Samantha Walsh
Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.
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I wasn’t aware that there is an insulin shortage. As shared several times, I have a 6 month supply…doesn’t everybody?
No. Not everyone has a stash. We’re held hostage by medicare.
Patricia: it’s pretty easy to build up a stash even under Medicare. Simply a matter of having your prescriber write the script for the maximum you might use—this is legit, as insulin usage can vary widely–it’s not a set dose per day–and you need to account for excursions and emergencies as well as average days. Since I don’t always have those problems, even though I do have to be prepared for when they occur, I build up a reserve. AFAIK there’s nothing against the rules about this and I’ve never had any issue with the Doc prescribing this way, pre- and post-Medicare. Been doing it for 40 years.
My doctor changed me from Humalog to the generic version. I have no idea why. None of the pharmacies around KCMO could get the generic, so I switched back.
I got my 3-month refill a month ago without any problems. My pharmacy is really good.
I read about it, and my supply was low, so thought maybe I should call in the prescription just to be safe. It was ready before I was ready to pick it up same day – so no.
This is the first I’ve heard of an insulin shortage. No, I have not been affected.
It’s taking a long time to get it but I think that’s the fault of the insurance and pharmacy! I’m having to answer numerous questions and have been given conflicting information. I’m on Medicare and have an Advantage plan. Apparently it has to be pre authorized and then they have to decide how to bill it! Fortunately I’m not desperately waiting for it!
I had answered no to this question a few weeks ago. But in April 14 I got a message from Walgreen’s that it was time to refill my Humalog prescription. Soon after I ordered it I got a message that the medication was out of stock. No word from them for 10 days while the website continued to list Humalog as out of stock. Today, April 24, I called the pharmacy and was told they still have no supply of Humalog but that they could give me one vial of my 7-vial order. Still no word on when more Humalog will be available. Disgraceful performance on the part of Lilly and Walgreen’s. Luckily I have three months’ supply in reserve.