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    • 13 hours, 56 minutes ago
      Kristi Warmecke likes your comment at
      If you (or someone in your immediate family) have T1D, has anyone in your family been screened for T1D antibodies?
      Can we stop with the antibodies questions already?!??!!?!?
    • 20 hours, 7 minutes ago
      eherban1 likes your comment at
      If you (or someone in your immediate family) have T1D, has anyone in your family been screened for T1D antibodies?
      No. I doubt that there is an interest. I appear to be the anomaly in my family.
    • 1 day, 18 hours ago
      Patricia Dalrymple likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      A little concerned, more so than usual. I currently have insurance that covers diabetes supplies completely but I don’t take this for granted.
    • 1 day, 20 hours ago
      Lisa Sierra likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      I live in a constant fear of losing my health insurance, or having it change to something that makes all my durable medical and prescriptions too expensive.
    • 1 day, 21 hours ago
      Lawrence S. likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      I had a problem with my infusion sets being on back order but I have met my deductible all ready.
    • 1 day, 21 hours ago
      Lawrence S. likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      I live in a constant fear of losing my health insurance, or having it change to something that makes all my durable medical and prescriptions too expensive.
    • 1 day, 21 hours ago
      Lawrence S. likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      A little concerned, more so than usual. I currently have insurance that covers diabetes supplies completely but I don’t take this for granted.
    • 1 day, 21 hours ago
      Kathy Hanavan likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      I’ve been taking Rybelsus for 3 years now. I’ve lost 50+ pounds, reduced my insulin by 65% and have kept my A1C at a steady 6.3!!
    • 2 days, 8 hours ago
      Bekki Weston likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      I have used afrezza, the inhalable insulin
    • 2 days, 12 hours ago
      lis be likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      Yes, I tried metformin, Ozempic, and Zepbound. The only one that worked, and worked really well was zepbound. Unfortunately, when my insurance changed, I could no longer get it because it wasn't covered and the T2 version which is Mounjaro I could not get off lable because I am T1. Zepbound cut my insulin needs in half and I lost 30 lbs. I would take it again just for the insulin resistance tho. However, I have some lingering insulin resistance improvement even with discontinuing it in Sept, though I have gained a little weight back.
    • 2 days, 12 hours ago
      lis be likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      Currently using Mounjaro along with Humalog via my TSlim insulin pump, running control IQ.
    • 2 days, 16 hours ago
      Deborah Wright likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      i have used metformin
    • 2 days, 16 hours ago
      Deborah Wright likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      metformin
    • 2 days, 19 hours ago
      Anita Stokar likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      As an avid hiker, climber and mountaineer my challenges are mostly weather related. Is my pump warm enough, are my extra supplies warm enough, is my insulin starting to freeze.
    • 2 days, 19 hours ago
      Marty likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      I was taking metformin at the beginning of this journey, because at 40 they assumed T2. (No family history, not overweight, was running 3-4 miles 2-3x week). Put on insulin when endo diagnosed me with LADA.
    • 3 days, 18 hours ago
      Marty likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
    • 3 days, 18 hours ago
      Marty likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
    • 3 days, 19 hours ago
      mojoseje likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
    • 3 days, 20 hours ago
      atr likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
    • 3 days, 20 hours ago
      Bonnie kenney likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      If you don’t have accuracy and reliability, none of the rest matters.
    • 3 days, 20 hours ago
      Bill Ervin likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      If you don’t have accuracy and reliability, none of the rest matters.
    • 3 days, 20 hours ago
      Bill Ervin likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
    • 3 days, 20 hours ago
      Bill Ervin likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
    • 3 days, 21 hours ago
      Jaysen LeSage likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I find the hardest thing is getting started. Diabetes doesn’t really cause issues
    • 4 days, 12 hours ago
      ChrisW likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      Funny you should ask, and I'm with Amanda Barras - dealing with the US insurance and networks system. I switched health plans, effective 1/1/26. My old plan stopped processing Rx's two weeks before (Rx's for pump and CGM supplies). With the network system in US healthcare, I can't see a doctor until September. Since I have different coverage for my supplies (including insulin) I need new Rx's. Having to check in often to see if their are open appointments from cancellations, and trying to see if a Zoom care or Urgent care will provide "bridge refills". My old health plan will not issue bridge refills. I 'spose it isn't strictly a T1D issue - but it's one that unites all of us with chronic medical conditions (and chronic poor medical service)
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    How much have you spent (deductible, copay, out-of-pocket) on all of your diabetes supplies in the past three months?

    Home > LC Polls > How much have you spent (deductible, copay, out-of-pocket) on all of your diabetes supplies in the past three months?
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    Did you change, add or start any new diabetes related devices to your T1D care in the past year?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    14 Comments

    1. Justin

      This year (2023) in MA the insurance companies put CGMs and regular supplies behind the deductible. Next year, they include CGMs free of charge with the other blood glucose monitors, but the other regular supplies, e.g. test strips, etc are still behind the deductible. It makes for an expense start of the year unless you upgrade to a Gold plan with no deductible.

