Are you currently being affected by the insulin shortage?

Activity
- 2 hours, 12 minutes ago
  
  Kristi Warmecke likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  not for those of moderate income.
- 2 hours, 13 minutes ago
  
  Kristi Warmecke likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
- 2 hours, 14 minutes ago
  
  Kristi Warmecke likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  But probably not in my lifetime.
- 3 hours, 54 minutes ago
  
  dholl62@gmail.com likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
- 3 hours, 55 minutes ago
  
  dholl62@gmail.com likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
- 4 hours, 34 minutes ago
  
  Bruce Schnitzler likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
- 5 hours, 15 minutes ago
  
  Steve Rumble likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  I think that a functional cure is the most viable scenario as far as a "cure" is concerned. It seems like the most progress is being made with islet cell therapies.
- 5 hours, 22 minutes ago
  
  Natalie Daley likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
- 5 hours, 52 minutes ago
  
  Marty likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
- 5 hours, 52 minutes ago
  
  Marty likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  But probably not in my lifetime.
- 6 hours, 2 minutes ago
  
  Kathy Hanavan likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
- 6 hours, 2 minutes ago
  
  Kathy Hanavan likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  as long as it doesn't require immunosuppression, I'm interested
- 6 hours, 2 minutes ago
  
  Kathy Hanavan likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  I was going to comment that there's always a trade off. Am I trading insulin replacement with some other daily treatment? If so, what's the difference? Is the new daily grind more harmful than the old?
- 6 hours, 4 minutes ago
  
  Kathy Hanavan likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
- 6 hours, 34 minutes ago
  
  John Barbuto likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  But probably not in my lifetime.
- 6 hours, 59 minutes ago
  
  KCR likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
- 6 hours, 59 minutes ago
  
  KCR likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  I said, "Unsure." I do not have enough information to state an opinion.
- 7 hours ago
  
  KCR likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  But probably not in my lifetime.
- 7 hours, 15 minutes ago
  
  Katrina Mundinger likes your comment at
  How willing would you be to take immunosuppressants if you were considering an islet cell transplant?
  Scylla and Charybdis being perhaps more apt.
- 7 hours, 41 minutes ago
  
  TEH likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  I think that a functional cure is the most viable scenario as far as a "cure" is concerned. It seems like the most progress is being made with islet cell therapies.
- 10 hours, 23 minutes ago
  
  Ahh Life likes your comment at
  How willing would you be to take immunosuppressants if you were considering an islet cell transplant?
  After 70 years with T1d and some reduced kidney function and seeing my dad's poor recovery after a kidney transplant, I have no desire to be subjected to chemicals that would further accelerate the demise of my kidneys.
- 1 day, 2 hours ago
  
  lis be likes your comment at
  How willing would you be to take immunosuppressants if you were considering an islet cell transplant?
  Nope, T1D is a manageable thing with today's technology. I'll keep the devil I know.
- 1 day, 2 hours ago
  
  dako likes your comment at
  How easy is it for you to find research opportunities that feel relevant to you?
  Agreed, and there are plenty of issues aging with T1D.
- 1 day, 8 hours ago
  
  eherban1 likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
- 1 day, 8 hours ago
  
  eherban1 likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
Clear All

Are you currently being affected by the insulin shortage?

How often do you bolus before eating?

Samantha Walsh

Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

9 Comments

Bret Itskowitch

I wasn’t aware that there is an insulin shortage. As shared several times, I have a 6 month supply…doesn’t everybody?

2 years ago Log in to Reply
1. Patricia Kilwein
  
  No. Not everyone has a stash. We’re held hostage by medicare.
  
  2 years ago Log in to Reply
2. William Bennett
  
  Patricia: it’s pretty easy to build up a stash even under Medicare. Simply a matter of having your prescriber write the script for the maximum you might use—this is legit, as insulin usage can vary widely–it’s not a set dose per day–and you need to account for excursions and emergencies as well as average days. Since I don’t always have those problems, even though I do have to be prepared for when they occur, I build up a reserve. AFAIK there’s nothing against the rules about this and I’ve never had any issue with the Doc prescribing this way, pre- and post-Medicare. Been doing it for 40 years.
  
  2
  
  2 years ago Log in to Reply
Sherolyn Newell

My doctor changed me from Humalog to the generic version. I have no idea why. None of the pharmacies around KCMO could get the generic, so I switched back.

2 years ago Log in to Reply
Sue Martin

I got my 3-month refill a month ago without any problems. My pharmacy is really good.

2 years ago Log in to Reply
Sandy Norman

I read about it, and my supply was low, so thought maybe I should call in the prescription just to be safe. It was ready before I was ready to pick it up same day – so no.

2 years ago Log in to Reply
Lawrence S.

This is the first I’ve heard of an insulin shortage. No, I have not been affected.

2 years ago Log in to Reply
Elizabeth T.

It’s taking a long time to get it but I think that’s the fault of the insurance and pharmacy! I’m having to answer numerous questions and have been given conflicting information. I’m on Medicare and have an Advantage plan. Apparently it has to be pre authorized and then they have to decide how to bill it! Fortunately I’m not desperately waiting for it!

2 years ago Log in to Reply
kilupx

I had answered no to this question a few weeks ago. But in April 14 I got a message from Walgreen’s that it was time to refill my Humalog prescription. Soon after I ordered it I got a message that the medication was out of stock. No word from them for 10 days while the website continued to list Humalog as out of stock. Today, April 24, I called the pharmacy and was told they still have no supply of Humalog but that they could give me one vial of my 7-vial order. Still no word on when more Humalog will be available. Disgraceful performance on the part of Lilly and Walgreen’s. Luckily I have three months’ supply in reserve.

2 years ago Log in to Reply