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    • 2 hours, 32 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      I oftentimes give myself a little insulin for when I go unplugged while changing pods, depending on what my current sensor reading is.
    • 2 hours, 32 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Always, until I began to increase the "cannula fill" amount. I found I need a good bit more than the (1.3u) to "prime the site" to have the next blood sugars be in goal. Just remember "every body is different". Darn than OmniPod does not let you change that amount, have to use "fake carbs". Something to consider.....
    • 2 hours, 32 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
    • 2 hours, 32 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 2 hours, 33 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      "Slightly," I think, maybe. Insurance companies change their policies, constantly. Prescription coverage changes every time I look at it. Medicare is a huge question mark. Honestly, Health insurance has become a big money making business, for them. I get different answers every time I call, depending upon whom I am talking with. I say it's time for socialized medicine.
    • 2 hours, 33 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 6 hours, 48 minutes ago
      KSannie likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      **cannula
    • 13 hours, 6 minutes ago
      Kathleen Juzenas likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I find a using the T-Connect app I have the main features needed, CMG, bolus, battery level and remaining insulin.
    • 13 hours, 58 minutes ago
      Kathy Hanavan likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 17 hours ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 17 hours ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 17 hours, 8 minutes ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 17 hours, 10 minutes ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 17 hours, 22 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Mostly pump because I want to quickly see insulin on board. Tandem on IPhone when holding my great-niece while she sleeps since getting my pump out of my pocket always wakes her ☺️. Dexcom app if not in need of insulin.
    • 17 hours, 22 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      usually the pump; sometimes my phone.
    • 17 hours, 23 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump (Tandem X2). Since I have to carry a work phone close to 247, I don't want to deal with two phones (device overload!). As I go about my day, looking at my pump meets my needs, I can decide to bolus etc - and edit the bolus. For more in depth data review and analysis, I use the TConnect.
    • 17 hours, 23 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I read it from my pump.
    • 17 hours, 23 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      On my insulin pump
    • 17 hours, 23 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump. Keep it simple.
    • 17 hours, 26 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      Do you realize what you have just said: "Obscurantism, gobbledegook, and pointillism used not as an art form but as a 'Gotcha!' of legal/financial determinism?"
    • 17 hours, 27 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      How much of this is intentionally misleading? My mail order prescription service says that can’t possibly know the cost of a medication until after it’s been shipped, which is too late to cancel or return, of course, and makes it impossible to comparison shop.
    • 17 hours, 28 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 17 hours, 29 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 17 hours, 44 minutes ago
      Lawrence S. likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 1 day, 14 hours ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
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    How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?

    Home > LC Polls > How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
    Previous

    If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)

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    If you’ve ever used a connected insulin pen (also known as a “smart pen”), what was your experience like? Tell us more in the comments! A “smart pen” connected insulin pens can offer extra technology with the simplicity of injections, like tracking the timing and dose of insulin, tracking insulin-on-board, and calculating insulin doses based on carbohydrate entries.

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

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    28 Comments

    1. Lawrence S.

      It has been many, many years since I’ve seen a Certified Diabetes Care and Education Specialist.

      1
      2 years ago Log in to Reply
    2. John McHenery

      7 video calls in preparation for going onto a closed loop system

      1
      2 years ago Log in to Reply
      1. Mick Martin

        @John McHenery. Congratulations, sir. I truly do hope you find ‘closed-loop’ to be of benefit to you.

        2 years ago Log in to Reply
    3. William Bennett

      Been at this for 40 years now. Not much a CDE can teach me at this point. More the reverse, actually.

      2
      2 years ago Log in to Reply
    4. Gary Rind

      haven’t seen a CDE since I started on insulin 20 years ago!

      2 years ago Log in to Reply
    5. Justin

      I really like my educator. She keeps me up-to-date on all of the new tech and helps communicate with the vendors and figure out insurance stuff. It’s a nice morale boast too; we review Dexcom data and talk about specific highs or lows and different techniques to try. I see my doctor every 6 months and my educator every 6 months, but we’re on a schedule so I see one of the two every quarter.

      1
      2 years ago Log in to Reply
    6. Judy Sabol

      My Diabetes Care Specialist is also a Nutritionist. I have found her advice and support vital to mastering T1 since my diagnosis 2 years ago

      1
      2 years ago Log in to Reply
    7. KIMBERELY SMITH

      I had appointment today wasn’t feeling good

      1
      2 years ago Log in to Reply
      1. Mick Martin

        @KIMBERELY SMITH. I hope you soon start to feel better, ma’am.

        2 years ago Log in to Reply
    8. Robert Holman

      After 20+ years as a Type I, my appointments are with my endo, where I end up educating him on the latest research. Most endo’s patient population is almost exclusively Type 2 and are not as plugged into Type 1

      3
      2 years ago Log in to Reply
    9. Lyn McQuaid

      I only see my endo twice/year. He’s been my endo for 30 years and learns from me more than I learn from him as his main interest is thyroid and his main patient population is T2 diabetics.

      2 years ago Log in to Reply
      1. cynthia jaworski

        Many of us have the same situation.

