

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    23 Comments

    1. sdimond

      My high alarm is set at 120. any time spent above that level is damaging!

      2
      2 years ago Log in to Reply
    2. Michael Ratrie

      Mine is set for 140-180. I saw some posts from dedoc in 2022 that suggested a better range to more closely mimic the sugar-normals out there is 70-140. I’m trying to stay in that range for at least 70% of the day.

      2 years ago Log in to Reply
    3. Patricia Dalrymple

      I start my CGM next month. This is helpful because my salesperson masquerading as an educator has my test CGM set at 250. I will need to change that for real next month. I have to research how high a non-diabetic’s goes after they eat. I chose a Dexcom G7 and will be getting a TSlim pump next month as well after using Medtronic for 14 years. I read that most Medtronic users are older users and that new pumpers are choosing other pumps. Thank you to everyone on this list for invaluable information. We can read and make our own best decisions. Stay strong!

      4
      2 years ago Log in to Reply
    4. David & Kaleo of Team Nani

      I marked the 180, not b/c that’s where I want to correct, but b/c my wife is a light sleeper and I can’t handle the warning noise or vibrations if I hit 140 at some point between 11:30pm and 6:30am. While awake, I use carbs, exercise and insulin via my pump and occasional syringe doses to try to stay in 100-130 range.

      1
      2 years ago Log in to Reply
    5. Justin

      160. I used to have it set at 180, but found that once I hit 180 I usually will just continue to rise. At 160 I can get in front of a hyper. Of course timing is everything, if it is 160 right after a meal dose then I wait to correct, usually two hours as to not stack doses. MDI.

      2 years ago Log in to Reply
    6. JuJuB

      Glad to see there’s a measurable number of us who set our high alert below 140. Mine is set at 120, which is as low as the FDA allows. Too bad the FDA doesn’t want us to achieve tighter control than that.

      2 years ago Log in to Reply
    7. Gary Rind

      I set it at 140 – 150 during the day. Used to have it at 200 but the TCOYD endos suggested 150 so you can “head trouble off at the pass” with the lower number for the high alarm.

      3
      2 years ago Log in to Reply
    8. Mike S

      It switches from 160 during the day to 210 after midnight. I got so tired (literally) of being woken up by an alarm at 4 in the morning due to dawn phenom. Omni 5 seems to have corrected that issue, but a solid night’s sleep is just as important to my health as lowering blood sugar.

      1
      2 years ago Log in to Reply
    9. cynthia jaworski

      I usually keep my high alert turned off. (With libre you are allowed to do that.) However, when I want to track things closely after a meal, it is set for 130, in order to stay ahead of a rise.

      2 years ago Log in to Reply
    10. george lovelace

      Set to 180 but have Alarm Off as I’m on Tandem X2 and run 24/7 Sleep Mode even though I get 8hrs a Night, the vibration is usually enough to make me aware. A1c consistent Low 6’s and Zero Hypos- No Rebounds

      2 years ago Log in to Reply
    11. Janis Senungetuk

      My high alarm is set at 250. My endo set it there after I mentioned how many times I was awakened by high alerts between 2 and 4 AM. Her comment, at the time was that after 66 years living with T1, I wasn’t going to benefit by loosing sleep because of high glucose levels from dinner.

      3
      2 years ago Log in to Reply
    12. Lozzy E

      I have my low alert set at 6.7 – as low as it can go. When it goes above that, I take 2 units, so long as I don’t have any insulin on board about to take effect. Works very well for me.

      My alarm is silent overnight though, sleep is more important

      2 years ago Log in to Reply
    13. Eva

      During the night 180, but I just started wearing a Freestyle libre yesterday
      and it is not as good as DEXCOM. The readings are much, much
      lower than my reality. And, I’m thinking that is why they got a MARD of 7.9% –
      it just reads lower.
      Given this, I’m gonna have to lower my nightime alert.

      2 years ago Log in to Reply
    14. Steven Gill

      If you set a higher goal you’ll definitely reach it. My high alarm is 130, my last a1C was 5.7 (my average glucose is now 115: possibly 5.6?). I get waken a few times a week but with a pump will correct and roll over (been on insulin 23 years, kind of know how it works).

      I’ve asked but no response: is this new “time-in-range” (70-180) set by manufacturing companies or by the medical communities? is this attempting to replace the a1C as a standard for diabetic care after all the studies and trials?

      2 years ago Log in to Reply
      1. Trina Blake

        Supposedly by the AACE or some other org. To me a target range of 60-180 (!) is settling.

        2 years ago Log in to Reply
    15. sdimond

      Time in range is just the new way to present terrible glucose control as something good. Most doctors have no idea how to teach you to maintain actually normal blood glucose: that is around 83 with few excursions above 125. Read Richard K. Bernstein’s “The Diabetes Solution.”

      1
      2 years ago Log in to Reply
    16. Nevin Bowman

      120 daytime and 14 nighttime. And I get mad when it goes over that either time.

      2 years ago Log in to Reply
      1. Nevin Bowman

        140 nighttime, NOT 14!

        2 years ago Log in to Reply
    17. T1D4LongTime

      I use a Tandem TSlim X2 insulin pump with my Dexcom CGM. I run Sleep Mode 24/7 which means the pump does not do auto-correction boluses when I’ve hit a high (typically over 180). I have my High Alert set at 150 so I can manually correct a rising BG.

      1
      2 years ago Log in to Reply
      1. Anita Stokar

        I use sleep mode 24/7 also

        2 years ago Log in to Reply
    18. Becky Hertz

      Truck answer. My phone is set for 150, my pump is set at 180. This helps avoid alarm fatigue and also gives me more data.

      1
      2 years ago Log in to Reply
    19. Darla Yoder

      200 High
      55 Low

      2 years ago Log in to Reply
    20. Anita Stokar

      I set my high at 135. If I hit that high, I can then decide if I want to bolus or not. If I’m ready to start exercising for example, I won’t correct with a bolus as the exercise will be the correction.

      2 years ago Log in to Reply

    If you use a CGM, at what glucose level is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at midnight in your local time zone. Cancel reply

    You must be logged in to post a comment.




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