Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 3 hours, 5 minutes ago
      Lawrence S. likes your comment at
      Has your cost of insulin changed in 2025?
      I started the year paying the $35 Medicare drug cost but then the pharmacy started filling the insulin as Medicare Part B (because it being used in my pump) and I get if for $0.
    • 3 hours, 6 minutes ago
      Lawrence S. likes your comment at
      Has your cost of insulin changed in 2025?
      Medicare cap of $35 a month has been has been wonderful for so many people.
    • 3 hours, 38 minutes ago
      Kathy Hanavan likes your comment at
      Has your cost of insulin changed in 2025?
      I started the year paying the $35 Medicare drug cost but then the pharmacy started filling the insulin as Medicare Part B (because it being used in my pump) and I get if for $0.
    • 3 hours, 59 minutes ago
      Bill Williams likes your comment at
      Has your cost of insulin changed in 2025?
      Medicare cap of $35 a month has been has been wonderful for so many people.
    • 4 hours, 6 minutes ago
      Judith Marged likes your comment at
      Has your cost of insulin changed in 2025?
      I started the year paying the $35 Medicare drug cost but then the pharmacy started filling the insulin as Medicare Part B (because it being used in my pump) and I get if for $0.
    • 4 hours, 6 minutes ago
      Judith Marged likes your comment at
      Has your cost of insulin changed in 2025?
      Medicare cap of $35 a month has been has been wonderful for so many people.
    • 4 hours, 14 minutes ago
      John Barbuto likes your comment at
      Has your cost of insulin changed in 2025?
      Medicare cap of $35 a month has been has been wonderful for so many people.
    • 19 hours, 17 minutes ago
      Dennis Dacey likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 2 hours ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 1 day, 2 hours ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 1 day, 2 hours ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 1 day, 2 hours ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 1 day, 2 hours ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 1 day, 3 hours ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 1 day, 3 hours ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 1 day, 6 hours ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 9 hours ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 1 day, 20 hours ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 21 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 day, 21 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 day, 21 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 1 day, 23 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 23 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 23 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 2 days ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    If you have experienced menopause while living with T1D, what is one piece of advice that you’d give to someone who hasn’t gone through it yet? Share in the comments your experience.

    Home > LC Polls > If you have experienced menopause while living with T1D, what is one piece of advice that you’d give to someone who hasn’t gone through it yet? Share in the comments your experience.
    Previous

    How would you rate your overall experience flying with T1D (including airport security)? Share your experience in the comments!

    Next

    If you use an insulin pump, in the past month how often did your pump site need to be replaced before its session was over?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

    Related Stories

    Advocacy

    Blue Circle Health: A Free Virtual Program Expanding Support for Adults Living with Type 1 Diabetes 

    Michael Howerton, 5 days ago 4 min read  
    News

    Thyroid Eye Disease (TED): What You Need to Know 

    Jewels Doskicz, 1 week ago 4 min read  
    News

    Immunosuppressants in T1D Research: Expert Opinions from Diabetes Pharmacist Diana Isaacs 

    Jewels Doskicz, 2 weeks ago 5 min read  
    2025 Learning Session

    The 2025 T1DX-QI Learning Session: Driving Better Diabetes Care 

    Sarah Howard, 3 weeks ago 7 min read  
    Lifestyle

    Barriers to Care in Aging: Voices from the T1D Community 

    Jewels Doskicz, 4 weeks ago 7 min read  
    Lifestyle

    When T1D Becomes a Calling: Stories From our Team 

    Jewels Doskicz, 1 month ago 11 min read  

    14 Comments

    1. mlettinga

      I went through menopause easy. The challenge was creeping weight gain and needing more insulin but if you get into a regular exercise routine you can offset that.

      2 years ago Log in to Reply
    2. Judith Marged

      If you wake up sweating in the middle of the night, test your blood rather than assume it is a low. Also, expect radical fluctuating glucose readings from extreme highs to extreme lows.

      1
      2 years ago Log in to Reply
    3. Jneticdiabetic

      I think I’m in the midst of impending menopause. Symptoms started over 8 years ago with severe lows upon period start. Then more frequent periods that didn’t have my previously predictable week before BG highs. In the last year or two I’ve had increasing difficulty sleeping and wake up very anxious many nights like clockwork around 2-3am. I call them emotional hot flashes. Not noticing physical hot flashes, I’m cold all the time. I was already all to aware of the havoc hormone imbalance can wreak with my T1D and hypothyroidism, but this has been an interesting trip! Will check back here to learn more from my fellow T1D ladies who’ve been through it. ❤️

      2 years ago Log in to Reply
    4. Kristen Clifford

      Hasn’t happened yet

      2 years ago Log in to Reply
    5. Patricia Kilwein

      Don’t sweat it!🤣🤣🤣 Seriously tho I didn’t have that much trouble. Just some pretty intense hot flashes. Always talk to your Dr.

      2 years ago Log in to Reply
    6. Sue Martin

      When I went through menopause, I didn’t have any of the typical symptoms. I had to ask my doctor and she said that 12 months without a menstrual cycle meant I had been through it.

      2 years ago Log in to Reply
    7. Jane Cerullo

      I went through menopause while in nursing school at age 53. Had awful night sweats. Wishe I had investigated more. They have more treatments available now. So take advantage of any and all. No reason to suffer. I lived on Tylenol pm to sleep. Was diagnosed with LADA after graduated. Well took two years. Insisted I was type 2. Now that was really frustrating.

      2 years ago Log in to Reply
    8. GiGi

      I had hot flashes for about a year. I didn’t do anything about them other than carry a little fan that connected to my phone for power. My blood sugar wasn’t affected during this time. It actually improved after menopause was completed.

      2 years ago Log in to Reply
    9. Ahh Life

      Not to have an offbeat relationship with the truth, but . . . two bits, not one:

      • Discipline and
      • Humor

      T1D scenarios range from bleak to hideous, but discipline must be maintained.

      And humor? Well, perhaps best encapsulated by that great New Yorker cartoon from 2016 in which two lambs look up at a billboard showing the Big Bad Wolf, in suit and tie, saying, “I Am Going To Eat You.” In response, one lamb turns approvingly to the other and says, “He tells it like it is.” 🐑😁🐑

      2 years ago Log in to Reply
      1. Ahh Life

        Somehow this got posted to the wrong question. It was under 4/5/2024 question. 😞

        2 years ago Log in to Reply
    10. Mick Martin

      Not applicable as I’m male. 😉

      2 years ago Log in to Reply
    11. Twinniepoo74

      Just listen to your body and remember we all go through this. I know the hot flashes and cravings especially for sweets are a pain but remember to take your insulin, exercise, sleep and drink plenty of water.

      2 years ago Log in to Reply
    12. Elizabeth T.

      I actually wonder if menopause was the trigger for my T1D. All happened about the same time. Thoughts?

      2 years ago Log in to Reply
    13. T1D4LongTime

      Menopause didn’t seem to impact my BG much, but definitely my energy and weight. Exercise and regular activity along with good hydration would be recommended to fight off the effects of menopause. Fortunately, my hot flashes were minimal and didn’t last too long.

      2 years ago Log in to Reply

    If you have experienced menopause while living with T1D, what is one piece of advice that you’d give to someone who hasn’t gone through it yet? Share in the comments your experience. Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]