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    • 5 hours, 4 minutes ago
      lis be likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 7 hours, 56 minutes ago
      Ahh Life likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 9 hours, 19 minutes ago
      KCR likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 9 hours, 19 minutes ago
      KCR likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      Only what is reported at conferences and covered by e-zines like DiaTribe.
    • 12 hours, 53 minutes ago
      Lawrence S. likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      It's sometimes difficult shift through. I get a lot of spam redirections. I'm also only really interested in autoimmune type diabetes. Right now GLP-1 interest is all the rage. I'm not a candidate for those type of drugs. Funny how these drugs which became so popular with the rich people mostly non diabetic have taken over by all the drug companies.
    • 1 day, 11 hours ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 1 day, 11 hours ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 1 day, 11 hours ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 3 days, 5 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 3 days, 5 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 5 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 3 days, 6 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 3 days, 8 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days, 11 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 12 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 13 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days, 14 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 3 days, 14 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 14 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 14 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 14 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 3 days, 14 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 15 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 4 days, 6 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 4 days, 6 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
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    If you have experienced menopause while living with T1D, what is one piece of advice that you’d give to someone who hasn’t gone through it yet? Share in the comments your experience.

    Home > LC Polls > If you have experienced menopause while living with T1D, what is one piece of advice that you’d give to someone who hasn’t gone through it yet? Share in the comments your experience.
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    Next

    If you use an insulin pump, in the past month how often did your pump site need to be replaced before its session was over?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    15 Comments

    1. mlettinga

      I went through menopause easy. The challenge was creeping weight gain and needing more insulin but if you get into a regular exercise routine you can offset that.

      2 years ago Log in to Reply
    2. Judith Marged

      If you wake up sweating in the middle of the night, test your blood rather than assume it is a low. Also, expect radical fluctuating glucose readings from extreme highs to extreme lows.

      1
      2 years ago Log in to Reply
    3. Jneticdiabetic

      I think I’m in the midst of impending menopause. Symptoms started over 8 years ago with severe lows upon period start. Then more frequent periods that didn’t have my previously predictable week before BG highs. In the last year or two I’ve had increasing difficulty sleeping and wake up very anxious many nights like clockwork around 2-3am. I call them emotional hot flashes. Not noticing physical hot flashes, I’m cold all the time. I was already all to aware of the havoc hormone imbalance can wreak with my T1D and hypothyroidism, but this has been an interesting trip! Will check back here to learn more from my fellow T1D ladies who’ve been through it. ❤️

      2 years ago Log in to Reply
    4. Kristen Clifford

      Hasn’t happened yet

      2 years ago Log in to Reply
    5. Patricia Kilwein

      Don’t sweat it!🤣🤣🤣 Seriously tho I didn’t have that much trouble. Just some pretty intense hot flashes. Always talk to your Dr.

      2 years ago Log in to Reply
    6. Sue Martin

      When I went through menopause, I didn’t have any of the typical symptoms. I had to ask my doctor and she said that 12 months without a menstrual cycle meant I had been through it.

      2 years ago Log in to Reply
    7. Jane Cerullo

      I went through menopause while in nursing school at age 53. Had awful night sweats. Wishe I had investigated more. They have more treatments available now. So take advantage of any and all. No reason to suffer. I lived on Tylenol pm to sleep. Was diagnosed with LADA after graduated. Well took two years. Insisted I was type 2. Now that was really frustrating.

      2 years ago Log in to Reply
    8. GiGi

      I had hot flashes for about a year. I didn’t do anything about them other than carry a little fan that connected to my phone for power. My blood sugar wasn’t affected during this time. It actually improved after menopause was completed.

      2 years ago Log in to Reply
    9. Ahh Life

      Not to have an offbeat relationship with the truth, but . . . two bits, not one:

      • Discipline and
      • Humor

      T1D scenarios range from bleak to hideous, but discipline must be maintained.

      And humor? Well, perhaps best encapsulated by that great New Yorker cartoon from 2016 in which two lambs look up at a billboard showing the Big Bad Wolf, in suit and tie, saying, “I Am Going To Eat You.” In response, one lamb turns approvingly to the other and says, “He tells it like it is.” 🐑😁🐑

      2 years ago Log in to Reply
      1. Ahh Life

        Somehow this got posted to the wrong question. It was under 4/5/2024 question. 😞

        2 years ago Log in to Reply
    10. Mick Martin

      Not applicable as I’m male. 😉

      2 years ago Log in to Reply
    11. Twinniepoo74

      Just listen to your body and remember we all go through this. I know the hot flashes and cravings especially for sweets are a pain but remember to take your insulin, exercise, sleep and drink plenty of water.

      2 years ago Log in to Reply
    12. Elizabeth T.

      I actually wonder if menopause was the trigger for my T1D. All happened about the same time. Thoughts?

      2 years ago Log in to Reply
    13. T1D4LongTime

      Menopause didn’t seem to impact my BG much, but definitely my energy and weight. Exercise and regular activity along with good hydration would be recommended to fight off the effects of menopause. Fortunately, my hot flashes were minimal and didn’t last too long.

      2 years ago Log in to Reply
    14. Donovan Forrest

      This is such important information, Geometry Dash Lite. Running out of insulin isn’t just inconvenient — it’s life-threatening. I really appreciate the emphasis on being proactive and asking for a little extra in prescriptions. So many people don’t realize insulin needs are estimates, not exact science.

      2 months ago Log in to Reply

    If you have experienced menopause while living with T1D, what is one piece of advice that you’d give to someone who hasn’t gone through it yet? Share in the comments your experience. Cancel reply

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