        2 years ago Log in to Reply
    10. Sealani Weiner

      I see a nutritionist who is a code and my doc advises my food plan

      2 years ago Log in to Reply
    11. Bob Durstenfeld

      I don’t believe there are any CDEs in my ares.

      2 years ago Log in to Reply
    12. Marty

      I used to see a CDE exclusively until he retired. He was very well informed about diabetes technology so I always learned something during our annual visits. Now I have to see someone endo-related every 90 days in order for Medicare to cover my stuff. I hate to waste my endo’s time so I see her once per year and see her nurse practitioner 3 times per year. Her nurse practitioner focuses mostly on pump settings. After decade’s of experience, I don’t need help with that so the nurse practitioner doesn’t really know what to do with me. I’m sorry that I have to take up her time when so many other people need it more.

      2 years ago Log in to Reply
      1. ChrisW

        Put yourself in their shoes, after you are taken care of. Offer to leave early if it helps them catch up. Or talk to them about sports, weather or kids to give them a break from their daily grind of explaining fried potato products don’t count as a vegetable.

        1
        2 years ago Log in to Reply
    13. Carolann Hunt

      The CDE is also the CRNP or endo substitute. We see the endo once a year and the CDE CRNP twice

      2 years ago Log in to Reply
    14. TEH

      I clicked on 4. My PA is a CDE. My PA told me that we would be okay to go to twice a year. However,
      quarterly visits are edicted by Medicare.

      2 years ago Log in to Reply
    15. Colleen Jackson

      I am a Registered Dietitian and a Certified Diabetes Care and Education Specialist.

      2 years ago Log in to Reply
      1. ConnieT1D62

        Me too … and when I need to consult with a CDCES I seek advice from RN or RD, CDCES colleagues who live with T1 diabetes themselves.

        2 years ago Log in to Reply
      2. ConnieT1D62

        To clarify I am a RN, MSN, CDCES.

        2 years ago Log in to Reply
    16. Janis Senungetuk

      I’ve had three appointments with her this year. In addition to alternating with the endo every 90 days to satisfy Medicare, I asked for an appointment to discuss the low potassium restrictions because of a CKD diagnosis. She’s a tremendous help for many issues, including insurance.

      2 years ago Log in to Reply
    17. Steven Gill

      I’ve seen a CDCES twice in 25 years. The first time upon diagnosis, the last setting up the Medtronic’s 670G system. (Been to 2 support/training sessions with them, swore never going back: I don’t need any one to understand how I feel, I don’t care how anyone watches me check my levels or inject, I welcome questions or comments what I can or can’t do as a dare or challenge. Heading to my first physician with the VA health system, kind of hope to stick with a general practitioner or “primary physician.” Of the 5 endocrinologists I’ve seen only 1 appeared capable to do more than handle lab work and prescriptions (thus my a1Cs below 6 doing it alone).

      2 years ago Log in to Reply
    18. jamesmpii

      I had an appointment with a diabetic educator and dietician three times the first year and they were generally helpful, especially the first two appointments when every thing was new. Then I had to switch endocrinology groups and was assigned to a new educator. He is a T1d from a young age. I was looking forward to meeting him, as I thought he “got it.” It didn’t turn out so well. He really could not relate to what I was struggling with as LADA, diagnosed at 61. He seemed to have forgotten what he struggled with when newly diagnosed. He was dismissive and even somewhat condescending, though I believe not purposefully. I tried to keep a positive attitude and learn from him, but felt like I’d was wasting both our time. I cancelled the second appointment. I believe a good educator could help me. I just haven’t found the right one.

      2 years ago Log in to Reply
    19. Bea Anderson

      I’ll say this from my experience. 20 yrs. ago during pump training with the manufacturer rep went very well. The DE I was told to go to wore same pump, but didn’t use the features. For example, I’m at 160 well after eating. Instead of giving correction bolus or temp basal, she said I needed to go for a walk. I can’t carve out my exercise routine to take care of a high!!! That is why I wear a pump!!! Hospital DE, also gave horrible advice at first. I had to show her how I could solve all issues post surgery by myself and get great results. She wrote everything I said down and was really surprised. She asked for my resources which included a couple T1 groups at the time, books, etc. She wanted to get together after I went home, but I declined.

      2 years ago Log in to Reply
    20. Donal Conway

      On doing a finger prick test? I religiously check every night before getting into bed and when the CGM readings don’t look correct & that happens at least twice after applying a new sensor in my case Dexcom 7.

      1
      2 years ago Log in to Reply
    21. T1D4LongTime

      After 57 years of T1D, I only see the CDE if I change insulin pump or CGM devices and need training.

      2 years ago Log in to Reply
    22. William Ervin

      My Endo changed a few years ago. At appointments, they no longer check for BG or A1C. Besides weighing me, checking BP, going over my 90 day trends on my CGM (only valuable thing) and visually looking at my infusion site areas, it is waste of time and money. My Endo actually told me I didn’t need to come in anymore and to text her if I had a question or problem.

      2 years ago Log in to Reply

    How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist? Cancel reply

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