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In honor of National Neuropathy Awareness Week, have you been diagnosed with neuropathy? If you have tips for how to manage neuropathy, please share them in the comments.
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I smoke alot of medical marijuana. Didn’t care for Lyrica and I find nuerontin messes with my head before I get to a theraputic amount. I know the pot works well because my legs go through hell if I run out.
I use a CBD cream on the balls of my feet. So far, it is working, but I know the next step will be in your direction.
My neuropathy in my feet and legs is bad. I have numbness and poor balance. I fell down frequently, but my podiatrist advised me to have physical therapy. With six weeks of PT in late 2018 I stopped falling down.
I also have a neuropathic bladder. It is difficult to urinate. I have been taking two medications for many years to help. It was much worse last year and my urologist implanted a device called Uro Lift. I had that done on 4-4-21. I am waiting to see if it will help me.
I have no feeling in feet or hands, it was much worse before my oncologist decided to stop my my chemo early because it. I’m just happy I regained feeling in my arms & legs.
I have become a big fan of walking sticks. Urban Poles are my favorite
I first experienced symptomatic neuropathic changes from peripheral neuropathy in my hands and feet about 25 years ago. Initially it felt like sharp stabbing electric shooting pain that would intermittently come and go. My PCP at the time prescribed Neurontin – which did absolutely nothing and then a trial of Lyrica which just masked any feeling of sensation in my limbs and made me feel stoned. To tell the truth, except for brief episodes of intense stabbing pain the discomfort was minimal and eventually phased out.
I still have neuropathy in my hands and feet resulting in residual numbness and altered sensation along with subtle muscle changes. The meds were not helpful at all to restore or repair damaged nerve function. Why would I want to mask any intact feeling that I have left in my hands and feet? I have learned to adapt and live with it.
started in my feet at about age 33,about 22 years post diagnosis. Now it is 37 more years later and it has progressed some. More lately, actually. The pain is only periodic, and I have not wanted to try Lyrica, and Neurontin makes me dizzy. What has helped somewhat is taking Alpha Lipoic Acid, a supplement. Many of my doctors over the years are familiar with this and approve it. When I do get pain it is normally overnight and although it is fierce, I have learned to sort of sleep through it which helps a lot (compared to staying awake all night anticipating the next red hot poker stabbing into my foot! ) I’ve also probably got some esphageal neuropathic changes, and just recently a CAT scan suggested possible bladder neuropathy, though I have no symptoms of that. I expect such changes will continue.
I was diagnosed slight neuropathy in my feet last month for the first time in 59 years of Type 1. Just a little bit numbness every now and then right now. No treatment yet.
I had Neuropathy, but not diagnosed, years ago, but when I got my BGs in control range it all went away.
Yes, but in 1 toe, do like I do with all the others. Inspect bottom and between toes and keep clean
No neuropathy for first 60-65 years. Then developed PDN in both legs. Pain not an issue, but stability and falling is. As suggested, CBD works well at lessening symptoms, and PT works well as strengthening the right muscles to preclude falling or to fall properly. (Yes, you can learn to do it.). Rest seems to restore proper functioning of legs. (I used to measure how many miles I would walk; now I measure how many minutes. Sigh!)
Additionally, while not categorized as neuropathy, gastroparesis is a nerve failure issue, best controlled by me with extended boluses and 5.5mg Metoclopramide to block the nerve signal to the brain. ✍(◔◡◔)
As a young pre-teen (50 years ago), I developed neuropathy in my feet, but was not diagnosed (I only had a pediatrician’s care who really didn’t know much about T1D up until age 13). By age 12 or 13, it had went disappeared, so I marked “Other”