Have any of your children been diagnosed with T1D?

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- 3 hours, 35 minutes ago
  
  Kristi Warmecke likes your comment at
  Would you participate in a fully virtual research study with no in-person visits?
  Several years ago I participated in a study assesing the value of regular counseliing and guidance, through virtual appointments for CGM users. I participated because they provided Dexcom G6 devices for the first 6 months of the study and I had wanted to experience life with a CGM. Because it was all virtual I was able to participate from a variety of locations visited during a cross country road trip, VA to CA, including Rapid Cty, SLC and the Bay area in CA. The experience with CGM was such a benefit that after the 6 month period I continued in the study, but purchased Dexcom G6s myself - not covered by my insurance! I would not have considered purchasing the CGM without the positive experience.
- 10 hours, 10 minutes ago
  
  kristina blake likes your comment at
  Would you participate in a fully virtual research study with no in-person visits?
  Several years ago I participated in a study assesing the value of regular counseliing and guidance, through virtual appointments for CGM users. I participated because they provided Dexcom G6 devices for the first 6 months of the study and I had wanted to experience life with a CGM. Because it was all virtual I was able to participate from a variety of locations visited during a cross country road trip, VA to CA, including Rapid Cty, SLC and the Bay area in CA. The experience with CGM was such a benefit that after the 6 month period I continued in the study, but purchased Dexcom G6s myself - not covered by my insurance! I would not have considered purchasing the CGM without the positive experience.
- 10 hours, 11 minutes ago
  
  kristina blake likes your comment at
  Would you participate in a fully virtual research study with no in-person visits?
  Depends on what it is. Generally they do not want older adults
- 11 hours, 8 minutes ago
  
  Ahh Life likes your comment at
  Would you participate in a fully virtual research study with no in-person visits?
  Several years ago I participated in a study assesing the value of regular counseliing and guidance, through virtual appointments for CGM users. I participated because they provided Dexcom G6 devices for the first 6 months of the study and I had wanted to experience life with a CGM. Because it was all virtual I was able to participate from a variety of locations visited during a cross country road trip, VA to CA, including Rapid Cty, SLC and the Bay area in CA. The experience with CGM was such a benefit that after the 6 month period I continued in the study, but purchased Dexcom G6s myself - not covered by my insurance! I would not have considered purchasing the CGM without the positive experience.
- 11 hours, 42 minutes ago
  
  Steve Rumble likes your comment at
  Would you participate in a fully virtual research study with no in-person visits?
  Depends on what it is. Generally they do not want older adults
- 11 hours, 50 minutes ago
  
  Anita Stokar likes your comment at
  How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
  There are many concerns, one being if I'll still be alive if it's ever offered :)
- 11 hours, 51 minutes ago
  
  Anita Stokar likes your comment at
  How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
  Read up on Eladon and Tegoprubart. You might be shocked at the lack of side effects. Although I’m interested to hear how long term goes in the next few years.
- 12 hours, 7 minutes ago
  
  John Barbuto likes your comment at
  Would you participate in a fully virtual research study with no in-person visits?
  Depends on what it is. Generally they do not want older adults
- 13 hours, 7 minutes ago
  
  KCR likes your comment at
  Would you participate in a fully virtual research study with no in-person visits?
  Depends on what it is. Generally they do not want older adults
- 13 hours, 26 minutes ago
  
  Kathy Hanavan likes your comment at
  Would you participate in a fully virtual research study with no in-person visits?
  Depends on what it is. Generally they do not want older adults
- 13 hours, 41 minutes ago
  
  lis be likes your comment at
  How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
  There are many concerns, one being if I'll still be alive if it's ever offered :)
- 13 hours, 41 minutes ago
  
  lis be likes your comment at
  How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
  General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
- 13 hours, 46 minutes ago
  
  TEH likes your comment at
  Would you participate in a fully virtual research study with no in-person visits?
  Depends on what it is. Generally they do not want older adults
- 1 day, 7 hours ago
  
  KarenM6 likes your comment at
  How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
  There are many concerns, one being if I'll still be alive if it's ever offered :)
- 1 day, 7 hours ago
  
  KarenM6 likes your comment at
  How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
  At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
- 1 day, 8 hours ago
  
  Lawrence S. likes your comment at
  How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
  Very, but more worried about it even making to the FDA and approved there first.
- 1 day, 8 hours ago
  
  Lawrence S. likes your comment at
  How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
  There are many concerns, one being if I'll still be alive if it's ever offered :)
- 1 day, 8 hours ago
  
  Lawrence S. likes your comment at
  How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
  At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
- 1 day, 8 hours ago
  
  Lawrence S. likes your comment at
  How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
  Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
- 1 day, 8 hours ago
  
  Lawrence S. likes your comment at
  How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
  While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
- 1 day, 8 hours ago
  
  Amanda Barras likes your comment at
  How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
  If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
- 1 day, 8 hours ago
  
  Amanda Barras likes your comment at
  How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
  General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
- 1 day, 8 hours ago
  
  Amanda Barras likes your comment at
  How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
  At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
- 1 day, 10 hours ago
  
  Patricia Dalrymple likes your comment at
  How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
  If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
- 1 day, 11 hours ago
  
  Gerald Oefelein likes your comment at
  How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
  If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
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Have any of your children been diagnosed with T1D?

Do you have a Tidepool account to upload your device data?

Susana Elman

1 Comment

Molly Jones

I answered “no” when it should have been “NA”

6 years ago Log in to Reply

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Have any of your children been diagnosed with T1D?

Do you have a Tidepool account to upload your device data?

Which of the following best describes when you would get a new insulin pump (assuming your current pump still works)? (Choose all that apply.)

Susana Elman

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