      2 years ago Log in to Reply
    2. Gary Rind

      none since I hit my OOP max due to a non-T1D related operation in March. it’s nice to have to pay for scrips!

      2 years ago Log in to Reply
    3. Annie Wall

      I paid $0 since I paid my Medicare Part B deductible in the first quarter of the year. I do buy glucose gummies during the year but I don’t track how much I spend.

      This will change in 2024 because I have switched to a Medicare Advantage plan where I pay no premium, compared to the $3500 I would have paid for my supplemental. The savings will be considerable even though we’ll have more out-of-pocket costs.

      2 years ago Log in to Reply
    4. mlettinga

      As its end of year its $0 but my deductible was $7200 this year and I almost always meet it within first 3-4 months at beginning of year.

      2 years ago Log in to Reply
    5. Megan S

      I maxed my insurance out of pocket more than 3 months ago so I’ve had zero cost supplies and prescriptions and appointments.

      1
      2 years ago Log in to Reply
    6. Jane Cerullo

      $210 for insulin
      $60 copay on InPen
      $30 for insulin needles

      2 years ago Log in to Reply
    7. Edward Geary

      Again, supplies are fairly modest. Copays and co-insurance costs were approximately $2,500.00.

      1
      2 years ago Log in to Reply
    8. KIMBERELY SMITH

      20.00

      2 years ago Log in to Reply
    9. Mick Martin

      $0. I live in the UK (United Kingdom of Great Britain and Northern Ireland) where ALL of my diabetes supplies are paid for by our NHS (National Health Service), which is financed via direct taxation of all working people that earn more than a given amount.

      1
      2 years ago Log in to Reply
      1. ELYSSE HELLER

        I wish that the USA would have a national health care system, but alas, we do not because BIG PHARMA lobies against such “socialism”. Healthcare is a right, not a privalige. Opponents of medicare for all in the USA also argue that “patients will have to wait too long to be able to see a provider”. Well, people in my country are always having trouble getting an appointment that is not 4 or so months away. I stayed in the UK for two years many years ago and was so very envious of the healthcare system over there. I hope that one day people in my country will wake up and stop being so scared of democratic socialism.

        1
        2 years ago Log in to Reply
      2. Mick Martin

        @ELYSSE HELLER. I appreciate what you say, ma’am, but I’m not so sure about Healthcare being a right, rather than a privilege. During my time in the Military, I’ve served in countries where the very basics, such as having clean water, sanitation, etc. are not even considered a “right”. After all, someone has to pay … in one way or another.

        I am aware of how SOME people in the United States view your Healthcare system as I’ve lost internet ‘friends’ over the years, with a few of them not being able to afford insulin. I’m also aware that SOME people would argue about paying for something, such as in the Healthcare system we have in the UK, and getting nothing in return.

        I agree that BIG PHARMA controls a lot of what decisions are made in respective Governments. This is why the British Government will not pay for certain drugs and/or treatments, which results in people having to “beg” for assistance to raise funds to travel to countries, such as the United States, where these medications and/or treatments are available.

        Politicians over here ‘harp on’ about how our NHS (National Health Service) is the envy of the world. I suppose that, in some respects, that is true, but not in all ways. (Some of the racist critics over here ‘waffle on’ about how people come to the UK specifically to use the NHS, knowing full well that they’ll never be ‘tracked down’ to pay for what they receive.)

        I’m afraid that I don’t have ‘the answers’ that would ensure everyone has access to free medical care and attention. To me, that’s what we elect Members of Parliament for. Sadly, since the NHS was introduced in 1948, not many Politicians have seen fit to continue with the initial concept of ‘free at the point of use medical care to the whole population’. SOME people over here go along with taking out alternative insurance that pays for medical treatment and/or faster appointment times to see doctors/nurses/physiotherapists, etc. etc.

        2 years ago Log in to Reply
    10. Bonnie Lundblom

      My Medicare plan F cost is over $250/month but thankfully it covers everything related to my T1D expenses.

      2 years ago Log in to Reply
    11. mbulzomi@optonline.net

      Not much, just a couple of Bucks on Alcohol Pads and I.V. Prep pads.

      2 years ago Log in to Reply
    12. T1D4LongTime

      (I did not answer the question for the 3 months, but rather the last 3 months in which I reached my out of pocket). I’m fortunate that I have excellent private insurance. I have a $300 deductible and $1000 out-of-pocket, so $1300 for the year.

      2 years ago Log in to Reply

    How much have you spent (deductible, copay, out-of-pocket) on all of your diabetes supplies in the past three months? Cancel reply

    You must be logged in to post a comment.




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