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    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 10 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 12 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 18 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 12 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 12 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 14 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 17 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 17 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Do you currently have a kit containing the T1D supplies you would need in case of a natural disaster or emergency?

    Home > LC Polls > Do you currently have a kit containing the T1D supplies you would need in case of a natural disaster or emergency?
    Previous

    If you wear a CGM, do you look at the Glucose Management Indicator (GMI) available in many CGM reports? If so, is your GMI typically higher than, lower than, or equal to your A1c?

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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    16 Comments

    1. LizB

      I have a small case that I carry in my bag when I’ll be away from home for more than a couple of hours, but not for days. It has an extra infusion set & reservoir for my pump, my current vial of insulin, some batteries for the pump, some syringes and a few alcohol & prep wipes. It was what I always had in my bag in the days when I went to/from the office everyday. So I could have that in an emergency but it wouldn’t get me far. My meter is in its own case and is kept on my desk, I don’t have any sensors or other CGM supplies ready to go.

      1
      5 years ago Log in to Reply
    2. Kristen Clifford

      It’s not assembled, but I do have what I need to put one together, including a bag the right size.

      2
      5 years ago Log in to Reply
    3. Sherolyn Newell

      Never thought of doing that. It’s a good idea.

      5 years ago Log in to Reply
    4. Sahran Holiday

      I have a small bag with the vial of insulin currently using to fill my Pod, always carry whenever I’m leaving the house further than walking distance, several pods with a frozen water bottle. There’s a spare Dexcom G6 sensor in my car.

      5 years ago Log in to Reply
    5. Anthony Harder

      I don’t know if my answer is yes or no (this I answered other). My daily T1D supplies are in the medicine cabinet with other medicines. I have reserves I keep in a different spot. Disasters will be a headache regardless where one keeps T1D supplies. However, keeping a “kit” and dragging that with me everywhere will soon become its own headache.

      1
      5 years ago Log in to Reply
    6. Richard Vaughn

      I would have a hard time keeping track of a “kit”. When I go shopping or take a several hour trip, I wear cargo pants. My diabetes equipment are in the 5 spacious pockets on my pants.

      2
      5 years ago Log in to Reply
    7. Bill Williams

      I don’t have an assembled kit but I keep a list on the refrigerator that I could put together in a few minutes.

      5 years ago Log in to Reply
    8. George Lovelace

      Being on Medicare I do have a ‘collection’ of necessary supplies, it’s just not in a Kit

      5 years ago Log in to Reply
    9. cynthia jaworski

      My answer depends upon what youmean. I have a small “pancreas” bag that goes from my dining room table to my purse, etc. It contains my cgm reader, spare needles, short-acting insulin pen, and sugar tablets. It goes with my everywhere. Everything else that I use on a daily basis, but not during the daytime hours, is together and could be packed up in a mater of seconds.

      5 years ago Log in to Reply
    10. ConnieT1D62

      I always keep extra “just in case” pump change and hypo treatment supplies with me in my everyday carryall bag. I also have a designated compartmental travel case made for diabetes self-care supplies that I stock with enough extras for 10 to 14 days in case of a natural disaster or emergency. The only thing I have to do is grab extra insulin from the fridge on my way to safety. I have Frio pouches in the kit to keep insulin cold. Periodically I check to make sure everything hasn’t passed the expiration date.

      5 years ago Log in to Reply
    11. Henry Renn

      With Medicare I only have supplies for 30 days at a time. I would have to throw all supplies (whatever is on hand) into duffle bag to evacuate or shelter in place.

      5 years ago Log in to Reply
    12. Amy Nance

      No, to contain everything I would need for a natural disaster or emergency it would need insulin – more than just the one vial I am currently using. I assume natural disaster means my house is demolished by fire, flood, tornado and that could mean I need more than one currently used vial and those are in my fridge. In addition, everything else, including a go bag, is at home-if it happens when I’m out and about In the community and can’t return home, I do not have a kit in my car, as storage in the car has extreme fluctuations in temperature and could or would ruin the supplies in the vehicle. I’m not without plans and ready to pack bags, but all emergent situations are not possible to plan for.

      5 years ago Log in to Reply
    13. Mike S

      I’m lucky enough to have several vials of back up insulin at the moment, but they are naturally in the fridge. I do have an extra G6 sensor and a few Omnipods in our go bag (along with an old finger prick meter), so if we were able to grab that it might help. BUT I’d only have the one semi-used insulin vial that’s in my every day kit…unless I could get to the fridge in time. Good reminder to replace the “emergency” Omnipod that I usually keep in my everyday kit too. (I actually used it last week, but not for the sort of emergency you’re talking about, just a randomly failed pod.)

      5 years ago Log in to Reply
    14. Sally Numrich

      Yes! A plastics storage box with handles in the cabinet right outside my bedroom. It has everything I would need. I rotate the Dexcom sensor when I get a new shipment so it doesn’t expire. Spare syringes, pump supplies, spare meter w/strips,glucose tablets, alcohol wipes etc. I of course do not have insulin but that stockpile is in the refrigerator & can grab when evacuating for wildfire, earthquake, tsunami (whatever natural disaster is coming our way). I figure I can never be over prepared and if I am someone in the evacuation center might not be.

      5 years ago Log in to Reply
    15. KarenM6

      Rotating out batteries is a bit of a nuisance, but important.
      What I figure is, if the natural disaster is bad enough, all regular stores and ways to get supplies will be affected. So, I think of the disaster plan/kit as if I am going back to treating my diabetes as if it’s 1970 again… shots instead of pods, no CGM, meter only, glucose tabs… i.e. enough “analog” diabetes to live. If I can also have the “digital” diabetes for long enough to get through the disaster, that is going to be a bonus.

      1
      5 years ago Log in to Reply
    16. Patricia Dalrymple

      Somewhat. I’ve learned living through this pandemic that it is difficult to plan for every type of emergency. My worst nightmare is running out of insulin, and I can’t plan for that because insurance controls it. I have a large makeup type plastic insulated bag with my pump supplies. I keep tablets handy. My glucometer is always within reach. My strips are with my pump supplies. My pump supplies are in a box. I have a Yeti that I’ve used in hurricanes (live in FLA). I have a Frio that I use on trips. It all makes me nervous.

      5 years ago Log in to Reply

    Do you currently have a kit containing the T1D supplies you would need in case of a natural disaster or emergency? Cancel reply

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