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    • 2 hours, 49 minutes ago
      lis be likes your comment at
      How willing would you be to take immunosuppressants if you were considering an islet cell transplant?
      Nope, T1D is a manageable thing with today's technology. I'll keep the devil I know.
    • 3 hours, 20 minutes ago
      dako likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      It seems to get harder every year. They seem to be looking for younger and newly diagnosed people.
    • 3 hours, 20 minutes ago
      dako likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      Agreed, and there are plenty of issues aging with T1D.
    • 8 hours, 42 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 8 hours, 42 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 8 hours, 42 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 17 hours, 7 minutes ago
      Karen Newe likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 18 hours, 55 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these. I'm not interested and have not even heard of some of them. The fewer gadgets the better.
    • 18 hours, 56 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      How about “None of the above”?
    • 18 hours, 56 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these
    • 1 day ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I agree with Molly. I’m moderately concerned because if I were extremely or very concerned, I just wouldn’t participate. I’m concerned for others who are brave enough to risk their own health for the sake of research and helping others.
    • 1 day ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 4 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 1 day, 4 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 4 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 5 hours ago
      Natalie Daley likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 5 hours ago
      ChrisW likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      Well the first person in this trial has been insulin-free for over 1-1/2 years and has been feeling fine. All 12 participants in this trial so far are off of insulin. The trial is now going to include people with t-1 diabetes and some kidney damage as this immunosuppressant (tegoprubart) has shown no toxic effects to islet cells or to kidneys. I will keep watching as the trial progresses. This question only asked if we had heard about it. I didn't see the question as an advertisement.
    • 1 day, 5 hours ago
      ChrisW likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 5 hours ago
      Brian Vodehnal likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Concern is relative to outcome. Getting a five year reprieve on the daily management of T1D might be worth it.
    • 1 day, 7 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 7 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Moderately as this is for others. I don't imagine being offered this myself.
    • 1 day, 7 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 7 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 1 day, 7 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 7 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I just love your comments. 😃
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    Have you ever participated in a patient assistance program to reduce the cost of your insulin or other diabetes supplies?

    Home > LC Polls > Have you ever participated in a patient assistance program to reduce the cost of your insulin or other diabetes supplies?
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    If fasting during a holiday is part of your religion, do you participate? Please explain in the comments.

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    10 Comments

    1. Kristi Warmecke

      I have in the past, a coupon so much off each month, and I was on Novo Nordics free insulin for a short time, but I only received Novolog twice.

      1
      2 years ago Log in to Reply
    2. cynthia jaworski

      I am not sure what you are talking about. However, I had been offered a discount;t from the manufacturer of an SGLT2 inhibitor.Unfortunately, by the time they approved it, I had stopped taking the medication.

      2 years ago Log in to Reply
    3. Janis Senungetuk

      Yes, in the 1980’s when I lacked insurance I received discounted insulin for three months.

      2 years ago Log in to Reply
    4. Jeff Balbirnie

      Bitter tears… yeah, the program reduced the CASH price to only $ 100 bucks per CGM sensor. And only for as long as the coupons were continued…. -Angry Mumbling- I stopped using them outright because I could not eat, pay my bills… so I simply stopped using them outright.

      2 years ago Log in to Reply
    5. Kim Murphy

      I have needed help really badly in the past to pay for insulin but my last years income was too high and it didn’t seem to matter we currently had no income. I just rationed insulin and rarely checked my sugar to conserve supplies.

      2 years ago Log in to Reply
    6. Anthony Harder

      No, I am aware of them, but never used them. I have always had employer sponsored health insurance. There have been fights about what’s covered and what’s not. My dependence on employer coverage has influenced my career choices over the years.

      2 years ago Log in to Reply
    7. Trina Blake

      This isn’t really patient assistance, but I have used GoodRx for test strips. I can’t safely use the home glucose monitoring system covered by my health plan – it reads much higher than actual for people with chronic anemia (e.g. my Dexcom would alert to a low and trending lower, I did the -the – obligatory fingerstick and the meter read 150, 180+, Time for a bolus – which was the last thing I needed. The Dexcom was correct). So, I have to pay out of pocket for test strips. I now dose based on my Dexcom G6 (a big change from the 15-20 fingersticks I used to do). No major lows in years. I tried to convince the health plan to consider the highest rated for accuracy meter, but the PBM process gets in the way.

      2 years ago Log in to Reply
    8. Cheryl Weaver

      My insurance with Medicare and Blue Cross Blue Shield cover my insulin and pump supplies and Dexcom supplies.

      2 years ago Log in to Reply
    9. PamK

      When I lost my job, and my insurance, I participated until I found a new job and benefits.

      2 years ago Log in to Reply
    10. Steven Gill

      My copay was high, an old pup I inherited developed heart disease and her meds costed more. Thus I stopped the CGM for her. A little later a Medtronic rep called asking why, after sending income forms my out of pocket expenses became great. When I retired completely stopped pumping, when the 780G upgrade was available, again was asked why I used syringes…. again offered an even better set of conditions.

      I think a way to be sure I was wearing their device when I met the new set of docs at the VA?

      2 years ago Log in to Reply

    Have you ever participated in a patient assistance program to reduce the cost of your insulin or other diabetes supplies? Cancel reply

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