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    • 9 hours, 3 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 9 hours, 3 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 10 hours, 19 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 10 hours, 19 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 10 hours, 19 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 10 hours, 20 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 10 hours, 21 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 10 hours, 22 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 10 hours, 22 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 10 hours, 23 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 12 hours, 24 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 13 hours, 2 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 13 hours, 2 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 13 hours, 45 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 14 hours, 8 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 14 hours, 31 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 14 hours, 32 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 14 hours, 32 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 14 hours, 47 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 15 hours, 48 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 15 hours, 48 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 12 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    Do you have celiac disease in addition to T1D?

    Home > LC Polls > Do you have celiac disease in addition to T1D?
    Previous

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of April through the end of June 2023?

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    For insulin pump users: On average, how often do you take insulin using a different method other than through your pump? (E.g., giving an injection, using inhaled insulin, etc.)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    14 Comments

    1. KIMBERELY SMITH

      I am allergic to like cows milk and white bread also yellow mustard

      3 years ago Log in to Reply
    2. Lawrence S.

      YES. I have celiac disease. Celiac disease makes T1D multiple times more difficult to handle. There are so many simple dietary delights that are off limits. It seems that wheat, rye, barley, and sometimes oats are in many, many foods. I was diagnosed approximately 15 years ago, and have (tried) to avoid gluten 100% of the time. Eating at restaurants is a big risk. Even gluten free food, especially in Italian restaurant and pizza shops is not really gluten free from cross contaminations. I go to restaurants seldom, but go because my wife deserves dinner out every once in a while.

      2
      3 years ago Log in to Reply
    3. Marty

      I can say definitively that I don’t have celiac disease because I was just tested to rule it out as the cause of a rapid loss of bone density. Evidently, people with diabetes are prone to acquiring celiac disease and the symptoms can be subtle.

      3 years ago Log in to Reply
    4. Patricia Kilwein

      Ther wasn’t a selection for I don’t know. I’ve never been tested for it.

      3 years ago Log in to Reply
    5. Tina Roberts

      I have no clue.

      3 years ago Log in to Reply
    6. Melinda Lipe

      No Celiac disease, just gut problems. I have had tests for everything by my gastroenterologist, but they did not show anything.

      3 years ago Log in to Reply
    7. Wanacure

      So there is a link between my bone loss and my recent diagnosis of celiac disease? I was already eating low carb diet, so giving up gluten was no biggie. My T1D sibling was diagnosed years ago with celiac but I thought he was just following another fad diet. Come to think of it he lost all his teeth and had to wear dentures. My new dentist said I had bone loss in my jaw and have a couple of loose teeth which I hadn’t noticed. I’ve always flossed and brushed and regularly seen dentists for routine cleaning and polishing.

      1
      3 years ago Log in to Reply
      1. Marty

        I think celiac disease makes it harder for your gut to absorb minerals, like calcium and magnesium, that are needed to maintain your bones.

        3 years ago Log in to Reply
    8. Henry Renn

      A disease specialist & an immunologist have both dx me with unnamed autoimmune disease. Many sx of but not quite Sjorgen’s. Chronic fatigue & low grade fevers are biggest pain in posterior. For 4 years I’ve taken Plaquenel which has held down low grade fevers about 90% of the time. Prescribed by Rheumatologist/Immunologist bc it helped some of her patients dx with Lupus. Also dx with Diabetic Arthropathy as well as Connective Tissue disease. The latter has remained stable since taking Plaquenel.

      3 years ago Log in to Reply
    9. Carolann Hunt

      No my daughter has the gene for celiac so we are on the lookout for it. You have to have the gene to get it; it’s linked to T1D

      3 years ago Log in to Reply
    10. Melissa Childers

      I have what the doctor called “generic” generic markers, but I get so sick from eating gluten that I refuse to do the gluten challenge to confirm.

      3 years ago Log in to Reply
    11. Twinniepoo74

      I’m being tested now for it since my mom and sister have it but not type 1 diabetes but the doctors have me on a gluten free diet since finding out I have gasteroparesis

      3 years ago Log in to Reply
    12. mbulzomi@optonline.net

      No! Not much to discuss.

      3 years ago Log in to Reply
    13. PamK

      I don’t have Celiac, but my son does. The gastro told him he got it because of me!

      3 years ago Log in to Reply

    Do you have celiac disease in addition to T1D? Cancel reply

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